Caregiver Connect Grants
Funding Amount
$100 - $400
Deadline
Deadline not published
Grant Type
Foundation
Deadline history & next window
- Cycle
- Annual
- Tracked since
- April 2026
Source: the cycle recorded on this listing. Confirm dates with the funder.
Can we apply?
Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.
Other requirements
- Must be a member of the DSF Family Network
- Events must be held within the United States
- Can be hosted by any caregiver or family member
- Applicants may only apply for a grant once each calendar year
Overview
Geographic Scope: United States only
Background: These grants support caregivers in connecting with one another through local Dravet family gatherings and support groups. The program recognizes that connecting with others who understand the shared experience of caring for someone with Dravet syndrome can make a significant difference.
Purpose:
Fund local Dravet family gatherings or ongoing Dravet support groups to allow community members to connect and receive support from one another without financial burden.
Award Amount:
- $100 - $400 per grant
Eligibility:
- Must be a member of the DSF Family Network
- Events must be held within the United States
- Can be hosted by any caregiver or family member
- Applicants may only apply for a grant once each calendar year
What Grants Can Fund:
- Space reservations
- Food for the event
- Fun activities
- Event hosting and setup
Examples of Funded Events:
- Family BBQ hosted at someone's home
- Moms brunch at a restaurant
- Dads dinner
- Family gathering at a park
- Local support group meetings
Application Requirements:
- Tell DSF what type of event you plan to host
- Indicate how many other caregivers and/or families will attend
- Propose the date of your event
- Allow up to two weeks for application review and approval
Membership Requirement:
Must be a member of the DSF Family Network to apply. If unsure about membership status, contact sarah@dravetfoundation.org
How to Apply
Application Process
How to Apply:
- Ensure you are a member of the DSF Family Network (contact sarah@dravetfoundation.org if unsure)
- Go to the DSF website and submit an application
- Include the following information:
- Type of event you plan to host
- Number of other caregivers and/or families who will attend
- Proposed date of your event
Processing Timeline:
- Allow up to two weeks for application review and approval
Application Frequency:
- Applicants may only apply for a grant once each calendar year
Finding Participants:
- Can use the DSF regional support group to share information about the gathering
- This helps identify other families in your area who may be interested in participating
Contact for Questions:
sarah@dravetfoundation.org
What Dravet Syndrome Foundation Inc actually gave
Source: IRS Form 990, 2025
- Grants in 2025
- 9
- Total given
- $2.73M
- Median grant
- $240K
- Range
- $9,369–$779K
- By dollars: Michigan 29%, Colorado 24%, Washington 16%. Top recipient cities: Ann Arbor, MI; Denver, CO; Seattle, WA.
- 0% of grants with a stated purpose were for general or operating support.
Example grants
Regents of the University of Michigan · Ann Arbor, MI
1. University of Michigan - Special Project Funding:Understanding Phenotypes and…
$779K
Regents of the University of Colorado · Denver, CO
Dravet Syndrome Natural History Study. The Natural History study will recruit and…
$662K
Allen Institute · Seattle, WA
Circuit-Selective Whole SCN1A Gene Delivery for Dravet Syndrome. This research focuses…
$450K
The Board of Trustees of the Leland Stanford Junior University · Stanford, CA
Identification of Behavioral Biomarkers in Children with DS: A Pilot Study In…
$310K
Children's Hospital of Pennsylvania · Philadelphia, PA
1. In conjunction with Tel Aviv University and Institut de Génétique Moléculaire de…
$240K
Focus Areas & Funding Uses
Fields of Work
- Developmental disabilities
- Mental health
- Family services
Categories
Browse similar grants by category
Related Grants
Open grants from this funder and similar programs
Patient Assistance Grant (PAG) Program
Dravet Syndrome Foundation Inc
Amount
Up to $1,500 per year; lifetime maximum $5,000 per patient
Deadline
Expected ~December
Based on past cycles
Dravet Syndrome Foundation: Clinician Researcher Awards Grant
Dravet Syndrome Foundation Inc
Amount
US $75,000
Deadline
Deadline not published
Dravet Syndrome Foundation: Transformational Science Grants
Dravet Syndrome Foundation Inc
Amount
US $500,000
Deadline
Deadline not published
Dravet Syndrome Foundation: Postdoctoral Fellowship Grant
Dravet Syndrome Foundation Inc
Amount
US $75,000
Deadline
Deadline not published
Dravet Syndrome Foundation: Clinical Research Grants
Dravet Syndrome Foundation Inc
Amount
US $250,000
Deadline
Deadline not published
Dravet Syndrome Foundation: Research Grant
Dravet Syndrome Foundation Inc
Amount
US $250,000
Deadline
Deadline not published
Ready to apply for Caregiver Connect Grants?
Grantable helps you assess fit, draft narratives, and track deadlines — so you can submit stronger applications, faster.
You found Caregiver Connect Grants. Now let's win it.