Funding Amount

$100 - $400

Deadline

Deadline not published

Grant Type

Foundation

Deadline history & next window

Cycle
Annual
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Other requirements

  • Must be a member of the DSF Family Network
  • Events must be held within the United States
  • Can be hosted by any caregiver or family member
  • Applicants may only apply for a grant once each calendar year

Overview

Geographic Scope: United States only

Background: These grants support caregivers in connecting with one another through local Dravet family gatherings and support groups. The program recognizes that connecting with others who understand the shared experience of caring for someone with Dravet syndrome can make a significant difference.

Purpose:
Fund local Dravet family gatherings or ongoing Dravet support groups to allow community members to connect and receive support from one another without financial burden.

Award Amount:

  • $100 - $400 per grant

Eligibility:

  • Must be a member of the DSF Family Network
  • Events must be held within the United States
  • Can be hosted by any caregiver or family member
  • Applicants may only apply for a grant once each calendar year

What Grants Can Fund:

  • Space reservations
  • Food for the event
  • Fun activities
  • Event hosting and setup

Examples of Funded Events:

  • Family BBQ hosted at someone's home
  • Moms brunch at a restaurant
  • Dads dinner
  • Family gathering at a park
  • Local support group meetings

Application Requirements:

  • Tell DSF what type of event you plan to host
  • Indicate how many other caregivers and/or families will attend
  • Propose the date of your event
  • Allow up to two weeks for application review and approval

Membership Requirement:
Must be a member of the DSF Family Network to apply. If unsure about membership status, contact sarah@dravetfoundation.org

How to Apply

Application Process

How to Apply:

  1. Ensure you are a member of the DSF Family Network (contact sarah@dravetfoundation.org if unsure)
  2. Go to the DSF website and submit an application
  3. Include the following information:
    • Type of event you plan to host
    • Number of other caregivers and/or families who will attend
    • Proposed date of your event

Processing Timeline:

  • Allow up to two weeks for application review and approval

Application Frequency:

  • Applicants may only apply for a grant once each calendar year

Finding Participants:

  • Can use the DSF regional support group to share information about the gathering
  • This helps identify other families in your area who may be interested in participating

Contact for Questions:
sarah@dravetfoundation.org

What Dravet Syndrome Foundation Inc actually gave

Source: IRS Form 990, 2025

Grants in 2025
9
Total given
$2.73M
Median grant
$240K
Range
$9,369–$779K
  • By dollars: Michigan 29%, Colorado 24%, Washington 16%. Top recipient cities: Ann Arbor, MI; Denver, CO; Seattle, WA.
  • 0% of grants with a stated purpose were for general or operating support.

Example grants

  • Regents of the University of Michigan · Ann Arbor, MI

    1. University of Michigan - Special Project Funding:Understanding Phenotypes and…

    $779K

  • Regents of the University of Colorado · Denver, CO

    Dravet Syndrome Natural History Study. The Natural History study will recruit and…

    $662K

  • Allen Institute · Seattle, WA

    Circuit-Selective Whole SCN1A Gene Delivery for Dravet Syndrome. This research focuses…

    $450K

  • The Board of Trustees of the Leland Stanford Junior University · Stanford, CA

    Identification of Behavioral Biomarkers in Children with DS: A Pilot Study In…

    $310K

  • Children's Hospital of Pennsylvania · Philadelphia, PA

    1. In conjunction with Tel Aviv University and Institut de Génétique Moléculaire de…

    $240K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Developmental disabilities
  • Mental health
  • Family services

Categories

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