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Patient Assistance Grant (PAG) Program

DRAVET SYNDROME FOUNDATION INC

Foundation Annual Developmental Disabilities GrantsMedical Equipment Grants
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Funding Amount

Up to $1,500 per year; lifetime maximum $5,000 per patient

Deadline

December 1, 2026

237 days left

Grant Type

foundation

Overview

Patient Assistance Grant (PAG) Program

Status: Active; accepting applications through December 1st each year or until funds depleted

Geographic Scope: Global/Worldwide

Background: The PAG program has been part of DSF's advocacy efforts since 2009. It recognizes how difficult it can be for families to obtain necessary equipment and items not typically covered by private insurance or Medicaid.

Eligibility:

  • Open to all patients worldwide diagnosed with Dravet syndrome

  • Must be a member of the DSF Family Network

  • No income requirements (need-based, not income-based)

  • Applications may be submitted by: patient's family, healthcare provider, or social worker

    • Award Amount:

  • Up to $1,500 per year

  • Lifetime maximum: $5,000 per patient

  • Awards given on first-come, first-served basis

  • Each applicant may apply once per grant cycle

    • Covered Items:

  • Durable medical equipment (wheelchairs, orthotics, cooling vests, adaptive strollers/wagons, adaptive bikes)

  • Seizure helmets and hats

  • Seizure monitors

  • Sleep-safe pillows

  • Therapy tools and devices

  • Communication and learning devices (e.g., iPads)

  • Educational devices

  • Expenses related to starting or maintaining the ketogenic diet

  • Tools and supplies associated with the keto diet

    • Items NOT Covered:

  • Medical co-pays

  • Therapy costs/sessions

  • Respite assistance/care

  • Service animals

  • Medical travel

    • Application Period: January 1 - November 30 each year (or until funds depleted)

    Contact: sarah@dravetfoundation.org

    Additional Information:

  • Available in English and Spanish

  • Insurance denials required for some items but not all

  • Program runs from Jan 1st through Nov 30th each year

    • How to Apply

    Application Process

    How to Apply:
    1. Visit the DSF website to access the online application
    2. Submit application with required information

    Required Information:

  • Description of requested item(s)

  • How the item will help the patient

  • Insurance denial documentation (for some items, not required for all)

    • Submission Details:

  • Applications available online in English and Spanish

  • Submit through online application portal on DSF website

  • Maximum of 3 items per application (contact DSF if requesting more)

    • Eligibility Requirements for Applicants:

  • Must be member of DSF Family Network

  • Can be submitted by: patient's family, healthcare provider, or social worker

    • Processing:

  • Awards granted on first-come, first-served basis

  • Application review and approval timeline provided on website

    • Questions:
    Contact sarah@dravetfoundation.org

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    Focus Areas & Funding Uses

    Fields of Work

    developmental-disabilitiesmedical-equipment

    Categories

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