Patient Assistance Grant (PAG) Program

Geographic Scope: Global/Worldwide

Background: It recognizes how difficult it can be for families to obtain necessary equipment and items not typically covered by private insurance or Medicaid.

Eligibility:

• Open to all patients worldwide diagnosed with Dravet syndrome
• Must be a member of the DSF Family Network
• No income requirements (need-based, not income-based)
• Applications may be submitted by: patient's family, healthcare provider, or social worker

Award Amount:

• Up to $1,500 per year
• Lifetime maximum: $5,000 per patient
• Awards given on first-come, first-served basis
• Each applicant may apply once per grant cycle

Covered Items:

• Durable medical equipment (wheelchairs, orthotics, cooling vests, adaptive strollers/wagons, adaptive bikes)
• Seizure helmets and hats
• Seizure monitors
• Sleep-safe pillows
• Therapy tools and devices
• Communication and learning devices (e.g., iPads)
• Educational devices
• Expenses related to starting or maintaining the ketogenic diet
• Tools and supplies associated with the keto diet

Items NOT Covered:

• Medical co-pays
• Therapy costs/sessions
• Respite assistance/care
• Service animals
• Medical travel

Application Period: January 1 - November 30 each year (or until funds depleted)

Additional Information:

• Available in English and Spanish
• Insurance denials required for some items but not all
• Program runs from Jan 1st through Nov 30th each year

Application Process

How to Apply:

1. Visit the DSF website to access the online application
2. Submit application with required information

Required Information:

• Description of requested item(s)
• How the item will help the patient
• Insurance denial documentation (for some items, not required for all)

Submission Details:

• Applications available online in English and Spanish
• Submit through online application portal on DSF website
• Maximum of 3 items per application (contact DSF if requesting more)

Eligibility Requirements for Applicants:

• Must be member of DSF Family Network
• Can be submitted by: patient's family, healthcare provider, or social worker

Processing:

• Awards granted on first-come, first-served basis
• Application review and approval timeline provided on website

Questions:
Contact sarah@dravetfoundation.org