Usher 1F Collaborative Inc
To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.
Usher 1F Collaborative Inc at a glance
In short: Usher 1F Collaborative Inc gave $692K across 5 grants in 2025 (avg $138K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $691,990
- +3.1% vs 2024
- Grants made (2025)
- 5
- +25.0% vs 2024
- Average grant
- $138,398
- -17.5% vs 2024
- Median grant
- $86,640
- Total assets
- $691,312
- -11.5% vs 2024
- Primary geography
- Massachusetts (59% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Usher 1F Collaborative Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Harvard University ($320K). Together the top 5 received $692K.
Grant Size Distribution
22 grants across all recorded years
The most common grant size was in the $100–250K range: 10 grants of 22 (45%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
How Usher 1F Collaborative Inc gives
- Giving held roughly steady from 2022 to 2025 (−4%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $300K (2020) to $718K (2022). In 2025 it made 5 grants totaling $692K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Harvard University Cambridge, MA | — | $320,000 |
| Foundation Fighting Blindness Columbia, MD | — | $200,000 |
| Unravel Biosciences Medford, MA | — | $86,640 |
| University of Oregon Foundation Eugene, OR | — | $80,000 |
| LSU Foundation Baton Rouge, LA | — | $5,350 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $691,312 | $743,572 | $885,485 | $691,990 | 5 | $15,727 |
| 2024 | $781,549 | $845,716 | $871,099 | $671,155 | 4 | $13,030 |
| 2023 | $810,900 | $446,533 | $646,264 | $427,500 | 4 | — |
| 2022 | $1,300,335 | $1,082,978 | $932,832 | $718,100 | 5 | — |
| 2021 | $1,173,759 | $597,802 | $840,065 | $535,000 | 4 | $1,126 |
| 2020 | $1,398,235 | $1,233,929 | $482,557 | $300,000 | 4 | $9,872 |
| 2019 | $646,863 | $783,556 | $435,650 | $325,000 | 4 | $10,473 |
About Usher 1F Collaborative Inc
Based on IRS filings
Usher 1F Collaborative Inc is a public charity focused on Medical Research, based in Newtonville, MA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $691K in total assets. In 2025, it awarded 5 grants totaling $692K. Net investment income was $16K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Usher 1F Collaborative Inc is led by Melissa Chaikof, Chair & Trustee since 2022 (on filings since 2019); none of the 12 officers listed in 2025 report compensation.
Officers on the 2025 filing
Melissa Chaikof
Chair & Trustee
President → Chair & Trustee, 2022
On filings since 2019
40 hrs/week
No compensation reported
Elliot Chaikof
Vice Chair & Trustee
Vice President → Vice Chair & Trustee, 2022
On filings since 2019
2 hrs/week
No compensation reported
Frank Gentile
Treasurer & Trustee
Treasurer → Treasurer & Trustee, 2022
On filings since 2019
2 hrs/week
No compensation reported
Jared Root
Secretary & Trustee
Director → Secretary & Trustee, 2022
On filings since 2019
4 hrs/week
No compensation reported
Julian Seewald
Trustee
Director → Trustee, 2022
On filings since 2019
2 hrs/week
No compensation reported
Rachel Root
Trustee
Clerk → Secretary, 2021
Secretary → Trustee, 2022
On filings since 2019
2 hrs/week
No compensation reported
Joshua Cohen
Trustee
Director → Trustee, 2022
On filings since 2021
2 hrs/week
No compensation reported
Sari L Springer
Trustee
Director → Trustee, 2022
On filings since 2021
2 hrs/week
No compensation reported
Heather Rosenstein
Trustee
On filings since 2022
2 hrs/week
No compensation reported
Eric Halper
Trustee
On filings since 2023
2 hrs/week
No compensation reported
Dorie Shapiro
Trustee
On filings since 2024
2 hrs/week
No compensation reported
Margi Levitt
Trustee
On filings since 2024
2 hrs/week
No compensation reported
Former officers (5)
- Former: Laurie Shapiro (2019–2023) — Trustee
- Former: Lijun Sun (2019–2023) — Trustee
- Former: Joshua Herz (2021–2022) — Trustee
- Former: Josh Herz (2019–2020) — Director
- Former: Matt Shulman (2019–2020) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Usher 1F Collaborative Inc
How much does Usher 1F Collaborative Inc give each year?
Usher 1F Collaborative Inc gave $692K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $671K across 4 grants.
What is Usher 1F Collaborative Inc's typical grant size?
Usher 1F Collaborative Inc's median grant in 2025 was $86,640, and its average grant was $138,398, across 5 grants on its 2025 IRS Form 990.
Where does Usher 1F Collaborative Inc give grants?
Usher 1F Collaborative Inc gives mostly in Massachusetts: 59% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Maryland (29%) and Oregon (12%).
Who are Usher 1F Collaborative Inc's largest grantees?
Usher 1F Collaborative Inc's largest 2025 grantees include Harvard University ($320,000), Foundation Fighting Blindness ($200,000) and Unravel Biosciences ($86,640), according to its 2025 IRS Form 990. Together they received 88% of its itemized 2025 grant dollars.
How large is Usher 1F Collaborative Inc?
Usher 1F Collaborative Inc reported $691K in total assets on its 2025 IRS Form 990. Its revenue that year was $744K.
What is Usher 1F Collaborative Inc?
Usher 1F Collaborative Inc is a public charity focused on Medical Research, based in Newtonville, MA. It holds $691K in total assets as of 2025.
What is Usher 1F Collaborative Inc's EIN?
Usher 1F Collaborative Inc's EIN (Employer Identification Number) is 46-4309387. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS May 15, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS May 27, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 19, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 4, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 6, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS March 12, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS February 26, 2026)
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