Usher 1F Collaborative Inc

NEWTONVILLE, MA EIN: 46-4309387 Website

To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$782K

-3.6% YoY

Annual Giving

$671K

+57.0% YoY

Grant Count

4

+0.0% YoY

Avg Grant Size

$168K

+57.0% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$339K$679K$1M$1M20202021202220232024
Metric202420232022
Total Assets$781,549$810,900$1,300,335
Revenue$845,716$446,533$1,082,978
Expenses$871,099$646,264$932,832
Qualifying Distributions
Net Investment Income$13,030
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$180K$359K$539K$718K0 grants20204 grants20215 grants20224 grants20234 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2024

Harvard University$291KFoundation Fighting Blin…$200KThe Salk Institute$150KUniversity of Oregon Fou…$30K

Grant Size Distribution

17 grants across all recorded years

4<$50K2$50–100K9$100–250K2$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Usher 1F Collaborative Inc fund?

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
Joshua CohenTrustee2
Rachel RootTrustee2
Julian SeewaldTrustee2
Sari L SpringerTrustee2
Heather RosensteinTrustee2
Eric HalperTrustee2
Margi LevittTrustee2
Dorie ShapiroTrustee2
Melissa ChaikofChair and Trustee40
Elliot ChaikofVice Chair and Trustee2
Frank GentileTreasurer and Trustee2
Jared RootSecretary and Trustee4

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

4states

Cities

BaltimoreCambridgeColumbiaEugeneLa Jolla

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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