The Sumaira Foundation Inc
The Sumaira Foundation, inc. (the organization"), a 501(c)(3) organization, that is dedicated to generating global awareness of neuromyelitis optica spectrum disorder ("nmosd"), fundraising to help find a cure, and creating a community of support for patients and their caregivers. The organization is supported primarily through grants and fundraising events.
The Sumaira Foundation Inc at a glance
In short: The Sumaira Foundation Inc gave $46K across 1 grant in 2024 (avg $46K), mostly in Colorado. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $46,000
- -8.0% vs 2023
- Grants made (2024)
- 1
- -50.0% vs 2023
- Average grant
- $46,000
- +84.0% vs 2023
- Median grant
- $46,000
- Total assets
- $618,636
- -13.7% vs 2023
- Primary geography
- Colorado (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to The Sumaira Foundation Inc
Open Grants
3 open opportunities from The Sumaira Foundation Inc
Joannie's Unicorn Grant
The Sumaira Foundation Inc
Amount
$25,000
Deadline
Deadline not published
Light the Way Forward Grant
The Sumaira Foundation Inc
Amount
$25,000
Deadline
Deadline not published
TSF SPARK Grants
The Sumaira Foundation Inc
Amount
$25,000
Deadline
Deadline not published
Who The Sumaira Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Brain Health Center of the Rockies ($46K).
Grant Size Distribution
12 grants across all recorded years
The most common grant size was under $50K: 11 grants of 12 (92%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How The Sumaira Foundation Inc gives
- Giving fell 20% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $46K (2024) to $100K (2020). In 2024 it made 1 grant totaling $46K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Brain Health Center of the Rockies Loveland, CO | The purpose of this grant is to assist brain health center of the rockies in their mission. | $46,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $618,636 | $1,345,639 | $1,329,611 | $46,000 | 1 | $-21,757 |
| 2023 | $716,755 | $1,759,652 | $1,495,010 | $50,000 | 2 | $7,667 |
| 2022 | $457,112 | $1,457,691 | $1,372,269 | $75,000 | 3 | — |
| 2021 | $356,004 | $309,923 | $120,535 | $57,500 | 3 | — |
| 2020 | $165,391 | $157,788 | $118,257 | $100,000 | 3 | — |
About The Sumaira Foundation Inc
Based on IRS filings
The Sumaira Foundation Inc is a public charity focused on Medical Research, based in Somerville, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $619K in total assets. In 2024, it awarded 1 grant totaling $46K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Sumaira Foundation Inc is led by Sumaira Ahmed, President on every filing since 2020; 2 of 6 officers listed in 2024 are compensated.
Officers on the 2024 filing
Sumaira Ahmed
President
On filings since 2020
40 hrs/week
$225K (2022) → $300K (2024)
Michael Devlin
Director
On filings since 2021
40 hrs/week
$211K (2022) → $285K (2024)
Melissa Barash
Director
On filings since 2020
1 hr/week
No compensation reported
Lauren Michaels
Director
On filings since 2021
1 hr/week
No compensation reported
Stephanie Hamzo
Director
On filings since 2021
1 hr/week
No compensation reported
Alexis Ahmad
Director
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (4)
- Former: Gabriela Romanow (2020–2021) — Director
- Former: Jennifer Van Amerom (2021) — Director
- Former: Marissa Shackleton (2021) — Director
- Former: Greg Santos Esq. (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $300K, to Sumaira Ahmed (President). 2 officers or directors reported compensation on that filing.
Frequently asked questions about The Sumaira Foundation Inc
How much does The Sumaira Foundation Inc give each year?
The Sumaira Foundation Inc gave $46K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $50K across 2 grants.
How large is The Sumaira Foundation Inc?
The Sumaira Foundation Inc reported $619K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.3M.
What is The Sumaira Foundation Inc?
The Sumaira Foundation Inc is a public charity focused on Medical Research, based in Somerville, MA. It holds $619K in total assets as of 2024.
Where does The Sumaira Foundation Inc operate?
The Sumaira Foundation Inc has awarded grants in California, Colorado, Florida, Massachusetts, Ohio, Utah, Wisconsin.
What is The Sumaira Foundation Inc's EIN?
The Sumaira Foundation Inc's EIN (Employer Identification Number) is 47-2398246. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 10, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in The Sumaira Foundation Inc's focus areas in our free grants database
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