Joannie's Unicorn Grant

Focus Area: Pediatric research on NMOSD treatment and outcomes

Geographic Scope: United States

Eligibility:

• Clinical, translational, and basic researchers with experience in pediatric NMOSD and autoimmune diseases
• Must be affiliated with academic institutions in the United States

Award Details:

• Up to $25,000 per grant
• Award granted to researcher's institution, not individual
• Multiple grants awarded annually

Research Focus:

• Therapeutic response in pediatric NMOSD
• Evaluation of disease-modifying treatments for attack prevention in children
• Evaluation of treatments for disability prevention in pediatric patients
• HLA associations in pediatric MOG-AD, NMOSD, and ADEM

Selection Process:

• Grant Committee includes: 1 Medical Board member, 2 Executive Committee members, 1-2 independent NMOSD research key opinion leaders
• Committee scores applications based on predetermined criteria
• Committee has sole decision-making authority

Post-Award Requirements:

• Mid-term project report required
• Final completion report required

Contact:

• Email: [email protected]
• Address: The Sumaira Foundation, PO Box 161, Brookline, MA 02446
• Website: sumairafoundation.org

Background:
The Sumaira Foundation is a 501(c)(3) organization founded by an NMO patient dedicated to generating global awareness of NMOSD, fundraising to find a cure, and creating community support for patients and caregivers.

Application Instructions

Required Materials:

• Two-page project summary
• Budget information (funding secured and requested)
• List of personnel
• Curriculum Vitae (CV)

Submission Process:

1. Prepare two-page project summary including budget and personnel information
2. Include current CV
3. Submit through online portal

Timeline (2020 cycle as example):

• Applications due: April 30, 2020
• Grant Committee review: By May 25, 2020
• Recipients announced and checks distributed: June 3, 2020

Note: Timeline varies by year. Check website for current deadline information.