The Stiff Person Syndrome Research
The Stiff Person Syndrome Research is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.3M in total assets.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.3M
+25.6% YoY
Revenue
$622K
-25.2% YoY
Net Investment Income
—
Expenses
$364K
+60.0% YoY
Under IRS private-foundation payout rules, The Stiff Person Syndrome Research reported a distributable amount of $33K for 2024 — the minimum it must pay out in qualifying distributions.
About The Stiff Person Syndrome Research
Based on IRS filings
The Stiff Person Syndrome Research is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.3M in total assets.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,257,695 | $1,000,989 | $430,825 |
| Revenue | $621,683 | $830,687 | $556,964 |
| Expenses | $364,099 | $227,503 | $120,679 |
| Qualifying Distributions | — | — | $7,500 |
| Net Investment Income | — | — | — |
| Distributable Amount | $32,598 | $24,849 | $10,660 |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Tara Zier | President | 40 | — |
| Jim Weiss | Director | 24 | — |
| Lara Vujovic | Secretary | 1 | — |
| Helena Zec | Director | 1 | — |
| Vidyashankar Krishnan | Treasurer | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Stiff Person Syndrome Research?
The Stiff Person Syndrome Research is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. It holds $1.3M in total assets as of 2024.
How large is The Stiff Person Syndrome Research?
As of 2024, The Stiff Person Syndrome Research holds $1.3M in total assets with $622K in annual revenue.
Where does The Stiff Person Syndrome Research operate?
The Stiff Person Syndrome Research has awarded grants in Maryland.
How much is The Stiff Person Syndrome Research required to give away each year?
Private foundations must generally distribute about 5% of their assets annually. For 2024, The Stiff Person Syndrome Research reported a distributable amount of $33K on its IRS Form 990-PF — the minimum it must pay out in qualifying distributions.
What is The Stiff Person Syndrome Research's EIN?
The Stiff Person Syndrome Research's EIN (Employer Identification Number) is 84-2291780. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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