The Stiff Person Syndrome Research
The Stiff Person Syndrome Research is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in Bethesda, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.3M in total assets.
The Stiff Person Syndrome Research at a glance
- Total assets
- $1,257,695
- +25.6% vs 2023
- Revenue (2024)
- $621,683
- -25.2% vs 2023
- Expenses (2024)
- $364,099
- +60.0% vs 2023
- Latest 990 filing
- Form 990-PF, 2024 View filing
Data from IRS Form 990-PF, 2024; updated September 2026.
Who The Stiff Person Syndrome Research funds
How this funder distributes its grants
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How The Stiff Person Syndrome Research gives
- In 2022 it paid out 70% of its IRS minimum distribution (the 5% rule). Foundations have until the end of the next year to meet it. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2022, annual grant giving ranged from $8K (2022) to $50K (2020). In 2022 it made 1 grant totaling $8K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| John Hopkins University Baltimore, MD | Research | $7,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Distributable Amount |
|---|---|---|---|---|---|---|---|
| 2024 | $1,257,695 | $621,683 | $364,099 | — | — | — | $32,598 |
| 2023 | $1,000,989 | $830,687 | $227,503 | — | — | — | $24,849 |
| 2022 | $430,825 | $556,964 | $120,679 | $7,500 | 1 | $7,500 | $10,660 |
| 2021 | $11,430 | $50,197 | $122,415 | $40,000 | 1 | $40,000 | $690 |
| 2020 | $2,176 | $53,251 | $61,035 | $50,000 | 1 | — | $936 |
Under IRS private-foundation payout rules, The Stiff Person Syndrome Research reported a distributable amount of $33K for 2024 — the minimum it must pay out in qualifying distributions.
Leadership & Key People
Officers and directors from IRS filings
The Stiff Person Syndrome Research is led by Tara Zier, President on every filing since 2020; none of the 5 officers listed in 2024 report compensation.
Officers on the 2024 filing
Tara Zier
President
On filings since 2020
40 hrs/week
No compensation reported
Helena Zec
Director
On filings since 2023
1 hr/week
No compensation reported
Jim Weiss
Director
On filings since 2023
24 hrs/week
No compensation reported
Lara Vujovic
Secretary
Director → Secretary, 2023
On filings since 2022
1 hr/week
No compensation reported
Vidyashankar Krishnan
Treasurer
On filings since 2023
1 hr/week
No compensation reported
Former officers (4)
- Former: Carla Robson (2020–2023) — Secretary
- Former: Dan Robson (2020–2023) — Treasurer
- Former: Elaine Webster (2023) — Director
- Former: James Weiss (2022) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about The Stiff Person Syndrome Research
How large is The Stiff Person Syndrome Research?
The Stiff Person Syndrome Research reported $1.3M in total assets on its 2024 IRS Form 990-PF. Its revenue that year was $622K.
What is The Stiff Person Syndrome Research?
The Stiff Person Syndrome Research is a private foundation focused on Diseases, Disorders & Medical Disciplines, based in Bethesda, MD. It holds $1.3M in total assets as of 2024.
Where does The Stiff Person Syndrome Research operate?
The Stiff Person Syndrome Research has awarded grants in Maryland.
How much is The Stiff Person Syndrome Research required to give away each year?
Private foundations must generally distribute about 5% of their assets annually. For 2024, The Stiff Person Syndrome Research reported a distributable amount of $33K on its IRS Form 990-PF — the minimum it must pay out in qualifying distributions.
What is The Stiff Person Syndrome Research's EIN?
The Stiff Person Syndrome Research's EIN (Employer Identification Number) is 84-2291780. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in The Stiff Person Syndrome Research's focus areas in our free grants database
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