THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.8M
+7.6% YoY
Annual Giving
$114K
+1.3% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$29K
+1.3% YoY
About The National Fragile X Foundation
Based on IRS filings
The National Fragile X Foundation is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.8M in total assets. In 2024, it awarded 4 grants totaling $114K. Net investment income was $98K.
Focus Areas
Ready to take the next step with The National Fragile X Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,843,116 | $3,572,020 | $2,775,189 |
| Revenue | $2,134,157 | $1,802,073 | $3,240,795 |
| Expenses | $2,124,722 | $1,800,882 | $2,091,542 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $97,561 | $47,771 | $1,762 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Open Grants
4 open opportunities from The National Fragile X Foundation
International Fragile X Premutation Registry Recruitment Support
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
NFXF Junior Investigator Award
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Randi J. Hagerman Summer Scholar Award
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $143,381 |
| LAURIE BRIDGES | BOARD PRESIDENT | 2 | — |
| KARA FRECH | BOARD VICE-PRESIDENT | 2 | — |
| JORDAN CROTTY | BOARD TREASURER | 2 | — |
| ABBY GAUNT | BOARD SECRETARY | 2 | — |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | — |
| DENNY HAUGEN | BOARD MEMBER | 1 | — |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | — |
| SHARI SILVER | BOARD MEMBER | 1 | — |
| VICTORIA WILKINS | BOARD MEMBER | 1 | — |
| TAMARO HUDSON | BOARD MEMBER | 1 | — |
| DAVID TILLMAN | BOARD MEMBER | 1 | — |
| JACQUELYN COLEMAN | BOARD MEMBER | 1 | — |
| SUSAN HOWELL | BOARD MEMBER | 1 | — |
| PEGGY FLANAGAN | BOARD MEMBER | 1 | — |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $117,823 |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
Demand Justice Initiative
WASHINGTON, DC
Assets
$7.6M
Grants
1
Total Given
$225K
American Academic Leadership Institute
WASHINGTON, DC
Assets
$3.6M
Grants
2
Total Given
$50K
Cnfa
WASHINGTON, DC
Assets
$18.3M
Grants
9
Total Given
$4.2M
Partnership for a Healthier America
WASHINGTON, DC
Assets
$10.8M
Grants
12
Total Given
$350K
Association of Schools of Allied Health
WASHINGTON, DC
Assets
$2.3M
Grants
2
Total Given
$60K
Fulcrum Foundation Inc
WASHINGTON, DC
Assets
$53K
Grants
10
Total Given
$13K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The National Fragile X Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities