The National Fragile X Foundation
THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$3.8M
+7.6% YoY
Annual Giving
$114K
+1.3% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$29K
+1.3% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,843,116 | $3,572,020 | $2,775,189 |
| Revenue | $2,134,157 | $1,802,073 | $3,240,795 |
| Expenses | $2,124,722 | $1,800,882 | $2,091,542 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $97,561 | $47,771 | $1,762 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does The National Fragile X Foundation fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $143,381 |
| LAURIE BRIDGES | BOARD PRESIDENT | 2 | — |
| KARA FRECH | BOARD VICE-PRESIDENT | 2 | — |
| JORDAN CROTTY | BOARD TREASURER | 2 | — |
| ABBY GAUNT | BOARD SECRETARY | 2 | — |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | — |
| DENNY HAUGEN | BOARD MEMBER | 1 | — |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | — |
| SHARI SILVER | BOARD MEMBER | 1 | — |
| VICTORIA WILKINS | BOARD MEMBER | 1 | — |
| TAMARO HUDSON | BOARD MEMBER | 1 | — |
| DAVID TILLMAN | BOARD MEMBER | 1 | — |
| JACQUELYN COLEMAN | BOARD MEMBER | 1 | — |
| SUSAN HOWELL | BOARD MEMBER | 1 | — |
| PEGGY FLANAGAN | BOARD MEMBER | 1 | — |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $117,823 |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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