THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.8M
+7.6% YoY
Annual Giving
$114K
+1.3% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$29K
+1.3% YoY
About The National Fragile X Foundation
Based on IRS filings
The National Fragile X Foundation is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.8M in total assets. In 2024, it awarded 4 grants totaling $114K. Net investment income was $98K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,843,116 | $3,572,020 | $2,775,189 |
| Revenue | $2,134,157 | $1,802,073 | $3,240,795 |
| Expenses | $2,124,722 | $1,800,882 | $2,091,542 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $97,561 | $47,771 | $1,762 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
12 grants across all recorded years
Open Grants
4 open opportunities from The National Fragile X Foundation
International Fragile X Premutation Registry Recruitment Support
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
NFXF Junior Investigator Award
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Randi J. Hagerman Summer Scholar Award
THE NATIONAL FRAGILE X FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Cincinnati Children's Hospital Medical Center ($49,830), University of Colorado Denver ($34,286), Regents of the University of Minnesota ($16,317).
| Recipient | Purpose | Amount |
|---|---|---|
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER CINCINNATI, OH | SUB AWARD | $49,830 |
| REGENTS OF THE UNIVERSITY OF MINNESOTA MINNEAPOLIS, MN | SUB AWARD | $16,317 |
| UNIVERSITY OF CALIFORNIA DAVIS DAVIS, CA | SUB AWARD | $13,919 |
| UNIVERSITY OF COLORADO DENVER AURORA, CO | SUB AWARD | $34,286 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $143,381 |
| LAURIE BRIDGES | BOARD PRESIDENT | 2 | — |
| KARA FRECH | BOARD VICE-PRESIDENT | 2 | — |
| JORDAN CROTTY | BOARD TREASURER | 2 | — |
| ABBY GAUNT | BOARD SECRETARY | 2 | — |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | — |
| DENNY HAUGEN | BOARD MEMBER | 1 | — |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | — |
| SHARI SILVER | BOARD MEMBER | 1 | — |
| VICTORIA WILKINS | BOARD MEMBER | 1 | — |
| TAMARO HUDSON | BOARD MEMBER | 1 | — |
| DAVID TILLMAN | BOARD MEMBER | 1 | — |
| JACQUELYN COLEMAN | BOARD MEMBER | 1 | — |
| SUSAN HOWELL | BOARD MEMBER | 1 | — |
| PEGGY FLANAGAN | BOARD MEMBER | 1 | — |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $117,823 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The National Fragile X Foundation?
The National Fragile X Foundation is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. It holds $3.8M in total assets as of 2024.
How large is The National Fragile X Foundation?
As of 2024, The National Fragile X Foundation holds $3.8M in total assets with $2.1M in annual revenue. It awarded 4 grants totaling $114K in 2024.
Where does The National Fragile X Foundation operate?
The National Fragile X Foundation has awarded grants in California, Colorado, Minnesota, Ohio.
What size grants does The National Fragile X Foundation award?
In 2024, The National Fragile X Foundation awarded 4 grants totaling $114K — an average of about $29K per grant, based on its IRS Form 990 filings.
What is The National Fragile X Foundation's EIN?
The National Fragile X Foundation's EIN (Employer Identification Number) is 84-0960471. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The National Fragile X Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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