International Fragile X Premutation Registry Recruitment Support
Funding Amount
Varies
Deadline
Rolling / Open
Grant Type
foundation
Overview
International Fragile X Premutation Registry (IFXPR) Recruitment Support
Program Type: Recruitment assistance and research resource access for investigators
Focus Areas:
Geographic Scope: International (registrants from 32 countries as of 2022)
Description: The IFXPR provides researchers and investigators with access to a diverse registry of individuals with the FMR1 premutation and family members for recruitment purposes. The registry facilitates research to understand the premutation's impact on human health and supports clinical trial readiness. As of 2022, the registry included 747+ registrants from 32 countries.
Eligibility:
Background: Published in Journal of Medical Genetics (2022). The registry was developed to facilitate research understanding of the premutation and its health impacts, clinical trial readiness, and community building among carriers, family members, researchers, and clinicians worldwide.
Funder: National Fragile X Foundation
Contact: NFXF For Researchers section at fragilex.org
How to Apply
Application Process for Recruitment Support
Step 1: Submit Recruitment Request
Required Materials:
Note: Specific detailed application procedures, forms, and submission requirements should be confirmed directly with NFXF at fragilex.org or through their For Researchers section.
Focus Areas & Funding Uses
Fields of Work
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