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The Myositis Association

COLUMBIA, MD EIN: 54-1660976 Website

The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.0M

+13.1% YoY

Annual Giving

$81K

-45.8% YoY

Grant Count

3

+0.0% YoY

Avg Grant Size

$27K

-45.8% YoY

About The Myositis Association

Based on IRS filings

The Myositis Association is a nonprofit organization focused on Human Services, based in COLUMBIA, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 3 grants totaling $81K. Net investment income was $32K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Cities

AlbanyBaltimoreBethesdaBinghamtonLawrenceNashvillePhiladelphia

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$553K$1M$2M$2M20202021202220232024
Metric202420232022
Total Assets$2,013,453$1,779,524$2,327,942
Revenue$2,012,099$1,249,899$1,317,262
Expenses$1,794,414$1,888,477$1,654,469
Qualifying Distributions
Net Investment Income$32,159$-10,414$-183,061
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$73K$146K$219K$292K2 grants20205 grants20215 grants20223 grants20233 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 3 recipients in 2024

National Institutes of H…$50KJohns Hopkins University$25KUniversity of Pennsylvania$6K

Grant Size Distribution

18 grants across all recorded years

7<$50K9$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Paula EichenbrennerExecutive Dir.$181K

From 2024 filing

NameTitleHoursCompensation
Paula EichenbrennerExecutive Dir.40$180,562
Laurie Boyer ChairDirector3
Rich DeAugustinis Vice ChairDirector1.5
Martha Arnold SecretaryDirector1.5
Howard Gerrin TreasurerDirector1.5
Jeff AutreyDirector0.5
Iazsmin Bauer VenturaDirector0.5
Richard Chip GallowayDirector0.5
Holly JonesDirector0.5
Frank LipieckiDirector0.5
Ricky MarksDirector0.5
David MochelDirector1.5
Tahseen MozaffarDirector0.5
Jane MylesDirector0.5
Rodger OrenDirector0.5
Meriel ParkerDirector0.5
Mustafa ShameemDirector0.5
Nita SharmaDirector0.5

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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