The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.0M
+13.1% YoY
Annual Giving
$81K
-45.8% YoY
Grant Count
3
+0.0% YoY
Avg Grant Size
$27K
-45.8% YoY
About The Myositis Association
Based on IRS filings
The Myositis Association is a nonprofit organization focused on Human Services, based in COLUMBIA, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 3 grants totaling $81K. Net investment income was $32K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,013,453 | $1,779,524 | $2,327,942 |
| Revenue | $2,012,099 | $1,249,899 | $1,317,262 |
| Expenses | $1,794,414 | $1,888,477 | $1,654,469 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $32,159 | $-10,414 | $-183,061 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include National Institutes of Health ($50,000), Johns Hopkins University ($25,000), University of Pennsylvania ($6,268).
| Recipient | Purpose | Amount |
|---|---|---|
| Johns Hopkins University Baltimore, MD | Research Grant | $25,000 |
| National Institutes of Health Bethesda, MD | Research Grant | $50,000 |
| University of Pennsylvania Philadelphia, PA | Research Grant | $6,268 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Paula Eichenbrenner | Executive Dir. | 40 | $180,562 |
| Laurie Boyer Chair | Director | 3 | — |
| Rich DeAugustinis Vice Chair | Director | 1.5 | — |
| Martha Arnold Secretary | Director | 1.5 | — |
| Howard Gerrin Treasurer | Director | 1.5 | — |
| Jeff Autrey | Director | 0.5 | — |
| Iazsmin Bauer Ventura | Director | 0.5 | — |
| Richard Chip Galloway | Director | 0.5 | — |
| Holly Jones | Director | 0.5 | — |
| Frank Lipiecki | Director | 0.5 | — |
| Ricky Marks | Director | 0.5 | — |
| David Mochel | Director | 1.5 | — |
| Tahseen Mozaffar | Director | 0.5 | — |
| Jane Myles | Director | 0.5 | — |
| Rodger Oren | Director | 0.5 | — |
| Meriel Parker | Director | 0.5 | — |
| Mustafa Shameem | Director | 0.5 | — |
| Nita Sharma | Director | 0.5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Myositis Association?
The Myositis Association is a nonprofit organization focused on Human Services, based in COLUMBIA, MD. It holds $2.0M in total assets as of 2024.
How large is The Myositis Association?
As of 2024, The Myositis Association holds $2.0M in total assets with $2.0M in annual revenue. It awarded 3 grants totaling $81K in 2024.
Where does The Myositis Association operate?
The Myositis Association has awarded grants in Kansas, Maryland, New York, Pennsylvania, Tennessee.
What size grants does The Myositis Association award?
In 2024, The Myositis Association awarded 3 grants totaling $81K — an average of about $27K per grant, based on its IRS Form 990 filings.
What is The Myositis Association's EIN?
The Myositis Association's EIN (Employer Identification Number) is 54-1660976. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The Myositis Association's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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