The Myositis Association
The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
The Myositis Association at a glance
In short: The Myositis Association gave $81K across 3 grants in 2024 (avg $27K), mostly in Maryland. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $81,268
- -45.8% vs 2023
- Grants made (2024)
- 3
- +0.0% vs 2023
- Average grant
- $27,089
- -45.8% vs 2023
- Median grant
- $25,000
- Total assets
- $2,013,453
- +13.1% vs 2023
- Primary geography
- Maryland (92% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who The Myositis Association funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was National Institutes of Health ($50K). Together the top 3 received $81K.
Grant Size Distribution
18 grants across all recorded years
The most common grant size was in the $50–100K range: 9 grants of 18 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
Cities
How The Myositis Association gives
- Giving fell 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $81K (2024) to $292K (2022). In 2024 it made 3 grants totaling $81K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Institutes of Health Bethesda, MD | Research Grant | $50,000 |
| Johns Hopkins University Baltimore, MD | Research Grant | $25,000 |
| University of Pennsylvania Philadelphia, PA | Research Grant | $6,268 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,013,453 | $2,012,099 | $1,794,414 | $81,268 | 3 | $32,159 |
| 2023 | $1,779,524 | $1,249,899 | $1,888,477 | $150,000 | 3 | $-10,414 |
| 2022 | $2,327,942 | $1,317,262 | $1,654,469 | $292,363 | 5 | $-183,061 |
| 2021 | $2,957,547 | $1,770,917 | $1,269,788 | $243,708 | 5 | $438,667 |
| 2020 | $2,242,240 | $1,179,750 | $1,183,055 | $125,000 | 2 | $34,442 |
About The Myositis Association
Based on IRS filings
The Myositis Association is a public charity focused on Human Services, based in Columbia, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 3 grants totaling $81K. Net investment income was $32K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Myositis Association is led by Paula Eichenbrenner, Executive Director on the 2024 filing; 1 of 18 officers listed in 2024 is compensated.
Officers on the 2024 filing
Paula Eichenbrenner
Executive Director
New on the 2024 filing
40 hrs/week
$181K (2024)
David Mochel
Director
Vice President → Chairman, 2021
Chairman → Director, 2024
On filings since 2020
1.5 hrs/week
No compensation reported
Jeff Autrey
Director
On filings since 2020
0.5 hrs/week
No compensation reported
Rodger Oren
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Tahseen Mozaffar
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Frank Lipiecki
Director
On filings since 2022
0.5 hrs/week
No compensation reported
Holly Jones
Director
On filings since 2022
0.5 hrs/week
No compensation reported
Iazsmin Bauer Ventura
Director
On filings since 2022
0.5 hrs/week
No compensation reported
Laurie Boyer Vice Chair
Director
On filings since 2023
3 hrs/week
No compensation reported
Nita Sharma
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Ricky Marks
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Howard Gerrin Treasurer
Director
New on the 2024 filing
1.5 hrs/week
No compensation reported
Jane Myles
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Martha Arnold Secretary
Director
New on the 2024 filing
1.5 hrs/week
No compensation reported
Meriel Parker
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Mustafa Shameem
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Rich DeAugustinis Vice Chair
Director
New on the 2024 filing
1.5 hrs/week
No compensation reported
Richard Chip Galloway
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Former officers (22)
- Former: Gail Bayliss (2020–2023) — Director
- Former: Marianne Moyer (2020–2023) — Director
- Former: Martha Arnold (2020–2023) — Secretary
- Former: Rex Bickers (2020–2023) — Director
- Former: Ronne Adkins (2021–2023) — Director
- Former: Rich DeAugustinis (2022–2023) — Treasurer
- Former: Chris Thornton Outgoing (2023) — Executive Director
- Former: David Mochel Chair (2023) — Director
- Former: Howard Gerrin (2023) — Director
- Former: Paula Eichenbrenner Incoming (2023) — Executive Director
- Former: Rhonda Buckley-Bishop Interim (2023) — Executive Director
- Former: James Mathews (2020–2022) — Director
- Former: Laurie Boyer (2020–2022) — Vice President
- Former: Chrissy Thornton (2021–2022) — Executive Director
- Former: Dianne Browne (2021–2022) — Director
- Former: Chai Hoang (2020–2021) — Director
- Former: Lisa Motley (2020–2021) — Treasurer
- Former: Christopher Dotur (2020) — Director
- Former: John McClun (2020) — Director
- Former: Mary McGowan (2020) — Executive Director
- Former: Steven Ytterberg (2020) — Director
- Former: Wayne Mortensen (2020) — Treasurer
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $181K, to Paula Eichenbrenner (Executive Dir.).
Frequently asked questions about The Myositis Association
How much does The Myositis Association give each year?
The Myositis Association gave $81K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $150K across 3 grants.
What is The Myositis Association's typical grant size?
The Myositis Association's median grant in 2024 was $25,000, and its average grant was $27,089, across 3 grants on its 2024 IRS Form 990.
Where does The Myositis Association give grants?
The Myositis Association gives mostly in Maryland: 92% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest state was Pennsylvania (8%).
Does The Myositis Association give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on The Myositis Association's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Grant" (3 grants).
How large is The Myositis Association?
The Myositis Association reported $2.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $2.0M.
What is The Myositis Association?
The Myositis Association is a public charity focused on Human Services, based in Columbia, MD. It holds $2.0M in total assets as of 2024.
What is The Myositis Association's EIN?
The Myositis Association's EIN (Employer Identification Number) is 54-1660976. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 9, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 4, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 9, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 8, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work The Myositis Association funds
Human Services Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in The Myositis Association's focus areas in our free grants database
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