The Myositis Association
The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$2.0M
+13.1% YoY
Annual Giving
$81K
-45.8% YoY
Grant Count
3
+0.0% YoY
Avg Grant Size
$27K
-45.8% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,013,453 | $1,779,524 | $2,327,942 |
| Revenue | $2,012,099 | $1,249,899 | $1,317,262 |
| Expenses | $1,794,414 | $1,888,477 | $1,654,469 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $32,159 | $-10,414 | $-183,061 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Paula Eichenbrenner | Executive Dir. | 40 | $180,562 |
| Laurie Boyer Chair | Director | 3 | — |
| Rich DeAugustinis Vice Chair | Director | 1.5 | — |
| Martha Arnold Secretary | Director | 1.5 | — |
| Howard Gerrin Treasurer | Director | 1.5 | — |
| Jeff Autrey | Director | 0.5 | — |
| Iazsmin Bauer Ventura | Director | 0.5 | — |
| Richard Chip Galloway | Director | 0.5 | — |
| Holly Jones | Director | 0.5 | — |
| Frank Lipiecki | Director | 0.5 | — |
| Ricky Marks | Director | 0.5 | — |
| David Mochel | Director | 1.5 | — |
| Tahseen Mozaffar | Director | 0.5 | — |
| Jane Myles | Director | 0.5 | — |
| Rodger Oren | Director | 0.5 | — |
| Meriel Parker | Director | 0.5 | — |
| Mustafa Shameem | Director | 0.5 | — |
| Nita Sharma | Director | 0.5 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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