The Myelodysplastic Syndromes Foundation
The mds foundation is a global nonprofit dedicated to improving the lives of patients with myelodysplastic syndromes (MDS) through patient support, education, advocacy, research, and collaboration to advance better care and outcomes worldwide.
Key facts about The Myelodysplastic Syndromes Foundation
- EIN
- 22-3283911
- Latest 990 filing
- Form 990, 2025
- Total assets
- $2,623,801
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$2.6M
-31.8% YoY
Revenue
$1.9M
-7.1% YoY
Net Investment Income
$27K
+659.9% YoY
Expenses
$3.0M
+2.7% YoY
How The Myelodysplastic Syndromes Foundation gives
- Giving held roughly steady from 2020 to 2023 (−20%). Method
From the foundation's IRS Form 990 filings. Methodology.
About The Myelodysplastic Syndromes Foundation
Based on IRS filings
The Myelodysplastic Syndromes Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.6M in total assets. Net investment income was $27K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Giving Over Time
Total grant dollars and number of grants per year
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
6 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,623,801 | $3,847,112 | $5,146,339 |
| Revenue | $1,859,509 | $2,002,126 | $2,562,806 |
| Expenses | $3,034,024 | $2,953,868 | $3,312,848 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $27,075 | $3,563 | $32,321 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 24, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 26, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
The Myelodysplastic Syndromes Foundation is led by Peggy Ann Torney, CEO on the 2025 filing; 4 of 11 officers listed in 2025 are compensated.
Officers on the 2025 filing
Peggy Ann Torney
CEO
New on the 2025 filing
40 hrs/week
$228K (2025)
Stephen D. Nimer MD
Chairman
Chariman → Chairman, 2022
On filings since 2020
3 hrs/week
No compensation reported
Ashley R. Moncrief
Patient Care Director
On filings since 2024
40 hrs/week
$137K (2024) → $144K (2025)
Tanya Rhodes
Development Director
On filings since 2024
40 hrs/week
$124K (2024) → $113K (2025)
Luca Malcovati
Director
Board Member → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Michael R. Savona MD
Director
Board Member → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Peter L. Greenberg MD
Director
Board Member → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Pierre Fenaux
Director
Board Member → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Jim Williams
Director
New on the 2025 filing
1 hr/week
No compensation reported
Lea Harrison
Secretary
On filings since 2024
40 hrs/week
$93K (2024) → $105K (2025)
Sandy Kurtin
Treasurer
On filings since 2024
4 hrs/week
No compensation reported
Former officers (3)
- Former: Tracey A. Iraca (2020–2024) — Executive Director
- Former: Janice Butchko (2020–2023) — Secretary
- Former: Sandra Kurtin Phd Anp-C Aocn (2020–2023) — Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
Frequently asked questions about The Myelodysplastic Syndromes Foundation
How large is The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation reported $2.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.9M.
What is The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. It holds $2.6M in total assets as of 2025.
Where does The Myelodysplastic Syndromes Foundation operate?
The Myelodysplastic Syndromes Foundation has awarded grants in California, Florida, Massachusetts, Missouri, New Jersey, New York.
What is The Myelodysplastic Syndromes Foundation's EIN?
The Myelodysplastic Syndromes Foundation's EIN (Employer Identification Number) is 22-3283911. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The Myelodysplastic Syndromes Foundation by hand.
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