The Myelodysplastic Syndromes Foundation
THE MYELODYSPLASTIC SYNDROMES FOUNDATION (MDSF) IS A GLOBAL NONPROFIT ORGANIZATION DEDICATED TO SUPPORTING PATIENTS AND CAREGIVERS AFFECTED BY MYELODYSPLASTIC SYNDROMES (MDS), A GROUP OF RARE AND LIFE-THREATENING BONE MARROW DISORDERS, AND THE HEALTHCARE PROFESSIONALS WHO CARE FOR THEM.SINCE OUR FOUNDING MORE THAN 30 YEARS AGO, WE HAVE REMAINED STEADFAST IN OUR MISSION TO ADVANCE RESEARCH, PROVIDE CRITICAL EDUCATION AND SUPPORT SERVICES, AND IMPROVE TREATMENT OPTIONS FOR THOSE IMPACTED BY MDS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.8M
-26.3% YoY
Revenue
$2.0M
-27.2% YoY
Net Investment Income
$4K
-89.0% YoY
Expenses
$3.0M
-6.0% YoY
About The Myelodysplastic Syndromes Foundation
Based on IRS filings
The Myelodysplastic Syndromes Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.8M in total assets. Net investment income was $4K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,847,112 | $5,216,502 | $5,422,226 |
| Revenue | $2,002,126 | $2,749,025 | $2,521,375 |
| Expenses | $2,953,868 | $3,143,904 | $2,174,159 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $3,563 | $32,321 | $8,487 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DR STEPHEN NIMER | CHAIRMAN | 4 | — |
| SANDY KURTIN | TREASURER | 4 | — |
| LEA HARRISON | SECRETARY | 40 | $93,316 |
| DR PIERRE FENAUX | DIRECTOR | 4 | — |
| DR PETER GREENBERG | DIRECTOR | 4 | — |
| DR LUCA MALCOVATI | DIRECTOR | 4 | — |
| DR MICHAEL SAVONA | DIRECTOR | 4 | — |
| TRACEY IRACA | EXECUTIVE DIRECTOR (THROUGH 1/25) | 40 | $151,094 |
| ASHLEY R MONCRIEF | PATIENT CARE DIRECTOR | 40 | $136,505 |
| TANYA RHODES | DEVELOPMENT DIRECTOR | 40 | $124,310 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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