The Marfan Foundation Inc
The Marfan Foundation drives research, education and support and builds community to improve outcomes, save lives and empower all people to thrive who are living with marfan, loeys-dietz, vascular ehlers-danlos syndromes, and related genetic aortic and vascular conditions. *we pursue the most innovative research and make sure that it receives proper funding. *we foster an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. *we provide dedicated support to families, caregivers, and healthcare providers.
The Marfan Foundation Inc at a glance
In short: The Marfan Foundation Inc gave $1.0M across 6 grants in 2025 (avg $174K), top state California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,045,000
- +54.7% vs 2024
- Grants made (2025)
- 6
- -25.0% vs 2024
- Average grant
- $174,167
- +106.3% vs 2024
- Median grant
- $100,000
- Total assets
- $19,547,558
- +7.9% vs 2024
- Primary geography
- California (45% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to The Marfan Foundation Inc
Open Grants
6 open opportunities from The Marfan Foundation Inc
Career Development Award
The Marfan Foundation Inc
Amount
Varies
Deadline
Deadline not published
Everest Award
The Marfan Foundation Inc
Amount
Varies
Deadline
Deadline not published
Innovators Award
The Marfan Foundation Inc
Amount
Varies
Deadline
Deadline not published
Who The Marfan Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Stanford University School of Medicine ($370K). Together the top 5 received $945K.
Organizations only. It also paid 1 grant to individuals ($100,000), which are not listed by name.
Grant Size Distribution
34 grants across all recorded years
The most common grant size was in the $100–250K range: 17 grants of 34 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How The Marfan Foundation Inc gives
- Giving grew 146% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $425K (2022) to $1.0M (2025). In 2025 it made 6 grants totaling $1.0M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Stanford University School of Medicine Stanford, CA | Research | $370,000 |
| Johns Hopkins University School of Medicine Baltimore, MD | Research | $365,000 |
| Icahn School of Medicine at Mount Sinai New York, NY | Research | $100,000 |
| 1 grant to individuals Recipients not named | — | $100,000 |
| Yale University New Haven, CT | Research | $100,000 |
| Lyon Family Foundation Chicago, IL | Research | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $19,547,558 | $7,780,692 | $7,566,004 | $1,045,000 | 6 | $842,235 |
| 2024 | $18,118,070 | $5,486,020 | $6,646,776 | $675,360 | 8 | $476,826 |
| 2023 | $18,561,612 | $8,195,380 | $6,758,497 | $813,600 | 8 | $313,246 |
| 2022 | $16,600,923 | $9,814,628 | $4,705,271 | $425,450 | 5 | $205,112 |
| 2021 | $12,467,539 | $4,898,166 | $4,891,164 | $839,146 | 7 | $165,652 |
About The Marfan Foundation Inc
Based on IRS filings
The Marfan Foundation Inc is a public charity, based in Port Washington, NY. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $19.5M in total assets. In 2025, it awarded 6 grants totaling $1.0M. Net investment income was $842K.
Leadership & Key People
Officers and directors from IRS filings
The Marfan Foundation Inc is led by Michael L. Weamer, President & CEO on every filing since 2021; 8 of 32 officers listed in 2025 are compensated.
Officers on the 2025 filing
Michael L. Weamer
President & CEO
On filings since 2021
35 hrs/week
$392K (2021) → $475K (2025)
Bert Medina
Chair
Secretary → Chair, 2024
On filings since 2021
8 hrs/week
No compensation reported
Lauren E. May
Director of Research
On filings since 2023
35 hrs/week
$126K (2023) → $132K (2025)
Alan Braverman MD
Director
On filings since 2021
1 hr/week
No compensation reported
Anthony Yasick MD
Director
On filings since 2021
1 hr/week
No compensation reported
David Warren
Director
On filings since 2021
1 hr/week
No compensation reported
Dawn Reiner
Director
On filings since 2021
1 hr/week
No compensation reported
Gary Kauffman
Director
On filings since 2021
1 hr/week
No compensation reported
James Prutow
Director
On filings since 2021
1 hr/week
No compensation reported
Jeffrey C. Lesage
Director
On filings since 2021
1 hr/week
No compensation reported
Jerry L. Lerman
Director
On filings since 2021
1 hr/week
No compensation reported
Jon R. Tullis
Director
On filings since 2021
1 hr/week
No compensation reported
Juan Bowen MD
Director
On filings since 2021
1 hr/week
No compensation reported
Ray Chevallier
Director
On filings since 2021
1 hr/week
No compensation reported
Scott D. Avitabile Esq.
Director
On filings since 2021
1 hr/week
No compensation reported
Sinclair Li
Director
On filings since 2021
1 hr/week
No compensation reported
Andrew Toy
Director
On filings since 2023
1 hr/week
No compensation reported
Brandy Banks Hotchkiss
Director
On filings since 2024
1 hr/week
No compensation reported
Gil Bashe
Director
On filings since 2024
1 hr/week
No compensation reported
Joaquin Ramos Jr.
Director
On filings since 2024
1 hr/week
No compensation reported
Bryan Maher
Director
New on the 2025 filing
1 hr/week
No compensation reported
Duke Cameron MD
Director
New on the 2025 filing
1 hr/week
No compensation reported
Jess Milburn
Director
New on the 2025 filing
1 hr/week
No compensation reported
Helaine Baruch
Chief Development Officer
On filings since 2021
35 hrs/week
$215K (2021) → $250K (2025)
Inderjeet Kaur CPA
Chief Financial Officer
Chief Financial Officer → CFO, 2023
CFO → Chief Financial Officer, 2024
On filings since 2021
35 hrs/week
$117K (2021) → $168K (2025)
Josephine Grima
Chief Science Officer
On filings since 2021
35 hrs/week
$180K (2021) → $210K (2025)
Judith Gibaldi
Chief Operations Officer
Chief Operating Officer → COO, 2023
COO → Chief Operations Officer, 2024
On filings since 2021
35 hrs/week
$205K (2021) → $125K (2025)
Kimberly K. Huddleston
Vice President of Development
On filings since 2023
35 hrs/week
$112K (2023) → $138K (2025)
Eileen Novins
Chief Program Officer
Chief Global Business Devel. Officer → Chief Program Officer, 2025
On filings since 2024
35 hrs/week
$189K (2024) → $194K (2025)
Caryn E. Kauffman CPA
Treasurer
On filings since 2021
3 hrs/week
No compensation reported
Cory A. Eaves
Immediate Past Chair
Chair → Immediate Past Chair, 2024
On filings since 2021
1 hr/week
No compensation reported
Patricia McCabe Estrada
Secretary
Director → Secretary, 2024
On filings since 2021
1 hr/week
No compensation reported
Former officers (7)
- Former: Alix McLean Jennings (2021–2023) — Director
- Former: Eileen J. Masciale (2021–2023) — Chief Program Officer
- Former: Heather Bergstom (2021–2023) — Director
- Former: Karen Murray (2021–2023) — Immediate Past Chair
- Former: Beth Utz (2021–2022) — Director
- Former: Emily P. Wheeler (2021–2022) — Director
- Former: Susan Leshen (2021) — Senior Director of Patient & Program
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $475K, to Michael L Weamer (Pres/CEO). 8 officers or directors reported compensation on that filing.
Frequently asked questions about The Marfan Foundation Inc
How much does The Marfan Foundation Inc give each year?
The Marfan Foundation Inc gave $1.0M across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $675K across 8 grants.
What is The Marfan Foundation Inc's typical grant size?
The Marfan Foundation Inc's median grant in 2025 was $100,000, and its average grant was $174,167, across 6 grants on its 2025 IRS Form 990.
Where does The Marfan Foundation Inc give grants?
The Marfan Foundation Inc's top state is California, with 45% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Maryland (35%) and New York (10%).
Does The Marfan Foundation Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on The Marfan Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (6 grants).
Who are The Marfan Foundation Inc's largest grantees?
The Marfan Foundation Inc's largest 2025 grantees include Stanford University School of Medicine ($370,000), Johns Hopkins University School of Medicine ($365,000) and Icahn School of Medicine at Mount Sinai ($100,000), according to its 2025 IRS Form 990. It also paid 1 grant to individuals ($100,000), which are not listed by name. Together they received 80% of its itemized 2025 grant dollars.
How large is The Marfan Foundation Inc?
The Marfan Foundation Inc reported $19.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.8M.
What is The Marfan Foundation Inc's EIN?
The Marfan Foundation Inc's EIN (Employer Identification Number) is 52-1265361. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 3, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 31, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 26, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 24, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 28, 2025)
- IRS filings on file for fiscal years 2021–2025
Explore Open Grants
Browse active grant opportunities in The Marfan Foundation Inc's focus areas in our free grants database
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