The Fibrous Dysplasia Foundation
THE FIBROUS DYSPLASIA FOUNDATION SERVES PEOPLE AFFECTED WITH FIBROUS DYSPLASIA/MCCUNE-ALBRIGHT SYNDROME THROUGH PROGRAMS OF RESEARCH, EDUCATION, AWARENESS AND SUPPORT.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$244K
-8.9% YoY
Revenue
$246K
-23.9% YoY
Net Investment Income
$7K
+22.5% YoY
Expenses
$270K
-30.4% YoY
About The Fibrous Dysplasia Foundation
Based on IRS filings
The Fibrous Dysplasia Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $244K in total assets. Net investment income was $7K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $243,546 | $267,364 | $329,399 |
| Revenue | $245,764 | $322,942 | $282,768 |
| Expenses | $270,098 | $388,138 | $377,909 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $6,958 | $5,682 | $134 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ADRIENNE MCBRIDE | EXECUTIVE DI | 40 | $88,857 |
| ANNE CORVELLE | BOARD PRESID | 2 | — |
| CINDI BRANDT LEVIN | BOARD VICE P | 2 | — |
| CHRISTOPHER GUEST | TREASURER | 2 | — |
| MALISSA KENNEY | SECRETARY | 2 | — |
| MICHAEL COLLINS | DIRECTOR | 0.5 | — |
| JUSTIN COHEN | DIRECTOR | 0.5 | — |
| JUSTIN HEALY | DIRECTOR | 0.5 | — |
| ERIC CHIEN-WEI LIAO | DIRECTOR | 0.5 | — |
| GARY POLLASTRO | DIRECTOR | 0.5 | — |
| CARMEL SHEMMESH-RAFALOWSKY | DIRECTOR | 0.5 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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