The Fibrous Dysplasia Foundation
THE FIBROUS DYSPLASIA FOUNDATION SERVES PEOPLE AFFECTED WITH FIBROUS DYSPLASIA/MCCUNE-ALBRIGHT SYNDROME THROUGH PROGRAMS OF RESEARCH, EDUCATION, AWARENESS AND SUPPORT.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$244K
-8.9% YoY
Revenue
$246K
-23.9% YoY
Net Investment Income
$7K
+22.5% YoY
Expenses
$270K
-30.4% YoY
About The Fibrous Dysplasia Foundation
Based on IRS filings
The Fibrous Dysplasia Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $244K in total assets. Net investment income was $7K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $243,546 | $267,364 | $329,399 |
| Revenue | $245,764 | $322,942 | $282,768 |
| Expenses | $270,098 | $388,138 | $377,909 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $6,958 | $5,682 | $134 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ADRIENNE MCBRIDE | EXECUTIVE DI | 40 | $88,857 |
| ANNE CORVELLE | BOARD PRESID | 2 | — |
| CINDI BRANDT LEVIN | BOARD VICE P | 2 | — |
| CHRISTOPHER GUEST | TREASURER | 2 | — |
| MALISSA KENNEY | SECRETARY | 2 | — |
| MICHAEL COLLINS | DIRECTOR | 0.5 | — |
| JUSTIN COHEN | DIRECTOR | 0.5 | — |
| JUSTIN HEALY | DIRECTOR | 0.5 | — |
| ERIC CHIEN-WEI LIAO | DIRECTOR | 0.5 | — |
| GARY POLLASTRO | DIRECTOR | 0.5 | — |
| CARMEL SHEMMESH-RAFALOWSKY | DIRECTOR | 0.5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Fibrous Dysplasia Foundation?
The Fibrous Dysplasia Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in BETHESDA, MD. It holds $244K in total assets as of 2025.
How large is The Fibrous Dysplasia Foundation?
As of 2025, The Fibrous Dysplasia Foundation holds $244K in total assets with $246K in annual revenue.
Where does The Fibrous Dysplasia Foundation operate?
The Fibrous Dysplasia Foundation has awarded grants in Pennsylvania.
What is The Fibrous Dysplasia Foundation's EIN?
The Fibrous Dysplasia Foundation's EIN (Employer Identification Number) is 02-0715210. IRS Form 990 filing data is available on this page for 2020–2025.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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