The Center for Comprehensive Care & Diagnosis of Inherited Blood Disorders (CIBD) is a public charity based in Orange, California, founded in 2009. It operates a community-based safety net clinic providing multidisciplinary care for children and adults with rare, chronic inherited blood disorders and makes grants to organizations supporting related services.
Key facts about The Center for CC&D of Inherited Blood Disorders
In short: The Center for CC&D of Inherited Blood Disorders gave $4.8M across 24 grants in 2025 (avg $200K), mostly in California. 0% of 2025 grantees were new. Source: 2025 IRS Form 990.
- EIN
- 27-0179192
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $4,798,967
- Grants made (2025)
- 24
- Average grant
- $199,957
- Median grant
- $108,715
- New grantees (estimate)
- 0% first-time grantees (0 of 24, 2025)
- Total assets
- $84,988,780
- Primary geography
- California (90% of itemized 2025 grant dollars)
- Deadline
- The listed scholarship deadline was May 31, 2026; this cycle has passed.
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology). Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$85.0M
+19.1% YoY
Annual Giving
$4.8M
+29.1% YoY
Grant Count
24
+4.3% YoY
Avg Grant Size
$200K
+23.8% YoY
Is The Center for CC&D of Inherited Blood Disorders open to new grantees?
0%
first-time grantees, 2025
In 2025, 0 of 24 grantees (0%) were first-time recipients. How we count
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
CIBD’s stated mission is to improve health and longevity and lower the cost of care by providing education, support, and services for comprehensive care for patients and families affected by rare, chronic inherited blood disorders. Its website describes a care team that includes hematologists, nurses, a physical therapist, a psychologist, a clinical social worker, a clinical pharmacist, and diagnostic laboratory services.
CIBD’s 2025 grants supported organizations involved in sickle cell disease services, hemophilia and other inherited blood disorder care, children’s health, biomedical research, and medical education. For example, the Sickle Cell Disease Foundation of California describes its mission as building a world where people with sickle cell disease receive the care and compassion they deserve. The Hemostasis and Thrombosis Center of Nevada says it provides comprehensive clinical care for people affected by inherited blood disorders and administers related federal grant programs. The Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Center describes its work as biomedical research, training young scientists, and community health services.
CIBD also has a scholarship program for people with blood disorders who are treated at CIBD and are planning to attend or attending an accredited technical school, college, or university. The program provides $500 per recipient, with four scholarships awarded annually. This is support for individual participants, rather than a grant program for outside organizations.
Grantmaking
In filing year 2025, CIBD reported 24 grants totaling $4,798,967. Awards ranged from $5,000 to $1,665,421, with a median of $108,714. The largest grants included $1,665,421 to the Sickle Cell Disease Foundation of California, $515,135 to the Regents of the University of California at Davis, and $439,866 to the Regents of the University of California at UCSF. These grants were described as subcontract support for HRSA and California Department of Public Health sickle cell treatment demonstration program grants. Other large awards included $350,918 to UCSF Benioff Children’s Hospitals Foundation for an HRSA sickle cell treatment demonstration program subcontract and $228,544 to the Regents of the University of California at UCSD for a subcontract supporting that program.
The scholarship program’s listed application cycle had a May 31, 2026 postmark deadline, which has passed. Applicants were required to have a diagnosed blood disorder and be receiving care at CIBD, attend or plan to attend an accredited technical school, college, or university, and have a GPA of at least 2.5 on a 4.0 scale during the current year of education. The scholarship committee makes the selections; applicants may be asked for transcripts and evidence of enrollment. Previous recipients may reapply for up to three academic years.
Review Cycle
The listed scholarship deadline was May 31, 2026; this cycle has passed.
Ready to take the next step with The Center for CC&D of Inherited Blood Disorders?
Geographic Focus
Where this funder awards grants
CIBD is based in Orange, California. In 2025, 90% of its grant dollars went to California recipients; listed shares also included Nevada (2%), Arizona (2%), Washington (2%), and Colorado (1%). Its website describes the Western States/Region IX Hemophilia Network as representing 13 treatment centers in California, Guam, Hawaii, and Nevada.
Grant Distribution by State
Share of 2025 grant dollars across all 24 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $1.3M (2019) to $14.3M (2023). In 2025 it made 24 grants totaling $4.8M.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Sickle Cell Disease Foundation of California ($1.7M). Together the top 10 received $3.9M.
Grant Size Distribution
142 grants across all recorded years
The most common grant size was under $50K: 47 grants of 142 (33%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Sickle Cell Disease Foundation of California Ontario, CA | Subcontract hrsa & cdph grants sickle cell treatment demonstration program | $1,665,421 |
| The Regents of the University of California (Davis) Sacramento, CA | Subcontract hrsa & cdph grants sickle cell treatment demonstration program | $515,135 |
| The Regents of the University of California (UCSF) San Francisco, CA | Subcontract hrsa & cdph grants sickle cell treatment demonstration program | $439,866 |
| UCSF Benioff Children's Hospitals Foundation Oakland, CA | Subcontract HRSA Grant Sickle Cell Treatment Demonstration Program | $350,918 |
| The Regents of the University of California (Ucsd) San Diego, CA | Subcontract hrsa & cdph grants sickle cell treatment demonstration program | $228,544 |
| Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Torrance, CA | Subcontract CDPH Grant Sickle Cell Treatment Demonstration Program | $170,895 |
| The Regents of the University of California (UCLA) Los Angeles, CA | Subcontract CDPH Grant Sickle Cell Treatment Demonstration Program | $160,820 |
| Arrowhead Regional Medical Center Colton, CA | Subcontract CDPH Grant Sickle Cell Treatment Demonstration Program | $155,377 |
| Hemostasis and Thrombosis Center of NV Las Vegas, NV | Subcontract HRSA Grant Hemophilia Regional Comprehensive Care Program | $115,554 |
| Kern Medical Center Foundation Bakersfield, CA | Subcontract CDPH Grant Sickle Cell Treatment Demonstration Program | $113,701 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants | Grant count |
|---|---|---|---|---|---|
| 2025 | $84,988,780 | $33,626,570 | $19,296,662 | $4,798,967 | 24 |
| 2024 | $71,349,404 | $23,337,253 | $16,931,546 | $3,716,274 | 23 |
| 2023 | $61,282,179 | $20,062,547 | $18,826,320 | $14,312,614 | 23 |
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $84,988,780 | $71,349,404 | $61,282,179 |
| Revenue | $33,626,570 | $23,337,253 | $20,062,547 |
| Expenses | $19,296,662 | $16,931,546 | $18,826,320 |
| Net Investment Income | $1,201,820 | $147,848 | $611,301 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS March 17, 2022)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 31, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS August 13, 2020)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 14, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS August 12, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Diane J. Nugent, MD, as president and chairperson; Amit Soni, MD, as vice president; Katie Birschbach as secretary; and Barry Staton as chief executive officer and treasurer. The filing also lists Derek Robertson, Mary Brown, Michael Tarantino, Michele Warner, Randall Curtis, and Troy Abercrombie as directors.
The Center for CC&D of Inherited Blood Disorders is led by Barry Staton, Chief Executive Officer & Treasurer since 2024 (on filings since 2019); 10 of 19 officers listed in 2025 are compensated.
Officers on the 2025 filing
Barry Staton
Chief Executive Officer & Treasurer
Treasurer & Chief Executive Officer → Chief Executive Officer, 2021
Chief Executive Officer → Chief Executive Officer & Treasurer, 2024
On filings since 2019
40 hrs/week
$294K (2020) → $406K (2025)
Diane J. Nugent MD
President & Chairperson
On filings since 2019
5 hrs/week
No compensation reported
Matthew Cianciulli
Director of Clinic
On filings since 2021
40 hrs/week
$164K (2021) → $204K (2025)
Shalini Vora
Grants Director
Director of Grants → Grants Director, 2024
On filings since 2021
40 hrs/week
$160K (2021) → $188K (2025)
Robin Tappey
Human Resources Director
On filings since 2022
40 hrs/week
$189K (2022) → $209K (2025)
Mary Brown
Director
On filings since 2019
0.5 hrs/week
No compensation reported
Randall Curtis
Director
On filings since 2019
1 hr/week
No compensation reported
Derek Robertson
Director
New on the 2025 filing
1 hr/week
No compensation reported
Michael Tarantino
Director
New on the 2025 filing
1 hr/week
No compensation reported
Michele Warner
Director
New on the 2025 filing
1 hr/week
No compensation reported
Troy Abercrombie
Director
New on the 2025 filing
1 hr/week
No compensation reported
Nina Hwang
Physician
On filings since 2019
32 hrs/week
$157K (2019) → $233K (2025)
Vanessa Salinas Luna
Physician
On filings since 2019
40 hrs/week
$143K (2019) → $221K (2025)
Michael Warden
Chief Financial Officer
On filings since 2020
40 hrs/week
$147K (2020) → $271K (2025)
Samantha Chan
Pharmacy Manager
On filings since 2020
40 hrs/week
$181K (2020) → $200K (2025)
Esteban Gomez
Physician
On filings since 2023
32 hrs/week
$276K (2023) → $311K (2025)
Jeralyn Tucker
Clinic Manager
On filings since 2024
40 hrs/week
$151K (2024) → $168K (2025)
Amit Soni MD
Vice President
On filings since 2019
5 hrs/week
No compensation reported
Katie Birschbach
Secretary
On filings since 2019
1 hr/week
No compensation reported
Former officers (9)
- Former: Bertil Glader MD PhD (2019–2024) — Director
- Former: Judith Baker (2023) — Public Health Policy Director
- Former: Tania Zreik (2022) — Pharmacist
- Former: Spencer Dunn (2021) — Business Development
- Former: Matt Cianciulli (2019–2020) — Director of Clinic
- Former: Ateefa Chaudhury (2019) — Physician
- Former: Cheryl Bate (2019) — Director of Finance & Controller
- Former: Jason Zamora (2019) — Director of Pharmacy
- Former: Phillip Chung (2019) — Pharmacy Manager
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $406K, to Barry Staton (Chief Executive Officer & Treasurer). 10 officers or directors reported compensation on that filing.
Contact
Mailing address: 701 S Parker Street 1200, Orange, CA 92868
Phone: (949) 748-7521
Website: https://cibd-ca.org
Frequently asked questions about The Center for CC&D of Inherited Blood Disorders
How much does The Center for CC&D of Inherited Blood Disorders give each year?
The Center for CC&D of Inherited Blood Disorders gave $4.8M across 24 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $3.7M across 23 grants.
What is The Center for CC&D of Inherited Blood Disorders's typical grant size?
The Center for CC&D of Inherited Blood Disorders's median grant in 2025 was $108,715, and its average grant was $199,957, across 24 grants on its 2025 IRS Form 990.
Where does The Center for CC&D of Inherited Blood Disorders give grants?
The Center for CC&D of Inherited Blood Disorders gives mostly in California: 90% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The most frequent recipient cities were Los Angeles, CA (3 grants) and San Diego, CA (2 grants).
Does The Center for CC&D of Inherited Blood Disorders give general operating support?
Not in 2025: none of the 24 grants with a stated purpose on The Center for CC&D of Inherited Blood Disorders's 2025 IRS Form 990 were described as general or operating support.
Who are The Center for CC&D of Inherited Blood Disorders's largest grantees?
The Center for CC&D of Inherited Blood Disorders's largest 2025 grantees include Sickle Cell Disease Foundation of California ($1,665,421), The Regents of the University of California (Davis) ($515,135) and The Regents of the University of California (UCSF) ($439,866), according to its 2025 IRS Form 990. Together they received 55% of its itemized 2025 grant dollars.
How large is The Center for CC&D of Inherited Blood Disorders?
The Center for CC&D of Inherited Blood Disorders reported $85.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $33.6M.
What does The Center for CC&D of Inherited Blood Disorders fund?
CIBD’s stated mission is to improve health and longevity and lower the cost of care by providing education, support, and services for comprehensive care for patients and families affected by rare, chronic inherited blood disorders. See mission & focus areas ↑
How do I apply for a grant from The Center for CC&D of Inherited Blood Disorders?
The Center for CC&D of Inherited Blood Disorders has no public application process in the sources Grantable reviewed. Check cibd-ca.org for current guidelines, or contact the foundation directly before submitting a request.
What is The Center for CC&D of Inherited Blood Disorders's EIN?
The Center for CC&D of Inherited Blood Disorders's EIN (Employer Identification Number) is 27-0179192. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Here's the math on researching The Center for CC&D of Inherited Blood Disorders by hand.
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