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The Center for CC&D of Inherited Blood Disorders

Public charity · Grantmaker Orange, CA EIN: 27-0179192 Website

The Center for Comprehensive Care & Diagnosis of Inherited Blood Disorders (CIBD) is a public charity based in Orange, California, founded in 2009. It operates a community-based safety net clinic providing multidisciplinary care for children and adults with rare, chronic inherited blood disorders and makes grants to organizations supporting related services.

The Center for CC&D of Inherited Blood Disorders at a glance

In short: The Center for CC&D of Inherited Blood Disorders gave $4.8M across 24 grants in 2025 (avg $200K), mostly in California. 0% of 2025 grantees were new. Source: 2025 IRS Form 990.

Annual giving (2025)
$4,798,967
+29.1% vs 2024
Grants made (2025)
24
+4.3% vs 2024
Average grant
$199,957
+23.8% vs 2024
Median grant
$108,715
Total assets
$84,988,780
+19.1% vs 2024
New grantees (estimate)
0% first-time grantees (0 of 24, 2025; small sample)
Primary geography
California (90% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).

How to apply to The Center for CC&D of Inherited Blood Disorders

Review Cycle
The listed scholarship deadline was May 31, 2026; this cycle has passed.
Deadline
The listed scholarship deadline was May 31, 2026; this cycle has passed.
Contact

Mailing address: 701 S Parker Street 1200, Orange, CA 92868
Phone: (949) 748-7521
Website: https://cibd-ca.org

Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.

Who The Center for CC&D of Inherited Blood Disorders funds

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2025

Sickle Cell Disease Foundation of California: $1.7MSickle Cell Disease Foundationof California$1.7MThe Regents of the University of California (Davis): $515KThe Regents of the Universityof California (Davis)$515KThe Regents of the University of California (UCSF): $440KThe Regents of the Universityof California (UCSF)$440KUCSF Benioff Children's Hospitals Foundation: $351KUCSF Benioff Children'sHospitals Foundation$351KThe Regents of the University of California (Ucsd): $229KThe Regents of the Universityof California (Ucsd)$229KLundquist Institute for Biomedical Innovation at Harbor-UCLA Medical: $171KLundquist Institute forBiomedical Innovation at…$171KThe Regents of the University of California (UCLA): $161KThe Regents of the Universityof California (UCLA)$161KArrowhead Regional Medical Center: $155KArrowhead Regional MedicalCenter$155KHemostasis and Thrombosis Center of NV: $116KHemostasis and ThrombosisCenter of NV$116KKern Medical Center Foundation: $114KKern Medical Center Foundation$114K

The largest 2025 recipient was Sickle Cell Disease Foundation of California ($1.7M). Together the top 10 received $3.9M.

Grant Size Distribution

142 grants across all recorded years

47<$50K37$50–100K36$100–250K8$250–500K7$500K–1M6$1–5M1$5M+

The most common grant size was under $50K: 47 grants of 142 (33%).

Geographic Focus

Where this funder awards grants

CIBD is based in Orange, California. In 2025, 90% of its grant dollars went to California recipients; listed shares also included Nevada (2%), Arizona (2%), Washington (2%), and Colorado (1%). Its website describes the Western States/Region IX Hemophilia Network as representing 13 treatment centers in California, Guam, Hawaii, and Nevada.

Grant Distribution by State

9states

Share of 2025 grant dollars across all 24 itemized grants.

Cities

Los AngelesSan DiegoSan FranciscoOntarioOrangeLas VegasHonoluluPalo AltoSacramentoMadreaAuroraPortlandSeattleTucsonOaklandPhoenixSalt Lake CityBakersfieldColtonLoma Linda

Is The Center for CC&D of Inherited Blood Disorders open to new grantees?

0%

first-time grantees, 2025

In 2025, 0 of 24 grantees (0%) were first-time recipients. With only 24 grantees, that is a small sample: one grantee more or less moves the share by about 4 points. How we count

  • 96% of 2025 grantees were also funded in 2024. Method
  • Giving fell 38% from 2022 to 2025. Method

Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$5M$10M$15M40 grants2019 39 grants2020 37 grants2021 35 grants2022 23 grants2023 23 grants2024 24 grants2025

From 2019 to 2025, annual grant giving ranged from $1.3M (2019) to $14.3M (2023). In 2025 it made 24 grants totaling $4.8M.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Sickle Cell Disease Foundation of California Ontario, CASubcontract hrsa & cdph grants sickle cell treatment demonstration program$1,665,421
The Regents of the University of California (Davis) Sacramento, CASubcontract hrsa & cdph grants sickle cell treatment demonstration program$515,135
The Regents of the University of California (UCSF) San Francisco, CASubcontract hrsa & cdph grants sickle cell treatment demonstration program$439,866
UCSF Benioff Children's Hospitals Foundation Oakland, CASubcontract HRSA Grant Sickle Cell Treatment Demonstration Program$350,918
The Regents of the University of California (Ucsd) San Diego, CASubcontract hrsa & cdph grants sickle cell treatment demonstration program$228,544
Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Torrance, CASubcontract CDPH Grant Sickle Cell Treatment Demonstration Program$170,895
The Regents of the University of California (UCLA) Los Angeles, CASubcontract CDPH Grant Sickle Cell Treatment Demonstration Program$160,820
Arrowhead Regional Medical Center Colton, CASubcontract CDPH Grant Sickle Cell Treatment Demonstration Program$155,377
Hemostasis and Thrombosis Center of NV Las Vegas, NVSubcontract HRSA Grant Hemophilia Regional Comprehensive Care Program$115,554
Kern Medical Center Foundation Bakersfield, CASubcontract CDPH Grant Sickle Cell Treatment Demonstration Program$113,701
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$84,988,780$33,626,570$19,296,662$4,798,96724$1,201,820
2024$71,349,404$23,337,253$16,931,546$3,716,27423$147,848
2023$61,282,179$20,062,547$18,826,320$14,312,61423$611,301
2022$46,446,654$12,142,094$15,472,104$7,695,27035$216,649
2021$53,330,145$11,525,331$14,614,485$5,103,03537$-22,064
2020$56,342,926$68,646,232$71,221,235$4,263,34439$599,597
2019$56,670,406$72,084,713$51,953,005$1,337,28940$240,377

Research compiled by Grantable AI from public sources. Last updated October 2026.

Mission & Focus Areas

CIBD’s stated mission is to improve health and longevity and lower the cost of care by providing education, support, and services for comprehensive care for patients and families affected by rare, chronic inherited blood disorders. Its website describes a care team that includes hematologists, nurses, a physical therapist, a psychologist, a clinical social worker, a clinical pharmacist, and diagnostic laboratory services.

CIBD’s 2025 grants supported organizations involved in sickle cell disease services, hemophilia and other inherited blood disorder care, children’s health, biomedical research, and medical education. For example, the Sickle Cell Disease Foundation of California describes its mission as building a world where people with sickle cell disease receive the care and compassion they deserve. The Hemostasis and Thrombosis Center of Nevada says it provides comprehensive clinical care for people affected by inherited blood disorders and administers related federal grant programs. The Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Center describes its work as biomedical research, training young scientists, and community health services.

CIBD also has a scholarship program for people with blood disorders who are treated at CIBD and are planning to attend or attending an accredited technical school, college, or university. The program provides $500 per recipient, with four scholarships awarded annually. This is support for individual participants, rather than a grant program for outside organizations.

Grantmaking

In filing year 2025, CIBD reported 24 grants totaling $4,798,967. Awards ranged from $5,000 to $1,665,421, with a median of $108,714. The largest grants included $1,665,421 to the Sickle Cell Disease Foundation of California, $515,135 to the Regents of the University of California at Davis, and $439,866 to the Regents of the University of California at UCSF. These grants were described as subcontract support for HRSA and California Department of Public Health sickle cell treatment demonstration program grants. Other large awards included $350,918 to UCSF Benioff Children’s Hospitals Foundation for an HRSA sickle cell treatment demonstration program subcontract and $228,544 to the Regents of the University of California at UCSD for a subcontract supporting that program.

The scholarship program’s listed application cycle had a May 31, 2026 postmark deadline, which has passed. Applicants were required to have a diagnosed blood disorder and be receiving care at CIBD, attend or plan to attend an accredited technical school, college, or university, and have a GPA of at least 2.5 on a 4.0 scale during the current year of education. The scholarship committee makes the selections; applicants may be asked for transcripts and evidence of enrollment. Previous recipients may reapply for up to three academic years.

Leadership & Key People

Leadership team and compensation from IRS filings

The 2025 filing lists Diane J. Nugent, MD, as president and chairperson; Amit Soni, MD, as vice president; Katie Birschbach as secretary; and Barry Staton as chief executive officer and treasurer. The filing also lists Derek Robertson, Mary Brown, Michael Tarantino, Michele Warner, Randall Curtis, and Troy Abercrombie as directors.

The Center for CC&D of Inherited Blood Disorders is led by Barry Staton, Chief Executive Officer & Treasurer since 2024 (on filings since 2019); 10 of 19 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Barry Staton

    Chief Executive Officer & Treasurer

    Treasurer & Chief Executive Officer → Chief Executive Officer, 2021

    Chief Executive Officer → Chief Executive Officer & Treasurer, 2024

    On filings since 2019

    40 hrs/week

    $294K (2020) → $406K (2025)

  • Diane J. Nugent MD

    President & Chairperson

    On filings since 2019

    5 hrs/week

    No compensation reported

  • Matthew Cianciulli

    Director of Clinic

    On filings since 2021

    40 hrs/week

    $164K (2021) → $204K (2025)

  • Shalini Vora

    Grants Director

    Director of Grants → Grants Director, 2024

    On filings since 2021

    40 hrs/week

    $160K (2021) → $188K (2025)

  • Robin Tappey

    Human Resources Director

    On filings since 2022

    40 hrs/week

    $189K (2022) → $209K (2025)

  • Mary Brown

    Director

    On filings since 2019

    0.5 hrs/week

    No compensation reported

  • Randall Curtis

    Director

    On filings since 2019

    1 hr/week

    No compensation reported

  • Derek Robertson

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Michael Tarantino

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Michele Warner

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Troy Abercrombie

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Nina Hwang

    Physician

    On filings since 2019

    32 hrs/week

    $157K (2019) → $233K (2025)

  • Vanessa Salinas Luna

    Physician

    On filings since 2019

    40 hrs/week

    $143K (2019) → $221K (2025)

  • Michael Warden

    Chief Financial Officer

    On filings since 2020

    40 hrs/week

    $147K (2020) → $271K (2025)

  • Samantha Chan

    Pharmacy Manager

    On filings since 2020

    40 hrs/week

    $181K (2020) → $200K (2025)

  • Esteban Gomez

    Physician

    On filings since 2023

    32 hrs/week

    $276K (2023) → $311K (2025)

  • Jeralyn Tucker

    Clinic Manager

    On filings since 2024

    40 hrs/week

    $151K (2024) → $168K (2025)

  • Amit Soni MD

    Vice President

    On filings since 2019

    5 hrs/week

    No compensation reported

  • Katie Birschbach

    Secretary

    On filings since 2019

    1 hr/week

    No compensation reported

Former officers (9)
  • Former: Bertil Glader MD PhD (2019–2024) — Director
  • Former: Judith Baker (2023) — Public Health Policy Director
  • Former: Tania Zreik (2022) — Pharmacist
  • Former: Spencer Dunn (2021) — Business Development
  • Former: Matt Cianciulli (2019–2020) — Director of Clinic
  • Former: Ateefa Chaudhury (2019) — Physician
  • Former: Cheryl Bate (2019) — Director of Finance & Controller
  • Former: Jason Zamora (2019) — Director of Pharmacy
  • Former: Phillip Chung (2019) — Pharmacy Manager

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Barry Staton — Chief Executive Officer & Treasurer: $406KBarry StatonChief Executive Officer &…$406KEsteban Gomez — Physician: $311KEsteban GomezPhysician$311KMichael Warden — Chief Financial Officer: $271KMichael WardenChief Financial Officer$271KNina Hwang — Physician: $233KNina HwangPhysician$233KVanessa Salinas Luna — Physician: $221KVanessa Salinas LunaPhysician$221KRobin Tappey — Human Resources Director: $209KRobin TappeyHuman Resources Director$209KMatthew Cianciulli — Director of Clinic: $204KMatthew CianciulliDirector of Clinic$204KSamantha Chan — Pharmacy Manager: $200KSamantha ChanPharmacy Manager$200KShalini Vora — Grants Director: $188KShalini VoraGrants Director$188KJeralyn Tucker — Clinic Manager: $168KJeralyn TuckerClinic Manager$168K

The highest reported compensation on the 2025 filing was $406K, to Barry Staton (Chief Executive Officer & Treasurer). 10 officers or directors reported compensation on that filing.

Frequently asked questions about The Center for CC&D of Inherited Blood Disorders

How much does The Center for CC&D of Inherited Blood Disorders give each year?

The Center for CC&D of Inherited Blood Disorders gave $4.8M across 24 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $3.7M across 23 grants.

What is The Center for CC&D of Inherited Blood Disorders's typical grant size?

The Center for CC&D of Inherited Blood Disorders's median grant in 2025 was $108,715, and its average grant was $199,957, across 24 grants on its 2025 IRS Form 990.

Where does The Center for CC&D of Inherited Blood Disorders give grants?

The Center for CC&D of Inherited Blood Disorders gives mostly in California: 90% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The most frequent recipient cities were Los Angeles, CA (3 grants) and San Diego, CA (2 grants).

Does The Center for CC&D of Inherited Blood Disorders give general operating support?

Not in 2025: none of the 24 grants with a stated purpose on The Center for CC&D of Inherited Blood Disorders's 2025 IRS Form 990 were described as general or operating support.

Who are The Center for CC&D of Inherited Blood Disorders's largest grantees?

The Center for CC&D of Inherited Blood Disorders's largest 2025 grantees include Sickle Cell Disease Foundation of California ($1,665,421), The Regents of the University of California (Davis) ($515,135) and The Regents of the University of California (UCSF) ($439,866), according to its 2025 IRS Form 990. Together they received 55% of its itemized 2025 grant dollars.

How large is The Center for CC&D of Inherited Blood Disorders?

The Center for CC&D of Inherited Blood Disorders reported $85.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $33.6M.

What does The Center for CC&D of Inherited Blood Disorders fund?

CIBD’s stated mission is to improve health and longevity and lower the cost of care by providing education, support, and services for comprehensive care for patients and families affected by rare, chronic inherited blood disorders. See mission & focus areas ↑

How do I apply for a grant from The Center for CC&D of Inherited Blood Disorders?

The Center for CC&D of Inherited Blood Disorders has no public application process in the sources Grantable reviewed. Check cibd-ca.org for current guidelines, or contact the foundation directly before submitting a request.

What is The Center for CC&D of Inherited Blood Disorders's EIN?

The Center for CC&D of Inherited Blood Disorders's EIN (Employer Identification Number) is 27-0179192. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.

Data update history

(8)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS August 12, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS March 17, 2022)
  3. Updated Form 990 for fiscal year 2024 (received by the IRS July 31, 2025)
  4. Added Form 990 for fiscal year 2019 (received by the IRS August 13, 2020)
  5. Updated Form 990 for fiscal year 2022 (received by the IRS August 15, 2023)
  6. Updated Form 990 for fiscal year 2023 (received by the IRS August 14, 2024)
  7. Added Form 990 for fiscal year 2025 (received by the IRS August 12, 2026)
  8. IRS filings on file for fiscal years 2020–2024

Live grants for the work The Center for CC&D of Inherited Blood Disorders funds

Health Open opportunities, soonest deadline first.

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Browse active grant opportunities in The Center for CC&D of Inherited Blood Disorders's focus areas in our free grants database

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Cite this profile

Grantable. (2026). The Center for CC&D of Inherited Blood Disorders funder profile. GrantGraph. Retrieved October 23, 2026, from https://grantable.co/funders/the-center-for-ccandd-of-inherited-blood-disorders-morg_d9d65cad04014e8298adb895a72bd943

BibTeX
@misc{grantable_270179192_2026,
  author       = {{Grantable}},
  title        = {{The Center for CC\&D of Inherited Blood Disorders funder profile}},
  howpublished = {GrantGraph},
  year         = {2026},
  url          = {https://grantable.co/funders/the-center-for-ccandd-of-inherited-blood-disorders-morg_d9d65cad04014e8298adb895a72bd943},
  note         = {Accessed 2026-10-23. Data licensed CC BY 4.0}
}

The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.

Figures come from The Center for CC&D of Inherited Blood Disorders's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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