The ALS Association Inc Wisconsin Chapter
To lead the fight to cure and treat als through global, cutting-edge research, and to empower people living with als in Wisconsin, and their families, to live fuller lives by providing them with compassionate care and support.
Key facts about The ALS Association Inc Wisconsin Chapter
In short: The ALS Association Inc Wisconsin Chapter gave $205K across 1 grant in 2022 (avg $205K), mostly in Virginia. Source: 2022 IRS Form 990.
- EIN
- 39-1600965
- Latest 990 filing
- Form 990, 2022
- Annual giving (2022)
- $204,552
- Grants made (2022)
- 1
- Average grant
- $204,552
- Median grant
- $204,552
- Total assets
- $1,293,617
- Primary geography
- Virginia (100% of itemized 2022 grant dollars)
- Next open deadline
- January 28, 2027 (BRAIN Initiative: Preclinical Proof of Concept for Novel Recording and Modulation Technologies in the Human CNS (R18 - Clinical Trial Not Allowed))
Data from IRS Form 990, 2022; updated September 2026.
Financial Overview
From 2022 IRS Form 990 · View filing
Total Assets
$1.3M
-7.5% YoY
Annual Giving
$205K
-18.1% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$205K
-18.1% YoY
About The ALS Association Inc Wisconsin Chapter
Based on IRS filings
The ALS Association Inc Wisconsin Chapter is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wauwatosa, WI. IRS filing data is available from 2020 through 2022. As of 2022, the organization holds $1.3M in total assets. In 2022, it awarded 1 grant totaling $205K.
Focus Areas
Open Grants
2 open opportunities from The ALS Association Inc Wisconsin Chapter
BRAIN Initiative: Clinical Studies to Advance Next-Generation Devices for Recording and Modulation in the Human Central Nervous System (UH3 Clinical Trial Optional)
The ALS Association Inc Wisconsin Chapter
Amount
Varies
Deadline
Rolling / Open
BRAIN Initiative: Preclinical Proof of Concept for Novel Recording and Modulation Technologies in the Human CNS (R18 - Clinical Trial Not Allowed)
The ALS Association Inc Wisconsin Chapter
Amount
Budgets should rarely exceed $750,000 in direct costs per year
Deadline
January 28, 2027
Ready to take the next step with The ALS Association Inc Wisconsin Chapter?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2022 grant dollars on its one itemized grant.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2022, annual grant giving ranged from $205K (2022) to $303K (2020). In 2022 it made 1 grant totaling $205K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top recipient in 2022
The largest 2022 recipient was The ALS Association National Headquarters ($205K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 3 (67%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The ALS Association National Headquarters Arlington, VA | Restricted to research to find the cause, treatments and a cure for als. | $204,552 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2022 | 2021 | 2020 |
|---|---|---|---|
| Total Assets | $1,293,617 | $1,398,546 | $1,295,260 |
| Revenue | $1,806,254 | $1,393,195 | $1,540,683 |
| Expenses | $1,776,291 | $1,339,102 | $1,586,353 |
| Net Investment Income | $-10,451 | $-89,354 | $-148,922 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 3, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 25, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS December 15, 2022)
- IRS filings on file for fiscal years 2020–2022
Leadership & Key People
Officers and directors from IRS filings
The ALS Association Inc Wisconsin Chapter is led by Melanie Roach-Bekos, Executive Director on every filing since 2020; 1 of 16 officers listed in 2022 is compensated.
Officers on the 2022 filing
Melanie Roach-Bekos
Executive Director
On filings since 2020
40 hrs/week
$140K (2020) → $138K (2022)
Mary Brennan-Druml
President
Secretary → President, 2021
On filings since 2020
5.3 hrs/week
No compensation reported
Carl Bahneman
Director
On filings since 2020
1.5 hrs/week
No compensation reported
Manis Mullarkey
Director
On filings since 2020
0.8 hrs/week
No compensation reported
Mary Beth Schlecht
Director
On filings since 2020
2.3 hrs/week
No compensation reported
Christopher Simms
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Jessica Geres
Director
On filings since 2021
0.5 hrs/week
No compensation reported
Thomas Kettler
Director
On filings since 2021
5.3 hrs/week
No compensation reported
Gerard Randal
Director
New on the 2022 filing
0.5 hrs/week
No compensation reported
Kelly Schwab
Director
New on the 2022 filing
0.5 hrs/week
No compensation reported
Liliana Lily Lopez
Director
New on the 2022 filing
0.5 hrs/week
No compensation reported
Maritza A. Gonzalez
Director
New on the 2022 filing
0.5 hrs/week
No compensation reported
Shelly Slowak
Director
New on the 2022 filing
0.5 hrs/week
No compensation reported
Lauren Domnick
Treasurer
On filings since 2020
13 hrs/week
No compensation reported
Meg Posorske
Vice President
On filings since 2020
13 hrs/week
No compensation reported
Matthew O'Neill
Secretary
On filings since 2021
12 hrs/week
No compensation reported
Former officers (8)
- Former: Holly Blake (2020–2021) — Director
- Former: Joel Hess (2020–2021) — Director
- Former: Kathryn Keppel (2020–2021) — President
- Former: Ben Becker (2020) — Director
- Former: Frank McRae (2020) — Director
- Former: Laura Hinrichsen (2020) — Director
- Former: Terri McKenzie (2020) — Director
- Former: Tom Kettler (2020) — Director
Data from IRS Form 990 filings, 2020–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $138K, to Melanie Roach-Bekos (Executive Director).
Frequently asked questions about The ALS Association Inc Wisconsin Chapter
How much does The ALS Association Inc Wisconsin Chapter give each year?
The ALS Association Inc Wisconsin Chapter gave $205K across 1 grant in 2022, according to its 2022 IRS Form 990. In 2021 it gave $250K across 1 grant.
How large is The ALS Association Inc Wisconsin Chapter?
The ALS Association Inc Wisconsin Chapter reported $1.3M in total assets on its 2022 IRS Form 990. Its revenue that year was $1.8M.
What is The ALS Association Inc Wisconsin Chapter?
The ALS Association Inc Wisconsin Chapter is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wauwatosa, WI. It holds $1.3M in total assets as of 2022.
Where does The ALS Association Inc Wisconsin Chapter operate?
The ALS Association Inc Wisconsin Chapter has awarded grants in Virginia.
What is The ALS Association Inc Wisconsin Chapter's EIN?
The ALS Association Inc Wisconsin Chapter's EIN (Employer Identification Number) is 39-1600965. IRS Form 990 filing data is available on this page for 2020–2022.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The ALS Association Inc Wisconsin Chapter by hand.
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