The ALS Association Inc Wisconsin Chapter logo

The ALS Association Inc Wisconsin Chapter

Public charity · Grantmaker Wauwatosa, WI EIN: 39-1600965 Website

To lead the fight to cure and treat als through global, cutting-edge research, and to empower people living with als in Wisconsin, and their families, to live fuller lives by providing them with compassionate care and support.

Key facts about The ALS Association Inc Wisconsin Chapter

In short: The ALS Association Inc Wisconsin Chapter gave $205K across 1 grant in 2022 (avg $205K), mostly in Virginia. Source: 2022 IRS Form 990.

EIN
39-1600965
Latest 990 filing
Form 990, 2022
Annual giving (2022)
$204,552
Grants made (2022)
1
Average grant
$204,552
Median grant
$204,552
Total assets
$1,293,617
Primary geography
Virginia (100% of itemized 2022 grant dollars)
Next open deadline
January 28, 2027 (BRAIN Initiative: Preclinical Proof of Concept for Novel Recording and Modulation Technologies in the Human CNS (R18 - Clinical Trial Not Allowed))

Data from IRS Form 990, 2022; updated September 2026.

Financial Overview

From 2022 IRS Form 990 · View filing

Total Assets

$1.3M

-7.5% YoY

Annual Giving

$205K

-18.1% YoY

Grant Count

1

+0.0% YoY

Avg Grant Size

$205K

-18.1% YoY

About The ALS Association Inc Wisconsin Chapter

Based on IRS filings

The ALS Association Inc Wisconsin Chapter is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wauwatosa, WI. IRS filing data is available from 2020 through 2022. As of 2022, the organization holds $1.3M in total assets. In 2022, it awarded 1 grant totaling $205K.

Open Grants

2 open opportunities from The ALS Association Inc Wisconsin Chapter

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

Share of the 2022 grant dollars on its one itemized grant.

States

Cities

Arlington

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K$400K1 grant2020 1 grant2021 1 grant2022

From 2020 to 2022, annual grant giving ranged from $205K (2022) to $303K (2020). In 2022 it made 1 grant totaling $205K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top recipient in 2022

The ALS Association National Headquarters: $205KThe ALS Association NationalHeadquarters$205K

The largest 2022 recipient was The ALS Association National Headquarters ($205K).

Grant Size Distribution

3 grants across all recorded years

<$50K$50–100K2$100–250K1$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 2 grants of 3 (67%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
The ALS Association National Headquarters Arlington, VARestricted to research to find the cause, treatments and a cure for als.$204,552

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$500K$1M$1.5M$2M2020 2021 2022
Metric202220212020
Total Assets$1,293,617$1,398,546$1,295,260
Revenue$1,806,254$1,393,195$1,540,683
Expenses$1,776,291$1,339,102$1,586,353
Net Investment Income$-10,451$-89,354$-148,922

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS August 3, 2020)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS October 25, 2021)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS December 15, 2022)
  4. IRS filings on file for fiscal years 2020–2022

Leadership & Key People

Officers and directors from IRS filings

The ALS Association Inc Wisconsin Chapter is led by Melanie Roach-Bekos, Executive Director on every filing since 2020; 1 of 16 officers listed in 2022 is compensated.

Officers on the 2022 filing

  • Melanie Roach-Bekos

    Executive Director

    On filings since 2020

    40 hrs/week

    $140K (2020) → $138K (2022)

  • Mary Brennan-Druml

    President

    Secretary → President, 2021

    On filings since 2020

    5.3 hrs/week

    No compensation reported

  • Carl Bahneman

    Director

    On filings since 2020

    1.5 hrs/week

    No compensation reported

  • Manis Mullarkey

    Director

    On filings since 2020

    0.8 hrs/week

    No compensation reported

  • Mary Beth Schlecht

    Director

    On filings since 2020

    2.3 hrs/week

    No compensation reported

  • Christopher Simms

    Director

    On filings since 2021

    0.5 hrs/week

    No compensation reported

  • Jessica Geres

    Director

    On filings since 2021

    0.5 hrs/week

    No compensation reported

  • Thomas Kettler

    Director

    On filings since 2021

    5.3 hrs/week

    No compensation reported

  • Gerard Randal

    Director

    New on the 2022 filing

    0.5 hrs/week

    No compensation reported

  • Kelly Schwab

    Director

    New on the 2022 filing

    0.5 hrs/week

    No compensation reported

  • Liliana Lily Lopez

    Director

    New on the 2022 filing

    0.5 hrs/week

    No compensation reported

  • Maritza A. Gonzalez

    Director

    New on the 2022 filing

    0.5 hrs/week

    No compensation reported

  • Shelly Slowak

    Director

    New on the 2022 filing

    0.5 hrs/week

    No compensation reported

  • Lauren Domnick

    Treasurer

    On filings since 2020

    13 hrs/week

    No compensation reported

  • Meg Posorske

    Vice President

    On filings since 2020

    13 hrs/week

    No compensation reported

  • Matthew O'Neill

    Secretary

    On filings since 2021

    12 hrs/week

    No compensation reported

Former officers (8)
  • Former: Holly Blake (2020–2021) — Director
  • Former: Joel Hess (2020–2021) — Director
  • Former: Kathryn Keppel (2020–2021) — President
  • Former: Ben Becker (2020) — Director
  • Former: Frank McRae (2020) — Director
  • Former: Laura Hinrichsen (2020) — Director
  • Former: Terri McKenzie (2020) — Director
  • Former: Tom Kettler (2020) — Director

Data from IRS Form 990 filings, 2020–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2022 IRS filing

Melanie Roach-Bekos — Executive Director: $138KMelanie Roach-BekosExecutive Director$138K

The highest reported compensation on the 2022 filing was $138K, to Melanie Roach-Bekos (Executive Director).

Frequently asked questions about The ALS Association Inc Wisconsin Chapter

How much does The ALS Association Inc Wisconsin Chapter give each year?

The ALS Association Inc Wisconsin Chapter gave $205K across 1 grant in 2022, according to its 2022 IRS Form 990. In 2021 it gave $250K across 1 grant.

How large is The ALS Association Inc Wisconsin Chapter?

The ALS Association Inc Wisconsin Chapter reported $1.3M in total assets on its 2022 IRS Form 990. Its revenue that year was $1.8M.

What is The ALS Association Inc Wisconsin Chapter?

The ALS Association Inc Wisconsin Chapter is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Wauwatosa, WI. It holds $1.3M in total assets as of 2022.

Where does The ALS Association Inc Wisconsin Chapter operate?

The ALS Association Inc Wisconsin Chapter has awarded grants in Virginia.

What is The ALS Association Inc Wisconsin Chapter's EIN?

The ALS Association Inc Wisconsin Chapter's EIN (Employer Identification Number) is 39-1600965. IRS Form 990 filing data is available on this page for 2020–2022.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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