Rosenau Family Research Foundation
Rosenau Family Research Foundation is a private foundation based in Waseca, Minnesota. It supports research and disease advocacy focused on Krabbe disease and cystic fibrosis, including work on treatments, cures, and newborn screening.
Rosenau Family Research Foundation at a glance
In short: Rosenau Family Research Foundation gave $1.7M across 15 grants in 2024 (avg $114K), top state Illinois. 42% of 2024 grantees were new. Source: 2024 IRS Form 990-PF.
- Annual giving (2024)
- $1,705,137
- +34.6% vs 2023
- Grants made (2024)
- 15
- +50.0% vs 2023
- Average grant
- $113,676
- -10.2% vs 2023
- Median grant
- $125,000
- Total assets
- $35,041,767
- +15.7% vs 2023
- New grantees (estimate)
- 42% first-time grantees (5 of 12, 2024; small sample)
- Primary geography
- Illinois (19% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990-PF, 2024 View filing
Data from IRS Form 990-PF, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Rosenau Family Research Foundation
- How to Apply
-
The website describes submitting a Letter of Intent outlining the proposed project; invited applicants proceed to a full funding proposal. The 2024 filing lists a letter outlining the project, including financial data, as the application materials and names Paul Rosenau as the filing’s application contact.
- Review Cycle
- The 2024 filing lists no deadline. The website says Letters of Intent are reviewed after the deadline established for each cycle; it does not give a current cycle deadline.
- Deadline
- The 2024 filing lists no deadline.
- Contact
Application contact: Paul Rosenau
Mailing address: 104 10Th Avenue Se, Waseca, MN 56093
Phone: (507) 833-8144
Email: info@dufaultcpa.com
Website: https://www.rosenaufoundation.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
2 open opportunities from Rosenau Family Research Foundation
Rosenau Family Research Foundation (RFRF): Investigator Grant
Rosenau Family Research Foundation
Amount
Varies
Deadline
Deadline not published
Rosenau Family Research Foundation (RFRF): New Investigator Grant
Rosenau Family Research Foundation
Amount
Varies
Deadline
Deadline not published
Who Rosenau Family Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of Illinois ($330K across 4 grants). Together the top 10 received $1.6M.
Grant Size Distribution
47 grants across all recorded years
The most common grant size was in the $100–250K range: 24 grants of 47 (51%).
Geographic Focus
Where this funder awards grants
The foundation’s website says international applications are not currently funded. In 2024, grant dollars went to recipients in multiple states; the largest shares by recipient state were Illinois (19%), Minnesota (18%), North Carolina (15%), Pennsylvania (11%), and Connecticut (10%).
Grant Distribution by State
Share of 2024 grant dollars across all 15 itemized grants.
States
Cities
Is Rosenau Family Research Foundation open to new grantees?
42%
first-time grantees, 2024
In 2024, 5 of 12 grantees (42%) were first-time recipients. With only 12 grantees, that is a small sample: one grantee more or less moves the share by about 8 points. First grants averaged $123K; repeat grants $155K. How we count
Medians: $125K first-time, $125K repeat.
- 50% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (+8%). Method
- In 2024 it paid out 135% of its IRS minimum distribution (the 5% rule). Method
Estimate from itemized grant lists in IRS Form 990-PF filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $725K (2022) to $2.0M (2020). In 2024 it made 15 grants totaling $1.7M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Duke University Durham, NC | Immune Responses in Peripheral Nerves after Hematopoietic Stem Cell Transplants for KD | $250,000 |
| University of Connecticut Health Ce Farmington, CT | Evaluation of Immunomodulatory Therapy for the Treatment of KD | $175,049 |
| Biomedical Research Institute of NJ Cedar Knools, NJ | Psychosine Profiling and Evaluation as a Therapeutic for KD | $149,154 |
| University of Illinois Chicago, IL | A Maladaptive Pathway Involved In Early Pathogenesis of KD | $125,000 |
| University of Buffalo Amherst, NY | Modulating Oligodendroglial NFkB as a Therapeutic Strategy for KD | $125,000 |
| Nationwide Children's Hospital Columbus, OH | Evaluation of In Utero Gene Therapy in Canine KD | $125,000 |
| University of Pittsburgh Pittsburgh, PA | Disclosure of Newborn Screening Results for KD in Pennsylvania | $125,000 |
| University of Minnesota Minneapolis, MN | GenoKrabbe: A Comprehensive Genotype-Phenotype Database for KD | $125,000 |
| KrabbeConnect Rosemount, MN | Parent-Reported Disease Burden in Infantile & Late Infantile KD | $123,982 |
| University of Illinois Chicago, IL | Challenging the Capacity of AAV-GALC Gene Therapy to Cope with Modifiers of Adult Brain Function | $85,000 |
Ready to take the next step with Rosenau Family Research Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2024 | $35,041,767 | $8,238,171 | $3,493,538 | $1,705,137 | 15 | $2,169,889 | $6,948,167 | $1,611,389 |
| 2023 | $30,291,573 | $2,316,796 | $2,493,037 | $1,266,475 | 10 | $1,751,191 | $1,486,581 | $1,654,522 |
| 2022 | $30,473,177 | $1,612,643 | $1,884,423 | $725,165 | 5 | $1,248,984 | $231,570 | $2,285,626 |
| 2021 | $30,431,598 | $1,957,355 | $2,538,328 | $1,578,663 | 8 | $2,045,756 | $1,333,608 | $1,837,979 |
| 2020 | $31,834,443 | $1,406,227 | $2,592,511 | $1,988,946 | 9 | — | $1,116,035 | $1,671,878 |
Under IRS private-foundation payout rules, Rosenau Family Research Foundation reported a distributable amount of $1.6M for 2024 — the minimum it must pay out in qualifying distributions.
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The foundation’s mission is to improve the lives of people impacted by Krabbe disease and cystic fibrosis through research funding and disease advocacy. It considers basic science, translational, and clinical research that could lead to or enhance treatments and cures for either disease. It also considers education and awareness programs promoting expanded newborn screening for Krabbe disease and cystic fibrosis.
The foundation’s website describes a competitive grant program and says applicants must address a specific scientific question or educational or awareness goal aligned with its mission. Its 2024 filing lists restrictions concerning childhood diseases and newborn screening, particularly Krabbe disease and cystic fibrosis.
Supported organizations have included universities, hospitals, research organizations, and disease-focused organizations. KrabbeConnect describes its own mission as providing comprehensive information and access to resources for families affected by Krabbe disease. Mayo Clinic describes its mission as contributing to health and well-being through patient care, education, and research. The University of Pittsburgh describes its own role as a research university serving its region, Pennsylvania, and the nation.
Grantmaking
In filing year 2024, the foundation reported 15 grants totaling $1,705,137. Grant amounts ranged from $57,359 to $250,000, with a median of $125,000. Notable awards included $250,000 to Duke University for research on immune responses in peripheral nerves after hematopoietic stem cell transplants for Krabbe disease; $175,049 to the University of Connecticut Health Center for evaluating immunomodulatory therapy; and $149,154 to the Biomedical Research Institute of New Jersey for work on psychosine profiling as a therapeutic for Krabbe disease. Other 2024 recipients included the University of Pittsburgh ($125,000), KrabbeConnect ($123,982), and Mayo Clinic ($57,359).
The foundation’s website describes two grant categories: New Investigator Grants, with awards of up to $60,000 per year for up to two years and no more than 5% of the total award for overhead; and Investigator Grants, with awards of up to $125,000 per year for up to three years and the same overhead limit. The website says the program may run Fall and Spring cycles, with applicants first submitting a Letter of Intent for review before any invitation to submit a full proposal. It also says international applications are not being funded. The grant-process page reports that no cycle is currently open.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Paul Rosenau as president; Gillian Hauboldt as treasurer; Mary Kay Delvo Amanda Post as secretary; and Heather Techmeier, Dr. Gabriel Cohn, Julie McCarrier, Li Ou, Phil Christianson, Marci Sontag, and Karlita Blackwell as directors.
Rosenau Family Research Foundation is led by Paul Rosenau, President on every filing since 2020; 2 of 10 officers listed in 2024 are compensated.
Officers on the 2024 filing
Paul Rosenau
President
On filings since 2020
5 hrs/week
No compensation reported
Heather Techmeier
Director
Treasurer → Director, 2022
On filings since 2020
40 hrs/week
$128K (2020) → $188K (2024)
Gabriel Cohn
Director
On filings since 2022
40 hrs/week
$24K (2022) → $175K (2024)
Julie McCarrier
Director
Board Member → Director, 2022
On filings since 2020
2 hrs/week
No compensation reported
Karlita Blackwell
Director
On filings since 2022
2 hrs/week
No compensation reported
Li Ou
Director
On filings since 2022
2 hrs/week
No compensation reported
Marci Sontag
Director
On filings since 2022
2 hrs/week
No compensation reported
Phil Christianson
Director
On filings since 2022
2 hrs/week
No compensation reported
Gillian Hauboldt
Treasurer
On filings since 2022
2 hrs/week
No compensation reported
Mary Kay Delvo Amanda Post
Secretary
New on the 2024 filing
2 hrs/week
No compensation reported
Former officers (3)
- Former: Mariah Stone Mary Kay Delvo (2023) — Secretary
- Former: Stacy Pike-Langenfeld (2020–2022) — Secretary
- Former: Brett Rosenau (2020–2021) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $188K, to Heather Techmeier (Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Rosenau Family Research Foundation
How much does Rosenau Family Research Foundation give each year?
Rosenau Family Research Foundation gave $1.7M across 15 grants in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $1.3M across 10 grants.
What is Rosenau Family Research Foundation's typical grant size?
Rosenau Family Research Foundation's median grant in 2024 was $125,000, and its average grant was $113,676, across 15 grants on its 2024 IRS Form 990-PF. Organizations receiving their first grant from Rosenau Family Research Foundation that year got $123K on average.
Where does Rosenau Family Research Foundation give grants?
Rosenau Family Research Foundation's top state is Illinois, with 19% of the grant dollars itemized on its 2024 IRS Form 990-PF. The next largest states were Minnesota (18%) and North Carolina (15%). The most frequent recipient cities were Chicago, IL (4 grants).
Does Rosenau Family Research Foundation give general operating support?
Not in 2024: none of the 15 grants with a stated purpose on Rosenau Family Research Foundation's 2024 IRS Form 990-PF were described as general or operating support.
Who are Rosenau Family Research Foundation's largest grantees?
Rosenau Family Research Foundation's largest 2024 grantees include University of Illinois ($330,000 across 4 grants), Duke University ($250,000) and University of Connecticut Health Ce ($175,049), according to its 2024 IRS Form 990-PF. Together they received 44% of its itemized 2024 grant dollars.
How large is Rosenau Family Research Foundation?
Rosenau Family Research Foundation reported $35.0M in total assets on its 2024 IRS Form 990-PF. It paid out $2.2M in qualifying distributions that year, against a required minimum of $1.6M (roughly 5% of its investment assets).
What does Rosenau Family Research Foundation fund?
The foundation’s mission is to improve the lives of people impacted by Krabbe disease and cystic fibrosis through research funding and disease advocacy. It considers basic science, translational, and clinical research that could lead to or enhance treatments and cures for either disease. See mission & focus areas ↑
How do I apply for a grant from Rosenau Family Research Foundation?
The website describes submitting a Letter of Intent outlining the proposed project; invited applicants proceed to a full funding proposal. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Rosenau Family Research Foundation's EIN?
Rosenau Family Research Foundation's EIN (Employer Identification Number) is 26-3070514. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
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Cite this profile
Grantable. (2026). Rosenau Family Research Foundation funder profile. GrantGraph. Retrieved October 6, 2026, from https://grantable.co/funders/rosenau-family-research-foundation-morg_cf569be49fde4354bd3aae66c266ec87
BibTeX
@misc{grantable_263070514_2026,
author = {{Grantable}},
title = {{Rosenau Family Research Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/rosenau-family-research-foundation-morg_cf569be49fde4354bd3aae66c266ec87},
note = {Accessed 2026-10-06. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Rosenau Family Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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