Restless Legs Syndrome Foundation
The corporation is organized to increase scientific and public understanding of restless legs syndrome or rls, to encourage and provide funding for research leading to treatments and cure for the disease, to provide support to those suffering from the disease, to be the leading center for information on all aspects of the disease, and to carry on such other activities related to the disease, its treatments and cure, as may be designated by the board from time to time.
Restless Legs Syndrome Foundation at a glance
In short: Restless Legs Syndrome Foundation gave $160K across 4 grants in 2025 (avg $40K), top state Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $159,982
- +50.7% vs 2024
- Grants made (2025)
- 4
- +33.3% vs 2024
- Average grant
- $39,996
- +13.0% vs 2024
- Median grant
- $49,991
- Total assets
- $1,001,183
- -7.9% vs 2024
- Primary geography
- Pennsylvania (31% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Restless Legs Syndrome Foundation funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was Pennsylvania State University ($50K). Together the top 4 received $160K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 8 grants of 10 (80%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
Cities
How Restless Legs Syndrome Foundation gives
- Giving grew 789% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $10K (2023) to $160K (2025). In 2025 it made 4 grants totaling $160K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Pennsylvania State University Hershey, PA | Research Grant | $50,000 |
| Stanford University Stanford, CA | Research Grant | $50,000 |
| Yale University New Haven, CT | Research Grant | $49,982 |
| The General Hospital Corporation Boston, MA | Research Grant | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,001,183 | $1,232,770 | $1,228,928 | $159,982 | 4 | $23,123 |
| 2024 | $1,086,987 | $1,112,279 | $1,167,615 | $106,157 | 3 | $31,672 |
| 2023 | $923,433 | $938,927 | $873,955 | $10,000 | 1 | $11,361 |
| 2022 | $795,669 | $944,438 | $777,191 | $18,000 | 1 | $7,016 |
| 2021 | $718,099 | $851,464 | $717,434 | $18,000 | 1 | $6,516 |
| 2020 | $718,377 | $900,436 | $780,802 | $18,000 | 1 | $9,295 |
| 2019 | $404,578 | $800,307 | $842,357 | $58,498 | 2 | $10,728 |
About Restless Legs Syndrome Foundation
Based on IRS filings
Restless Legs Syndrome Foundation is a public charity focused on Medical Research, based in Austin, TX. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.0M in total assets. In 2025, it awarded 4 grants totaling $160K. Net investment income was $23K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Restless Legs Syndrome Foundation is led by Jeffrey Durmer, Chair since 2025 (on filings since 2019); 1 of 13 officers listed in 2025 is compensated.
Officers on the 2025 filing
Jeffrey Durmer
Chair
Director → Chair, 2025
On filings since 2019
2 hrs/week
No compensation reported
Lewis Phelps
Director
Chairman Emeritus → Chair Emeritus, 2023
Chair Emeritus → Director, 2025
On filings since 2019
2 hrs/week
No compensation reported
Marcia Ball
Director
On filings since 2019
2 hrs/week
No compensation reported
Laura Scott Hoffman
Director -
Director → Director -, 2025
On filings since 2022
2 hrs/week
No compensation reported
Paul Vicary
Director -
Director → Director -, 2025
On filings since 2023
2 hrs/week
No compensation reported
Avinash Aggarwal
Director
On filings since 2024
2 hrs/week
No compensation reported
Bill Wendt
Director
On filings since 2024
2 hrs/week
No compensation reported
Donnie Kee
Director
On filings since 2024
2 hrs/week
No compensation reported
Jim Flaniken
Director
On filings since 2024
2 hrs/week
No compensation reported
Kunal Agarwal
Director
On filings since 2024
2 hrs/week
No compensation reported
Karla Dzienkowski
Executive Di
Executive Director → Executive Di, 2022
On filings since 2019
40 hrs/week
$85K (2019) → $135K (2025)
Greg Oberland
Treasurer
Director → Treasurer, 2022
On filings since 2019
2 hrs/week
No compensation reported
David J. Loskutoff
Secretary
Director → Secretary, 2023
On filings since 2022
2 hrs/week
No compensation reported
Former officers (10)
- Former: Jacquelyn Bainbridge (2019–2024) — Director
- Former: Paul Rochester (2019–2024) — Director
- Former: Shalini Paruthi (2019–2024) — Chair
- Former: Carla Rahn Phillips (2019–2022) — Chairman
- Former: Linda Secretan (2019–2022) — Secretary
- Former: Peter Nussbaum (2022) — Director
- Former: Ronald Anderson (2019–2021) — Director
- Former: Ronald W. Barrett (2019–2021) — Treasurer
- Former: Steve McCann (2019–2021) — Director
- Former: Ellen Spoehr (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $135K, to Karla Dzienkowski (Executive Di).
Frequently asked questions about Restless Legs Syndrome Foundation
How much does Restless Legs Syndrome Foundation give each year?
Restless Legs Syndrome Foundation gave $160K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $106K across 3 grants.
What is Restless Legs Syndrome Foundation's typical grant size?
Restless Legs Syndrome Foundation's median grant in 2025 was $49,991, and its average grant was $39,996, across 4 grants on its 2025 IRS Form 990.
Where does Restless Legs Syndrome Foundation give grants?
Restless Legs Syndrome Foundation's top state is Pennsylvania, with 31% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were California (31%) and Connecticut (31%).
Does Restless Legs Syndrome Foundation give general operating support?
Not in 2025: none of the 4 grants with a stated purpose on Restless Legs Syndrome Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Grant" (4 grants).
How large is Restless Legs Syndrome Foundation?
Restless Legs Syndrome Foundation reported $1.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.2M.
What is Restless Legs Syndrome Foundation?
Restless Legs Syndrome Foundation is a public charity focused on Medical Research, based in Austin, TX. It holds $1.0M in total assets as of 2025.
What is Restless Legs Syndrome Foundation's EIN?
Restless Legs Syndrome Foundation's EIN (Employer Identification Number) is 56-1784846. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS February 7, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS March 3, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS March 9, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 6, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 4, 2026)
- IRS filings on file for fiscal years 2019–2025
Live grants for the work Restless Legs Syndrome Foundation funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Restless Legs Syndrome Foundation's focus areas in our free grants database
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