THE CORPORATION IS ORGANIZED TO INCREASE SCIENTIFIC AND PUBLIC UNDERSTANDING OF RESTLESS LEGS SYNDROME OR RLS, TO ENCOURAGE AND PROVIDE FUNDING FOR RESEARCH LEADING TO TREATMENTS AND CURE FOR THE DISEASE, TO PROVIDE SUPPORT TO THOSE SUFFERING FROM THE DISEASE, TO BE THE LEADING CENTER FOR INFORMATION ON ALL ASPECTS OF THE DISEASE, AND TO CARRY ON SUCH OTHER ACTIVITIES RELATED TO THE DISEASE, ITS TREATMENTS AND CURE, AS MAY BE DESIGNATED BY THE BOARD FROM TIME TO TIME.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.1M
+17.7% YoY
Annual Giving
$106K
+961.6% YoY
Grant Count
3
+200.0% YoY
Avg Grant Size
$35K
+253.9% YoY
About Restless Legs Syndrome Foundation
Based on IRS filings
Restless Legs Syndrome Foundation is a nonprofit organization focused on Medical Research, based in AUSTIN, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 3 grants totaling $106K. Net investment income was $32K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,086,987 | $923,433 | $795,669 |
| Revenue | $1,112,279 | $938,927 | $944,438 |
| Expenses | $1,167,615 | $873,955 | $777,191 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $31,672 | $11,361 | $7,016 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
6 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Yale University ($49,861), Emory University ($46,296), The General Hospital Corporation ($10,000).
| Recipient | Purpose | Amount |
|---|---|---|
| THE GENERAL HOSPITAL CORPORATION BOSTON, MA | RESEARCH GRANT | $10,000 |
| EMORY UNIVERSITY ATLANTA, GA | RESEARCH GRANT | $46,296 |
| YALE UNIVERSITY NEW HAVEN, CT | RESEARCH GRANT | $49,861 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KARLA DZIENKOWSKI | EXECUTIVE DI | 40 | $119,808 |
| SHALINI PARUTHI | CHAIR | 2 | — |
| DAVID LOSKUTOFF | SECRETARY | 2 | — |
| GREG OBERLAND | TREASURER | 2 | — |
| LEWIS PHELPS | CHAIR EMERIT | 2 | — |
| MARCIA BALL | DIRECTOR | 2 | — |
| JACQUELYN BAINBRIDGE | DIRECTOR | 2 | — |
| JEFFREY DURMER | DIRECTOR | 2 | — |
| LAURA SCOTT HOFFMAN | DIRECTOR | 2 | — |
| PAUL ROCHESTER | DIRECTOR | 2 | — |
| PAUL VICARY | DIRECTOR | 2 | — |
| KUNAL AGARWAL | DIRECTOR | 2 | — |
| JIM FLANIKEN | DIRECTOR | 2 | — |
| AVINASH AGGARWAL | DIRECTOR | 2 | — |
| BILL WENDT | DIRECTOR | 2 | — |
| DONNIE KEE | DIRECTOR | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Restless Legs Syndrome Foundation?
Restless Legs Syndrome Foundation is a nonprofit organization focused on Medical Research, based in AUSTIN, TX. It holds $1.1M in total assets as of 2024.
How large is Restless Legs Syndrome Foundation?
As of 2024, Restless Legs Syndrome Foundation holds $1.1M in total assets with $1.1M in annual revenue. It awarded 3 grants totaling $106K in 2024.
Where does Restless Legs Syndrome Foundation operate?
Restless Legs Syndrome Foundation has awarded grants in Connecticut, Georgia, Massachusetts.
What size grants does Restless Legs Syndrome Foundation award?
In 2024, Restless Legs Syndrome Foundation awarded 3 grants totaling $106K — an average of about $35K per grant, based on its IRS Form 990 filings.
What is Restless Legs Syndrome Foundation's EIN?
Restless Legs Syndrome Foundation's EIN (Employer Identification Number) is 56-1784846. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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