PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd logo

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd

Public charity · Grantmaker Westbury, NY EIN: 87-1389001 Website

PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations.

Key facts about PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd

In short: PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd gave $149K across 2 grants in 2025 (avg $75K), mostly in Utah. Source: 2025 IRS Form 990.

EIN
87-1389001
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$149,020
Grants made (2025)
2
Average grant
$74,510
Median grant
$74,510
Total assets
$1,286,936
Primary geography
Utah (67% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$1.3M

+8.6% YoY

Annual Giving

$149K

+49.0% YoY

Grant Count

2

+100.0% YoY

Avg Grant Size

$75K

-25.5% YoY

About PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd

Based on IRS filings

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd is a public charity focused on Health, based in Westbury, NY. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $1.3M in total assets. In 2025, it awarded 2 grants totaling $149K.

Focus Areas

Open Grants

1 open opportunity from PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

3states

Share of 2025 grant dollars across all 2 itemized grants.

Cities

Salt Lake CityBrooklynSanta Barbara

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K0 grants2022 1 grant2023 1 grant2024 2 grants2025

From 2023 to 2025, annual grant giving ranged from $10K (2023) to $149K (2025). In 2025 it made 2 grants totaling $149K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2025

University of Utah: $100KUniversity of Utah$100KSanta Barbara Nutrients Inc: $49KSanta Barbara Nutrients Inc$49K

The largest 2025 recipient was University of Utah ($100K). Together the top 2 received $149K.

Grant Size Distribution

4 grants across all recorded years

2<$50K$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 2 grants of 4 (50%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
University of Utah Salt Lake City, UTA grant was awarded to University of Utah Health to establish a PKD Specialty Clinic. The opening of this clinic in Fall 2025 marks the first time the health system has had a dedicated provider specializing in PKD care, building on years of experience treating patients with the disease. The grant was also awarded for relevant awareness and outreach efforts at the University related to preimplantation genetic testing and in vitro fertilization and how these procedures prevent PKD from being passed on to the next generation, and how Alliance grant funding helps patients with associated costs.$100,000
Santa Barbara Nutrients Inc Santa Barbara, CAFunding of clinical trials to evaluate the effectiveness of their product in slowing the progression of PKD.$49,020

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$500K$1M$1.5M2022 2023 2024 2025
Metric202520242023
Total Assets$1,286,936$1,184,785$1,129,357
Revenue$657,659$445,120$830,899
Expenses$588,428$391,130$228,614
Net Investment Income$-7,152$16,999$23,796

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2024 (received by the IRS September 4, 2025)
  2. Updated Form 990 for fiscal year 2023 (received by the IRS January 23, 2025)
  3. Added Form 990 for fiscal year 2025 (received by the IRS May 22, 2026)
  4. IRS filings on file for fiscal years 2022–2024

Leadership & Key People

Officers and directors from IRS filings

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's 2025 filing lists 3 officers; none of the 3 officers listed in 2025 report compensation.

Officers on the 2025 filing

  • Larry Wald

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Marlene Wald

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Richard Kellner

    Founder

    President → Founder, 2023

    On filings since 2022

    15 hrs/week

    No compensation reported

Data from IRS Form 990 filings, 2022–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd

How much does PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd give each year?

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd gave $149K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $100K across 1 grant.

How large is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd?

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd reported $1.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $658K.

What is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd?

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd is a public charity focused on Health, based in Westbury, NY. It holds $1.3M in total assets as of 2025.

Where does PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd operate?

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd has awarded grants in California, New York, Utah.

What is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's EIN?

PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's EIN (Employer Identification Number) is 87-1389001. IRS Form 990 filing data is available on this page for 2022–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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