PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations.
Key facts about PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd
In short: PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd gave $149K across 2 grants in 2025 (avg $75K), mostly in Utah. Source: 2025 IRS Form 990.
- EIN
- 87-1389001
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $149,020
- Grants made (2025)
- 2
- Average grant
- $74,510
- Median grant
- $74,510
- Total assets
- $1,286,936
- Primary geography
- Utah (67% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$1.3M
+8.6% YoY
Annual Giving
$149K
+49.0% YoY
Grant Count
2
+100.0% YoY
Avg Grant Size
$75K
-25.5% YoY
About PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd
Based on IRS filings
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd is a public charity focused on Health, based in Westbury, NY. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $1.3M in total assets. In 2025, it awarded 2 grants totaling $149K.
Focus Areas
Open Grants
1 open opportunity from PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd
Ready to take the next step with PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $10K (2023) to $149K (2025). In 2025 it made 2 grants totaling $149K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was University of Utah ($100K). Together the top 2 received $149K.
Grant Size Distribution
4 grants across all recorded years
The most common grant size was under $50K: 2 grants of 4 (50%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Utah Salt Lake City, UT | A grant was awarded to University of Utah Health to establish a PKD Specialty Clinic. The opening of this clinic in Fall 2025 marks the first time the health system has had a dedicated provider specializing in PKD care, building on years of experience treating patients with the disease. The grant was also awarded for relevant awareness and outreach efforts at the University related to preimplantation genetic testing and in vitro fertilization and how these procedures prevent PKD from being passed on to the next generation, and how Alliance grant funding helps patients with associated costs. | $100,000 |
| Santa Barbara Nutrients Inc Santa Barbara, CA | Funding of clinical trials to evaluate the effectiveness of their product in slowing the progression of PKD. | $49,020 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,286,936 | $1,184,785 | $1,129,357 |
| Revenue | $657,659 | $445,120 | $830,899 |
| Expenses | $588,428 | $391,130 | $228,614 |
| Net Investment Income | $-7,152 | $16,999 | $23,796 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS September 4, 2025)
- Updated Form 990 for fiscal year 2023 (received by the IRS January 23, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 22, 2026)
- IRS filings on file for fiscal years 2022–2024
Leadership & Key People
Officers and directors from IRS filings
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's 2025 filing lists 3 officers; none of the 3 officers listed in 2025 report compensation.
Officers on the 2025 filing
Larry Wald
Director
On filings since 2022
1 hr/week
No compensation reported
Marlene Wald
Director
On filings since 2022
1 hr/week
No compensation reported
Richard Kellner
Founder
President → Founder, 2023
On filings since 2022
15 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2022–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd
How much does PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd give each year?
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd gave $149K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $100K across 1 grant.
How large is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd?
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd reported $1.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $658K.
What is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd?
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd is a public charity focused on Health, based in Westbury, NY. It holds $1.3M in total assets as of 2025.
Where does PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd operate?
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd has awarded grants in California, New York, Utah.
What is PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's EIN?
PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd's EIN (Employer Identification Number) is 87-1389001. IRS Form 990 filing data is available on this page for 2022–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching PKD FREE BABIES ALLIANCE LTD F/K/A PKD Outreach Foundation Ltd by hand.
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