Nephcure Kidney International logo

Nephcure Kidney International

Public charity · Grantmaker Collegeville, PA EIN: 38-3569922 Website

Nephcure Kidney International is the only organization committed exclusively to supporting research seeking the cause of the potentially debilitating kidney disease of focal segmental glomerulosclerosis (FSGS) and nephrotic syndrome. The organization is committed to improving treatment and finding a cure for this disease.

Nephcure Kidney International at a glance

In short: Nephcure Kidney International gave $16K across 1 grant in 2025 (avg $16K), mostly in North Carolina. Source: 2025 IRS Form 990.

Annual giving (2025)
$16,245
-75.5% vs 2024
Grants made (2025)
1
-50.0% vs 2024
Average grant
$16,245
-51.0% vs 2024
Median grant
$16,245
Total assets
$4,358,213
+11.8% vs 2024
Primary geography
North Carolina (100% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated September 2026.

How to apply to Nephcure Kidney International

Who Nephcure Kidney International funds

How this funder distributes its grants

Top Recipients

Top recipient in 2025

University of North Carolina at Chapel Hill: $16KUniversity of North Carolinaat Chapel Hill$16K

The largest 2025 recipient was University of North Carolina at Chapel Hill ($16K).

Grant Size Distribution

13 grants across all recorded years

5<$50K1$50–100K7$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 7 grants of 13 (54%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Share of the 2025 grant dollars on its one itemized grant.

Cities

PhiladelphiaAtlantaChapel HillAnn ArborBostonDurhamHoustonMiamiNew York

How Nephcure Kidney International gives

  • Giving fell 92% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K0 grants2020 6 grants2021 2 grants2022 2 grants2023 2 grants2024 1 grant2025

From 2021 to 2025, annual grant giving ranged from $16K (2025) to $503K (2021). In 2025 it made 1 grant totaling $16K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
University of North Carolina at Chapel Hill Chapel Hill, NCResearch Grant$16,245
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrants
2025$4,358,213$6,757,601$6,164,591$16,2451
2024$3,897,873$5,601,862$5,872,965$66,2502
2023$3,864,219$4,295,090$4,840,922$200,0002
2022$4,397,686$4,495,178$3,725,381$200,0002
2021$2,950,488$3,911,178$3,203,020$502,5006
2020$2,095,481$3,068,636$2,277,609——

About Nephcure Kidney International

Based on IRS filings

Nephcure Kidney International is a public charity, based in Collegeville, PA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $4.4M in total assets. In 2025, it awarded 1 grant totaling $16K.

Leadership & Key People

Officers and directors from IRS filings

Nephcure Kidney International is led by Josh Tarnoff, Chief Executive Officer on every filing since 2020; 6 of 32 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Josh Tarnoff

    Chief Executive Officer

    On filings since 2020

    40 hrs/week

    $258K (2020) → $310K (2025)

  • Britta Dornan

    Executive Director & Strategic Relations

    Executive Director Strategic Relations → Executive Director & Strategic Relations, 2025

    On filings since 2024

    40 hrs/week

    $130K (2024) → $150K (2025)

  • Michael Levine

    President

    Vice President → President, 2021

    On filings since 2020

    5 hrs/week

    No compensation reported

  • Irving Smokler

    Board Chairman

    President → Board Chairman, 2021

    On filings since 2020

    5 hrs/week

    No compensation reported

  • Rebecca Cook

    Director & Strategic Operations

    Director Development → Director & Strategic Operations, 2025

    On filings since 2023

    40 hrs/week

    $115K (2023) → $152K (2025)

  • Kylie Karley

    Director & Marketing Communications

    New on the 2025 filing

    40 hrs/week

    $120K (2025)

  • Lauren Eva

    Executive Vice President & COO

    Vice President Professional Engagement → Executive Vice President & COO, 2025

    On filings since 2023

    40 hrs/week

    $167K (2023) → $200K (2025)

  • Susan Sikora Brisendine

    Vice President, Development & Innovation

    New on the 2025 filing

    40 hrs/week

    $214K (2025)

  • Andrew Silverman

    Treasurer

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Carol Smokler

    Secretary

    On filings since 2020

    1 hr/week

    No compensation reported

  • Charles Davis III

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Chris Whitney

    Vice President

    Member → Vice President, 2021

    On filings since 2020

    1 hr/week

    No compensation reported

  • Christopher Windisch

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • David Kershaw

    Member

    Co-Medical Director → Member, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Elaine Kamil

    Member

    Co-Medical Director → Member, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jennifer Geisser

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jim Duquette

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Joshua Roy

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Kevin Mott

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Kirk Campbell

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Laurel Damashek

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Manu Varma

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Martin Zimmerman

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Rebecca Oag

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Sarretta McDonough

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • Stephen Hollomon

    Member

    On filings since 2020

    1 hr/week

    No compensation reported

  • William Smoyer

    Member

    Co-Medical Director → Member, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Troy Jones

    Member

    On filings since 2021

    1 hr/week

    No compensation reported

  • Scott Goldstein

    Member

    On filings since 2023

    1 hr/week

    No compensation reported

  • Tyler Wellman

    Member

    On filings since 2023

    1 hr/week

    No compensation reported

  • Barbara Gillespie

    Member

    On filings since 2024

    1 hr/week

    No compensation reported

  • Leroy Miles

    Member

    On filings since 2024

    1 hr/week

    No compensation reported

Former officers (9)
  • Former: Jessic Milten (2023–2024) — Executive Director & Nation
  • Former: Eve Dryer (2024) — Member
  • Former: Mark Winward (2020–2023) — Member
  • Former: Ron Cohen (2020–2023) — Vice President
  • Former: Daniel Simon (2023) — Member
  • Former: Kelly Helm (2023) — Executive Director & Patient Engagement
  • Former: John Roy (2020–2022) — Member
  • Former: Deborah Pollock (2020) — National Director & Advance
  • Former: Lauren Lee (2020) — Chief Research Officer

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Josh Tarnoff — Chief Executive Officer: $310KJosh TarnoffChief Executive Officer$310KSusan Sikora Brisendine — VP, Development & Innovation: $214KSusan Sikora BrisendineVP, Development & Innovation$214KLauren Eva — Executive VP, COO: $200KLauren EvaExecutive VP, COO$200KRebecca Cook — Director, Strategic Operations: $152KRebecca CookDirector, Strategic Operations$152KBritta Dornan — Ex DIR, Strategic Relations: $150KBritta DornanEx DIR, Strategic Relations$150KKylie Karley — Director, Marketing Communication: $120KKylie KarleyDirector, Marketing…$120K

The highest reported compensation on the 2025 filing was $310K, to Josh Tarnoff (Chief Executive Officer). 6 officers or directors reported compensation on that filing.

Frequently asked questions about Nephcure Kidney International

How much does Nephcure Kidney International give each year?

Nephcure Kidney International gave $16K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $66K across 2 grants.

How large is Nephcure Kidney International?

Nephcure Kidney International reported $4.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $6.8M.

Where does Nephcure Kidney International operate?

Nephcure Kidney International has awarded grants in Florida, Georgia, Massachusetts, Michigan, North Carolina, New York, Pennsylvania, Texas.

What is Nephcure Kidney International's EIN?

Nephcure Kidney International's EIN (Employer Identification Number) is 38-3569922. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(2)

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS August 12, 2026)
  2. IRS filings on file for fiscal years 2020–2024

Live grants for the work Nephcure Kidney International funds

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Nephcure Kidney International's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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