National Tay-Sachs and Allied
Provided awareness and education of tay-sachs and allied diseasesed to the public through adverstisements, newsletter and educational seminars.
National Tay-Sachs and Allied at a glance
- Total assets
- $1,387,224
- +6.8% vs 2024
- Revenue (2025)
- $60,458
- -38.3% vs 2024
- Net investment income (2025)
- $29,940
- -17.6% vs 2024
- Expenses (2025)
- $69,180
- -12.3% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who National Tay-Sachs and Allied funds
How this funder distributes its grants
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 3 grants of 3 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How National Tay-Sachs and Allied gives
- Giving fell 33% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $10K (2024) to $25K (2023). In 2024 it made 1 grant totaling $10K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Jscreen Atlanta, GA | Carrier Screening | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,387,224 | $60,458 | $69,180 | — | — | $29,940 |
| 2024 | $1,299,483 | $98,010 | $78,891 | $10,000 | 1 | $36,357 |
| 2023 | $1,187,838 | $115,541 | $90,931 | $25,000 | 1 | $36,104 |
| 2022 | $1,107,155 | $81,904 | $68,236 | — | — | $42,989 |
| 2021 | $1,262,293 | $88,658 | $77,157 | $15,000 | 1 | $47,481 |
| 2020 | $1,018,437 | $95,849 | $83,104 | $15,000 | 1 | $65,307 |
About National Tay-Sachs and Allied
Based on IRS filings
National Tay-Sachs and Allied is a public charity, based in Jenkintown, PA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.4M in total assets. Net investment income was $30K.
Leadership & Key People
Officers and directors from IRS filings
National Tay-Sachs and Allied is led by Lauri Sussman Siegel, Co-President on every filing since 2020; 1 of 12 officers listed in 2025 is compensated.
Officers on the 2025 filing
Lauri Sussman Siegel
Co-President
On filings since 2020
5 hrs/week
No compensation reported
Michael J. Ossip
Co-President
On filings since 2020
5 hrs/week
No compensation reported
Nancy A. Donegan
Co-President
On filings since 2020
5 hrs/week
No compensation reported
Rebecca Hunt Tantala
Executive Di
Executive Director → Executive Di, 2021
On filings since 2020
10 hrs/week
$28K (2020) → $28K (2025)
Barbara Shotz
Board Member
On filings since 2020
1 hr/week
No compensation reported
Charles Wagner
Board Member
On filings since 2020
1 hr/week
No compensation reported
Gwen Wallach Green
Board Member
On filings since 2020
1 hr/week
No compensation reported
H. Lewis Rothstein
Board Member
On filings since 2020
1 hr/week
No compensation reported
Matthew Fontana
Board Member
On filings since 2020
1 hr/week
No compensation reported
Mitchell Sterling
Board Member
On filings since 2020
1 hr/week
No compensation reported
Seth Stroback
Board Member
On filings since 2020
1 hr/week
No compensation reported
Steven Shotz
Board Member
On filings since 2020
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $28K, to Rebecca Hunt Tantala (Executive Di).
Frequently asked questions about National Tay-Sachs and Allied
How large is National Tay-Sachs and Allied?
National Tay-Sachs and Allied reported $1.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $60K.
Where does National Tay-Sachs and Allied operate?
National Tay-Sachs and Allied has awarded grants in Georgia, Pennsylvania.
What is National Tay-Sachs and Allied's EIN?
National Tay-Sachs and Allied's EIN (Employer Identification Number) is 23-1967925. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS May 16, 2022)
- Added Form 990 for fiscal year 2025 (received by the IRS May 11, 2026)
- IRS filings on file for fiscal years 2020–2024
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Browse active grant opportunities in National Tay-Sachs and Allied's focus areas in our free grants database
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