National Leiomyosarcoma Foundation Inc

Foundation · Grantmaker Denver, CO EIN: 14-1834266 Website

A NBSP;QUEST NBSP;FOR NBSP;THE NBSP;CURE NBSP;OF NBSP;LMS NBSP;DISEASE

Key facts about National Leiomyosarcoma Foundation Inc

EIN: 14-1834266
Latest 990 filing: Form 990-PF, 2024
Annual giving (2024): $160,000
Grants made (2024): 4
Average grant: $40,000
Median grant: $50,000
Total assets: $452,766
Primary geography: Michigan (69% of itemized 2024 grant dollars)

Data from IRS Form 990-PF, 2024; updated September 2026.

Who National Leiomyosarcoma Foundation Inc funds

By grant dollars, the top recipient states for National Leiomyosarcoma Foundation Inc's 4 itemized 2024 grants were Michigan (69%) and Massachusetts (31%). The most frequent recipient cities were Ann Arbor, MI (2 grants). None of its 4 grants with a stated purpose were described as general or operating support.

How National Leiomyosarcoma Foundation Inc gives

Giving grew 113% from 2021 to 2024. Method

From the foundation's IRS Form 990-PF filings. Methodology.

Next steps with National Leiomyosarcoma Foundation Inc

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Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$453K

-2.3% YoY

Annual Giving

$160K

-31.9% YoY

Grant Count

+0.0% YoY

Avg Grant Size

$40K

-31.9% YoY

About National Leiomyosarcoma Foundation Inc

Based on IRS filings

National Leiomyosarcoma Foundation Inc is a nonprofit organization focused on Medical Research, based in Denver, CO. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $453K in total assets. In 2024, it awarded 4 grants totaling $160K.

Focus Areas

Medical Research

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Michigan $110K (69%)

Massachusetts $50K (31%)

Share of all 4 itemized 2024 grant dollars.

States

Illinois Massachusetts Maryland Michigan Ohio

Cities

Ann ArborCambridgeAlmaBaltimoreBostonChicagoColumbusLeuven BelgiumSomerville

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$452,766	$463,463	$465,287
Revenue	$181,152	$257,583	$264,822
Expenses	$192,162	$259,406	$134,575
Qualifying Distributions	—	—	—
Net Investment Income	—	—	—
Distributable Amount	—	—	—

Data update history

When this profile's IRS filing data changed on Grantable

March 1, 2026 IRS filings on file for fiscal years 2020–2024

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2024

Grant Size Distribution

16 grants across all recorded years

Open Grants

1 open opportunity from National Leiomyosarcoma Foundation Inc

Foundation

NLMSF Research Funding Program

National Leiomyosarcoma Foundation Inc

Amount

Varies by project ($70,000 - $130,000 based on historical awards)

Deadline

Rolling / Open

Annual

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest recipients include LMS Spore ($50,000), General Hospital Corp ($50,000), Frederic Amant ($50,000).

Recipient	Purpose	Amount
LMS SPORE Ann Arbor, MI	LMS SPORE AWARD	$50,000
GENERAL HOSPITAL CORP Somerville, MA	RESEARCH AWARD-NUCCI	$50,000
FREDERIC AMANT Leuven Belgium, MI	RESEARCH GRANT	$50,000
SASS Ann Arbor, MI	RESEARCH MEETING	$10,000

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

No officer or director reported compensation in the available filings.

From 2024 IRS filing

Name	Title	Hours	Compensation
Annie Achee	President	20	—
Lynn Forges	Treasurer	5	—
Mitchell Achee MD	Assistant Treasurer	20	—
Jim Matthews	Community Awareness	5	—
Chris Hancock	Web It Support	1	—
Jacqueline Sebany	Marketing	1	—
Alex Aguilera	Board Member	1	—
Gregg Lee	Community Outreach	1	—
David Bolles	Board Member	1	—
Marlana Stoddard Hayes	Community Outreach	1	—
Chandalyn Williams	Community Outreach	1	—
Dale Ayscue	Board Member	1	—

Subject Areas

Focus areas based on grantmaking activity

Medical Research

Frequently Asked Questions

What is National Leiomyosarcoma Foundation Inc?

National Leiomyosarcoma Foundation Inc is a nonprofit organization focused on Medical Research, based in Denver, CO. It holds $453K in total assets as of 2024.

How large is National Leiomyosarcoma Foundation Inc?

As of 2024, National Leiomyosarcoma Foundation Inc holds $453K in total assets with $181K in annual revenue. It awarded 4 grants totaling $160K in 2024.

Where does National Leiomyosarcoma Foundation Inc operate?

National Leiomyosarcoma Foundation Inc has awarded grants in Illinois, Massachusetts, Maryland, Michigan, Ohio.

What size grants does National Leiomyosarcoma Foundation Inc award?

In 2024, National Leiomyosarcoma Foundation Inc awarded 4 grants totaling $160K — an average of about $40K per grant, based on its IRS Form 990 filings.

What is National Leiomyosarcoma Foundation Inc's EIN?

National Leiomyosarcoma Foundation Inc's EIN (Employer Identification Number) is 14-1834266. IRS Form 990 filing data is available on this page for 2020–2024.