National Leiomyosarcoma Foundation Inc
A quest for the cure of the lms disease.
National Leiomyosarcoma Foundation Inc at a glance
In short: National Leiomyosarcoma Foundation Inc gave $210K across 6 grants in 2025 (avg $35K), mostly in Michigan. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $210,000
- +31.3% vs 2024
- Grants made (2025)
- 6
- +50.0% vs 2024
- Average grant
- $35,000
- -12.5% vs 2024
- Median grant
- $37,500
- Total assets
- $411,800
- -9.0% vs 2024
- Primary geography
- Michigan (52% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to National Leiomyosarcoma Foundation Inc
Open Grants
1 open opportunity from National Leiomyosarcoma Foundation Inc
Who National Leiomyosarcoma Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Mass General Brigham Inc ($50K). Together the top 6 received $210K.
Grant Size Distribution
18 grants across all recorded years
The most common grant size was under $50K: 8 grants of 18 (44%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
Cities
How National Leiomyosarcoma Foundation Inc gives
- Giving grew 96% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $75K (2021) to $235K (2023). In 2025 it made 6 grants totaling $210K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Mass General Brigham Inc Somerville, ME | Research Grant to Marisa Nucci MD | $50,000 |
| University of CA-Davis Davis, CA | Research Grant for Richard Canter MD | $50,000 |
| Frederic Amant MD PHD Alma, MI | Research Grant to Frederic Amant MD PHD | $50,000 |
| LMS Spore Ann Arbor, MI | Research grant for lms spore scott scheutze md phd | $25,000 |
| Sarc Catalyst Program Ann Arbor, MI | Research grant awarded to everett moding md phd and to maggie zhou md standford university | $25,000 |
| Sarc Alma, MI | Grant Support Strategic Advances in Sarcoma Science | $10,000 |
Ready to take the next step with National Leiomyosarcoma Foundation Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $411,800 | $198,343 | $239,309 | $210,000 | 6 |
| 2024 | $452,766 | $181,152 | $192,162 | $160,000 | 4 |
| 2023 | $463,463 | $257,583 | $259,406 | $235,000 | 4 |
| 2022 | $465,287 | $264,822 | $134,575 | $107,272 | 2 |
| 2021 | $335,041 | $180,436 | $90,478 | $75,167 | 2 |
| 2020 | $245,143 | $129,087 | $122,051 | $110,750 | 4 |
About National Leiomyosarcoma Foundation Inc
Based on IRS filings
National Leiomyosarcoma Foundation Inc is a public charity focused on Medical Research, based in Denver, CO. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $412K in total assets. In 2025, it awarded 6 grants totaling $210K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Leiomyosarcoma Foundation Inc is led by Annie Achee, President on every filing since 2020; none of the 11 officers listed in 2025 report compensation.
Officers on the 2025 filing
Annie Achee
President
On filings since 2020
5 hrs/week
No compensation reported
Jim Matthews
Community Awareness
Board Member → Community Awareness Coordinator, 2022
Community Awareness Coordinator → Community Awareness, 2023
On filings since 2020
5 hrs/week
No compensation reported
Lynn Forges
Treasurer
On filings since 2020
5 hrs/week
No compensation reported
Chandalyn Williams
Board Member
Board Member → Community Outreach, 2022
Community Outreach → Board Member, 2025
On filings since 2021
1 hr/week
No compensation reported
Jacqueline Sebany
Marketing
Board Member → Marketing, 2022
On filings since 2021
1 hr/week
No compensation reported
Mitchell Achee MD
Assistant Treasurer
Assistant Treasurer → Assistant Treasuer, 2023
Assistant Treasuer → Assistant Treasurer, 2024
On filings since 2022
20 hrs/week
No compensation reported
Chris Hancock
Web It Support
On filings since 2023
1 hr/week
No compensation reported
Alex Aguilera
Board Member
On filings since 2024
1 hr/week
No compensation reported
Dale Ayscue
Board Member
On filings since 2024
1 hr/week
No compensation reported
David Bolles
Board Member
On filings since 2024
1 hr/week
No compensation reported
Gregg Lee
Board Member
Community Outreach → Board Member, 2025
On filings since 2024
1 hr/week
No compensation reported
Former officers (14)
- Former: Marlana Stoddard Hayes (2024) — Community Outreach
- Former: Denny Hoh (2021–2023) — Community Outreach
- Former: Greg Lee (2021–2023) — Community Outreach
- Former: Mariana Stoddard (2021–2023) — Community Outreach
- Former: Bruce Kobritz (2022–2023) — Community Outreach
- Former: Christopher Hancock (2021–2022) — Web It Support
- Former: Cynthia Hayes (2021–2022) — Member at Large
- Former: Ed Vigden (2021–2022) — Community Outreach
- Former: Bobby Whitfield (2022) — Community Outreach
- Former: Madeline Wood (2020–2021) — Board Member
- Former: Mitch Achee MD (2020–2021) — Medical Advisory & International Lms Research Roung Table
- Former: Joyce Quitman (2021) — Board Member
- Former: Michele Rothe (2021) — Board Member
- Former: Pamela Randall (2021) — Board Member
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about National Leiomyosarcoma Foundation Inc
How much does National Leiomyosarcoma Foundation Inc give each year?
National Leiomyosarcoma Foundation Inc gave $210K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $160K across 4 grants.
What is National Leiomyosarcoma Foundation Inc's typical grant size?
National Leiomyosarcoma Foundation Inc's median grant in 2025 was $37,500, and its average grant was $35,000, across 6 grants on its 2025 IRS Form 990.
Where does National Leiomyosarcoma Foundation Inc give grants?
National Leiomyosarcoma Foundation Inc gives mostly in Michigan: 52% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Maine (24%) and California (24%). The most frequent recipient cities were Alma, MI (2 grants) and Ann Arbor, MI (2 grants).
Does National Leiomyosarcoma Foundation Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on National Leiomyosarcoma Foundation Inc's 2025 IRS Form 990 were described as general or operating support.
Who are National Leiomyosarcoma Foundation Inc's largest grantees?
National Leiomyosarcoma Foundation Inc's largest 2025 grantees include Mass General Brigham Inc ($50,000), University of CA-Davis ($50,000) and Frederic Amant MD PHD ($50,000), according to its 2025 IRS Form 990. Together they received 71% of its itemized 2025 grant dollars.
How large is National Leiomyosarcoma Foundation Inc?
National Leiomyosarcoma Foundation Inc reported $412K in total assets on its 2025 IRS Form 990. Its revenue that year was $198K.
What is National Leiomyosarcoma Foundation Inc?
National Leiomyosarcoma Foundation Inc is a public charity focused on Medical Research, based in Denver, CO. It holds $412K in total assets as of 2025.
What is National Leiomyosarcoma Foundation Inc's EIN?
National Leiomyosarcoma Foundation Inc's EIN (Employer Identification Number) is 14-1834266. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS May 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 13, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 11, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 16, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 28, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS July 14, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work National Leiomyosarcoma Foundation Inc funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in National Leiomyosarcoma Foundation Inc's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Foundation for Innovative New Diagnostics
The Foundation for Innovative New Diagnostics funds diagnostic-test development, laboratory strengthening and access to testing for poverty-related diseases, with a focus on low- and middle-income countries. Its 2024 grants ranged from about $9,800 to $506,000, with a median of about $40,000. It lists no open calls for partners; whether it accepts unsolicited requests is not stated.
Assets
$51.3M
Grants
10
Total Given
$1.4M
Orthopaedic Trauma Association
Schaumburg, IL
The Orthopaedic Trauma Association funds research, education, and training related to orthopaedic trauma and musculoskeletal injury, with research grants focused on improving treatment and prevention. Its 2024 grants ranged from $10,500 to $79,999, with a median award of $31,666; grants support work in North America, with a separate program for eligible members conducting research outside North America.
Assets
$21.9M
Grants
12
Total Given
$394K
New York Genome Center Inc
New York, NY
The New York Genome Center funds research subawards supporting genomic science and biomedical research, including work in cancer, neurological diseases, and genomics technology. Its 2024 awards ranged from $20,951 to $375,710, with a median of $103,496; most funding went to New York recipients, with additional grants in Maryland, Georgia, New Jersey, and California. The profile does not state whether it accepts unsolicited requests.
Assets
$167.0M
Grants
14
Total Given
$2.1M
Curing Kids Cancer Inc
Irving, TX
Curing Kids Cancer funds pediatric cancer research and treatment development, especially innovative, less toxic therapies and its stated priority areas. Recent awards ranged from $5,720 to $388,000, with a median of $90,000; its current program offers one-year individual awards of $150,000 and collaborative awards up to $300,000. It funds projects in the United States and Canada through eligible Children’s Oncology Group member institutions in North America, and its application page invites physician-scientists to apply.
Assets
$676K
Grants
16
Total Given
$1.8M
Food Allergy Research & Education Inc
McLean, VA
FARE funds food-allergy research, education, and advocacy, with research focused on prevention, diagnosis, treatment, and quality of life. Its 2025 grants had a median award of about $123,000 and went mainly to organizations in Illinois, Ohio, Pennsylvania, California, and Georgia; the profile does not state whether unsolicited requests are accepted.
Assets
$24.2M
Grants
16
Total Given
$4.3M
The Mark Foundation for Cancer Research (US) Ltd
New York, NY
The Mark Foundation for Cancer Research funds basic, translational, and clinical cancer research, including collaborative projects and early-stage drug discovery, at institutions in the U.S. and internationally. Its 2024 grants ranged from $11,250 to $2.75 million, with a median of $500,000; ASPIRE individual applications may be considered by invitation, and no general unsolicited-request policy is stated.
Assets
$105.5M
Grants
29
Total Given
$19.5M
More similar funders
More Funders in Colorado
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from National Leiomyosarcoma Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
National Leiomyosarcoma Foundation Inc down — hundreds of funders to go?