National Brain Tumor Society Inc
The National Brain Tumor Society (NBTS) is a 501(c)(3) nonprofit organization headquartered in Newton, Massachusetts. As the largest patient advocacy nonprofit solely dedicated to the brain tumor community, NBTS functions as a leading thought leader in the neuro-oncology field. The organization employs approximately 70 people and operates with an annual revenue of approximately $11.5 million to $13.3 million.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$17.0M
+6.6% YoY
Annual Giving
$1.6M
-32.2% YoY
Grant Count
9
+50.0% YoY
Avg Grant Size
$178K
-54.8% YoY
Mission & Focus Areas
Mission Statement: National Brain Tumor Society unrelentingly invests in, mobilizes, and unites the community to discover a cure, deliver effective treatments, and advocate for patients and care partners.
Primary Focus Areas:
The organization addresses the significant impact of brain tumors on the American population—approximately 700,000 Americans are living with a primary brain tumor. NBTS recognizes that brain tumors can have life-altering psychological, cognitive, behavioral, and physical effects across all demographics.
The organization operates through several key program areas:
- Research Initiatives: Funding innovative team-science projects designed to translate discoveries into transformative medical breakthroughs for both adults and children with brain tumors
- Defeat Brain Tumors Program: Brings together world-renowned institutions to accelerate research pace through required data sharing and industry partnerships
- NBTS Brain Tumor Investment Fund: Catalyzes the brain tumor biotech and biopharma space by bridging promising academic research into industrial development
- Research Roundtable Program: Convenes stakeholders to address barriers and opportunities in brain tumor treatment development
- Information, Awareness and Remembrance: Provides essential information to patients and care partners from diagnosis through survivorship and end-of-life care
- Advocacy: Works to change public policy to improve the lives and survival of brain tumor patients
Grantmaking
NBTS awards research grants for basic scientific research on brain tumors directed at finding a cure. The organization considers any project with potential to advance basic scientific and translational brain tumor research. Clinical projects are not funded.
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Geographic Focus
Where this funder awards grants
The organization is based in Newton, Massachusetts and operates nationally, funding research and advocacy efforts across the United States.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
Financial Overview (2023):
- Total Assets: $15,961,971
- Total Revenues: $13,349,365
- Total Expenses: $12,250,340
- Organization maintains assets exceeding $10 million
Rating & Accountability: The organization holds a Four-Star rating with a 99% score, reflecting exceptional performance in accountability, finance, impact measurement, leadership, and adaptability. The organization was granted its IRS 501(c)(3) ruling in 1994.
Contact Information:
- Address: 55 Chapel Street, Suite 200, Newton, MA 02458
- Phone: 617-924-9997
- Website: www.braintumor.org
- EIN: 04-3068130
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $17,010,470 | $15,961,971 | $15,423,168 |
| Revenue | $13,202,037 | $13,349,365 | $13,224,585 |
| Expenses | $12,600,569 | $12,250,340 | $10,400,422 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $606,892 | $369,617 | $-18,394 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2024
Grant Size Distribution
49 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Leadership team and compensation from IRS filings
Chief Executive Officer: David Arons, JD
Key Staff:
- Rich Lescarbeau: Chief Financial Officer
- Dorothy M Whalen: Chief Financial Officer
- Bryce Uzzolino: Associate Director, Corporate Partnerships
- Isabella Iaccarino: Associate Director, Special Events
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| EDJAH NDUOM | CHAIR | 2 | — |
| ERICA BIRKE | VICE CHAIR | 1 | — |
| MIL PAREKH | TREASURER | 1 | — |
| LEAH RECHT JD | CLERK | 1 | — |
| RYAN LANG | BOARD MEMBER (UNTIL 9/24) | 1 | — |
| ALLISON BISHOF | BOARD MEMBER | 1 | — |
| DR JOOHEE SUL | BOARD MEMBER | 1 | — |
| CORIE YUTKIN | BOARD MEMBER | 1 | — |
| ADAM HAYDEN | BOARD MEMBER | 1 | — |
| KABIR SETHI | BOARD MEMBER | 1 | — |
| FRANK MACCHIAROLA | BOARD MEMBER | 1 | — |
| CHRIS BROWN | BOARD MEMBER | 1 | — |
| KAREN TURNER | BOARD MEMBER | 1 | — |
| JONATHAN WEINBERG | BOARD MEMBER | 1 | — |
| JIGAR RAYTHATHA | BOARD MEMBER | 1 | — |
| DAVID ARONS | CEO | 40 | $300,444 |
| MARISA PETRILLO | CHIEF PEOPLE OFFICER | 40 | $162,556 |
| KATIE GERMAIN | CHIEF OF MARKETING & COMMUNICATIONS OFFICER | 40 | $176,480 |
| RICHARD LESCARBEAU | VP OF FINANCE (AS OF 3/24) | 40 | $143,208 |
| DOROTHY WHALEN | CHIEF FINANCIAL OFFICER (UNTIL 6/24) | 40 | $98,561 |
| ASHLEY BRENNAN | VICE PRESIDENT, DEVELOPMENT | 40 | $220,534 |
| KIRK TANNER | CHIEF SCIENTIFIC OFFICER | 40 | $234,411 |
| JOHN HIGGINS | MANAGING DIRECTOR, BTIF | 40 | $216,980 |
| ELIZABETH RYU | DIRECTOR OF RESEARCH | 40 | $148,416 |
| GARY HEIMBERG | VP AND COUNSEL, GOVERNMENT RELATIONS | 40 | $130,056 |
| ANNE STAMESHKIN | SENIOR DIRECTOR OF COMMUNICATIONS | 40 | $137,160 |
| NOEL TWIGG | SENIOR DIRECTOR OF DEVELOPMENT | 40 | $127,953 |
Recent News & Activity
Recent developments and announcements
National Brain Tumor Society joined a $4 million collaborative effort to accelerate glioblastoma research
National Brain Tumor Society Joins $4 Million Collaborative Effort to AccelerateOrganization awarded $1 million in new research grants for low-grade glioma projects
National Brain Tumor Society Awards $1 Million In New Research Grants ForNBTS received major grant funding from the Stringer Foundation for research initiatives
National Brain Tumor Society Awards $1 Million In New Research Grants ForMetastatic Brain Tumor Collaborative announced first-ever collaborative grant opportunity focused on CNS metastasis, with NBTS participation
National Brain Tumor Society Joins $4 Million Collaborative Effort to AccelerateOrganization continues to fund groundbreaking discoveries and innovative team-science initiatives through its Defeat Brain Tumors program portfolio
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Data last updated April 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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