Myasthenia Gravis Foundation of America Inc
Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.
Key facts about Myasthenia Gravis Foundation of America Inc
In short: Myasthenia Gravis Foundation of America Inc gave $520K across 3 grants in 2025 (avg $173K), top state District of Columbia. Source: 2025 IRS Form 990.
- EIN
- 13-5672224
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $519,999
- Grants made (2025)
- 3
- Average grant
- $173,333
- Median grant
- $159,999
- Total assets
- $15,271,954
- Primary geography
- District of Columbia (48% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$15.3M
+12.7% YoY
Annual Giving
$520K
-26.8% YoY
Grant Count
3
-62.5% YoY
Avg Grant Size
$173K
+95.3% YoY
How Myasthenia Gravis Foundation of America Inc gives
- Giving fell 34% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Myasthenia Gravis Foundation of America Inc
Based on IRS filings
Myasthenia Gravis Foundation of America Inc is a public charity focused on Medical Research, based in Westborough, MA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $15.3M in total assets. In 2025, it awarded 3 grants totaling $520K. Net investment income was $503K.
Focus Areas
Open Grants
5 open opportunities from Myasthenia Gravis Foundation of America Inc
Clinician Scientist Development Award in Myasthenia Gravis Grant
Myasthenia Gravis Foundation of America Inc
Amount
Up to US $240,000
Deadline
Deadline not published
High Impact Pilot Project Award
Myasthenia Gravis Foundation of America Inc
Amount
$110,000 over 2 years
Deadline
Deadline not published
MGFA High Impact Pilot Project Award Grant
Myasthenia Gravis Foundation of America Inc
Amount
Up to US $110,000
Deadline
Deadline not published
Ready to take the next step with Myasthenia Gravis Foundation of America Inc?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $310K (2020) to $790K (2022). In 2025 it made 3 grants totaling $520K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was George Washington University - MGNet ($250K). Together the top 3 received $520K.
Grant Size Distribution
26 grants across all recorded years
The most common grant size was in the $100–250K range: 12 grants of 26 (46%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| George Washington University - MGNet Washington, DC | "CAPTURE-MG study (Clinical Procedures To Support Research in Myasthenia Gravis) | $250,000 |
| American Brain Foundation Minneapolis, MN | Clinician Scientist Development Award in Myathenia Gravis | $159,999 |
| Boston Children's Hospital Boston, MA | Dissecting genetic determinants of dendritic cell dysfunction in myasthenia gravis | $110,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $15,271,954 | $13,552,735 | $12,011,651 |
| Revenue | $7,559,812 | $5,670,792 | $3,555,325 |
| Expenses | $7,077,785 | $5,078,413 | $3,580,103 |
| Net Investment Income | $502,584 | $469,674 | $389,120 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 16, 2021)
- Added Form 990 for fiscal year 2022 (received by the IRS May 3, 2023)
- Added Form 990 for fiscal year 2025 (received by the IRS April 30, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Myasthenia Gravis Foundation of America Inc is led by Samantha Masterson, Chief Executive Officer on every filing since 2020; 7 of 28 officers listed in 2025 are compensated.
Officers on the 2025 filing
Samantha Masterson
Chief Executive Officer
On filings since 2020
40 hrs/week
$173K (2020) → $330K (2025)
Robert Thomas
Chair
Director → Vice Chair, 2023
Vice Chair → Chair, 2025
On filings since 2022
8 hrs/week
No compensation reported
Daryl Lee
National Director & Finance
On filings since 2023
40 hrs/week
$104K (2023) → $124K (2025)
Genevieve Mvalo
National Director & Programs
New on the 2025 filing
40 hrs/week
$105K (2025)
Katharine Stober
National Director & Academi
New on the 2025 filing
40 hrs/week
$101K (2025)
Brian Gladden
Director
Vice Chair → Chair, 2021
Chair → Director, 2025
On filings since 2020
0.3 hrs/week
No compensation reported
Paul Strumph MD
Director
On filings since 2020
4 hrs/week
No compensation reported
Susan Klinger
Director
On filings since 2020
0.3 hrs/week
No compensation reported
Kevin O'Connor MD
Director
On filings since 2022
4 hrs/week
No compensation reported
Richard J Nowak MD
Director
On filings since 2022
4 hrs/week
No compensation reported
Callum Schjerning
Director
On filings since 2023
4 hrs/week
No compensation reported
Esther Land
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Kelly Gwathmey MD
Director
On filings since 2023
4 hrs/week
No compensation reported
Kyle Sell
Director
On filings since 2023
4 hrs/week
No compensation reported
Marcia Lorimer
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Mark Kalish
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Sam Schuloff
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Ani Maitra
Director
On filings since 2024
4 hrs/week
No compensation reported
Clyde Hosein
Director
On filings since 2024
4 hrs/week
No compensation reported
Erin Harrigan
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Mark Willig
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Todd Fowler
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Wes Caudle
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Craig Stenger
Chief Operating Officer
Vice President, Operations & Strategic Development → Vice President & Operations, 2023
Vice President & Operations → Chief Operating Officer, 2025
On filings since 2021
40 hrs/week
$152K (2021) → $193K (2025)
Michael Antonellis
Vice President, Global Marketing & Communications
Vice President & Global Mar → Vice President & Global Marketing, 2024
Vice President & Global Marketing → Vice President, Global Marketing & Communications, 2025
On filings since 2021
40 hrs/week
$142K (2021) → $173K (2025)
Danielle Kerkovich
Vice President & Global Research
New on the 2025 filing
40 hrs/week
$129K (2025)
Justin Stachtiaris
Treasurer & Vice Chair
Director → Treasurer, 2022
Treasurer → Treasurer & Vice Chair, 2025
On filings since 2021
8 hrs/week
No compensation reported
Adrejia Boutte
Secretary
Director → Secretary, 2023
On filings since 2022
8 hrs/week
No compensation reported
Former officers (29)
- Former: Caroline Gaylor (2022–2024) — National Senior Director of Development
- Former: Merideth O'Conner (2023–2024) — Assistant Vice President & Patient Engagement
- Former: Laura Chandler (2024) — National Director & Academic Affiars
- Former: Tasha Duncan (2024) — National Director & Strategic Parternships
- Former: Jeffrey Pilgrim (2020–2023) — Director
- Former: William Sauerwine (2020–2023) — Vice Chair
- Former: Wendi Huff (2021–2023) — Vice President & Global Individual
- Former: Dova Levin (2022–2023) — National Senior Director
- Former: Sangeeta Sawhney MD (2022–2023) — Director
- Former: Celia Meyer (2020–2022) — Secretary
- Former: Katherine Ruzhansky (2020–2022) — Director
- Former: Kim Eldridge (2020–2022) — Director
- Former: Michael Lifshitz (2020–2022) — Secretary
- Former: Phil Cogan (2020–2022) — Director
- Former: Robert L. Ruff MD PhD (2020–2022) — Director
- Former: Susie Johnson (2020–2022) — Director
- Former: Annette Zampelli (2020–2021) — Director
- Former: Denise Rossi (2020–2021) — Secretary
- Former: Jeffrey Guptill (2020–2021) — Director
- Former: Allan Weiss MD (2020) — Director
- Former: Beth Ulbrich (2020) — Chief Financial Officer
- Former: Charlene Hafer-Macko MD (2020) — Director
- Former: Edward T. Walsh (2020) — Former Chair
- Former: Jurgen Venitz MD PhD (2020) — Director
- Former: Michael Ursic (2020) — Director
- Former: Nancy Law (2020) — Chair & Former Chief Executive Officer
- Former: Samantha Gardner (2020) — Director of Fundraising
- Former: Suzanne Ruff PhD (2020) — Former Secretary
- Former: Tommy Santora (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $330K, to Samantha Masterson (Chief Executive Officer). 7 officers or directors reported compensation on that filing.
Frequently asked questions about Myasthenia Gravis Foundation of America Inc
How much does Myasthenia Gravis Foundation of America Inc give each year?
Myasthenia Gravis Foundation of America Inc gave $520K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $710K across 8 grants.
What is Myasthenia Gravis Foundation of America Inc's typical grant size?
Myasthenia Gravis Foundation of America Inc's median grant in 2025 was $159,999, and its average grant was $173,333, across 3 grants on its 2025 IRS Form 990.
Where does Myasthenia Gravis Foundation of America Inc give grants?
Myasthenia Gravis Foundation of America Inc's top state is District of Columbia, with 48% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Minnesota (31%) and Massachusetts (21%).
Does Myasthenia Gravis Foundation of America Inc give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on Myasthenia Gravis Foundation of America Inc's 2025 IRS Form 990 were described as general or operating support.
How large is Myasthenia Gravis Foundation of America Inc?
Myasthenia Gravis Foundation of America Inc reported $15.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $7.6M.
What is Myasthenia Gravis Foundation of America Inc?
Myasthenia Gravis Foundation of America Inc is a public charity focused on Medical Research, based in Westborough, MA. It holds $15.3M in total assets as of 2025.
What is Myasthenia Gravis Foundation of America Inc's EIN?
Myasthenia Gravis Foundation of America Inc's EIN (Employer Identification Number) is 13-5672224. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Myasthenia Gravis Foundation of America Inc by hand.
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