LuMind IDSC Foundation
To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.
LuMind IDSC Foundation at a glance
- Expenses (2026)
- $541
- -100.0% vs 2025
- Latest 990 filing
- Form 990, 2026 View filing
Data from IRS Form 990, 2026; updated September 2026.
Who LuMind IDSC Foundation funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $100–250K range: 2 grants of 4 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2022, annual grant giving ranged from $447K (2022) to $1.5M (2021). In 2022 it made 4 grants totaling $447K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Rand Corporation Santa Monica, CA | To Support Down Syndrome Medical Info | $170,000 |
| Harvard Unversity Boston, MA | To Support Down Syndrome Medical Info | $150,000 |
| DSC2U Boston, MA | To Support Down Medical Syndrome | $90,000 |
| Advocate Health Resources Downers Grove, IL | To Support Down Syndrome Medical Info | $37,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2026 | — | — | $541 | — | — | — |
| 2025 | $209,267 | $2,759,719 | $3,286,372 | — | — | $33,441 |
| 2024 | $848,403 | $4,039,327 | $3,991,706 | — | — | $12,607 |
| 2023 | $1,258,775 | $3,159,544 | $3,979,523 | — | — | $14,309 |
| 2022 | $2,166,575 | $2,742,364 | $4,726,857 | $447,000 | 4 | $2,465 |
| 2021 | $4,487,214 | $5,267,215 | $3,367,926 | $1,507,000 | 6 | $1,503 |
| 2020 | $2,462,353 | $1,863,831 | $2,570,792 | $702,973 | 6 | — |
About LuMind IDSC Foundation
Based on IRS filings
LuMind IDSC Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC. IRS filing data is available from 2020 through 2026.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
LuMind IDSC Foundation is led by Hampus Hillerstrom, President & CEO on every filing since 2020; none of the 15 officers listed in 2026 report compensation.
Officers on the 2026 filing
Hampus Hillerstrom
President & CEO
On filings since 2020
40 hrs/week
$314K (2020) → $0 (2026)
Anthony Providenti
Board Chair
Member → Board Chair, 2022
On filings since 2020
1 hr/week
No compensation reported
Claudia Moreira
Director
Member → Director, 2022
On filings since 2020
1 hr/week
No compensation reported
Jeff W. Strobel
Director
Member → Director, 2022
On filings since 2020
1 hr/week
No compensation reported
Beverly Paperiello
Director
On filings since 2022
1 hr/week
No compensation reported
Lasandra Brill
Director
On filings since 2023
1 hr/week
No compensation reported
Das Narayandas
Director
On filings since 2024
1 hr/week
No compensation reported
Karen Gaffney
Director
On filings since 2024
1 hr/week
No compensation reported
Ludivine van der Heyden
Director
On filings since 2024
1 hr/week
No compensation reported
Michelle Petronio
Chief Development Officer
On filings since 2020
40 hrs/week
$128K (2020) → $0 (2026)
Katherine O'Neill
Vice President Marketing & Community E
Chief Operating Officer → Vice President Marketing & Community Engagement, 2024
Vice President Marketing & Community Engagement → Vice President Marketing & Community E, 2025
On filings since 2023
40 hrs/week
$94K (2023) → $0 (2026)
Lois Kelly
Vice President of Clinical Operations
On filings since 2024
40 hrs/week
$168K (2024) → $0 (2026)
Hector Guinness
Treasurer
Member → Director, 2022
Director → Treasurer, 2024
On filings since 2020
1 hr/week
No compensation reported
Tony Hung
Board Vice Chair
Vice Chair → Board Vice Chair, 2022
On filings since 2020
1 hr/week
No compensation reported
Chris Senna
Secretary
Director → Secretary, 2024
On filings since 2022
1 hr/week
No compensation reported
Former officers (15)
- Former: Richard A Fisher (2024) — Manager
- Former: Paul Murasko (2020–2023) — Director
- Former: Sohail Masood (2020–2023) — Director
- Former: Angela Britton (2021–2023) — Vice President of Clinical Officer
- Former: Ann Caldwell (2023) — Director
- Former: James Hendrix (2020–2022) — Chief Science Officer
- Former: Patrick Kannan (2020–2022) — Treasurer
- Former: Collette Devitto (2022) — Director
- Former: Bev Paperiello (2020–2021) — Member
- Former: Christopher Lis (2020–2021) — Member
- Former: Maria Dellapina (2020–2021) — Member
- Former: Michael J. Mannor PhD (2020–2021) — Board Chair
- Former: Anula Jayasurya (2020) — Secretary
- Former: Jennifer Smolka (2020) — Member
- Former: Kim Warren (2020) — Member
Data from IRS Form 990 filings, 2020–2026. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $296K, to Hampus Hillerstrom (President and CEO). 4 officers or directors reported compensation on that filing.
Frequently asked questions about LuMind IDSC Foundation
What is LuMind IDSC Foundation?
LuMind IDSC Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC.
Where does LuMind IDSC Foundation operate?
LuMind IDSC Foundation has awarded grants in Arizona, California, Connecticut, Georgia, Illinois, Massachusetts, New York.
What is LuMind IDSC Foundation's EIN?
LuMind IDSC Foundation's EIN (Employer Identification Number) is 37-1483975. IRS Form 990 filing data is available on this page for 2020–2026.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 16, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 4, 2023)
- IRS filings on file for fiscal years 2020–2026
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Browse active grant opportunities in LuMind IDSC Foundation's focus areas in our free grants database
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LuMind IDSC Foundation down — hundreds of funders to go?