LuMind IDSC Foundation logo

LuMind IDSC Foundation

Foundation · Grantmaker Washington, DC EIN: 37-1483975 Website

TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.

Key facts about LuMind IDSC Foundation

EIN
37-1483975
Latest 990 filing
Form 990-PF, 2026

Data from IRS Form 990-PF, 2026; updated September 2026.

Next steps with LuMind IDSC Foundation

Financial Overview

From 2026 IRS Form 990-PF · View filing

Total Assets

—

-100.0% YoY

Revenue

—

-100.0% YoY

Net Investment Income

—

-100.0% YoY

Expenses

$541

-100.0% YoY

About LuMind IDSC Foundation

Based on IRS filings

LuMind IDSC Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC. IRS filing data is available from 2020 through 2026.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Cities

BostonDowners GroveAtlantaBurlingtonFramingtonNew YorkSanta Monica

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$3M$4M$6M2020202120222023202420252026
Metric202620252024
Total Assets—$209,267$848,403
Revenue—$2,759,719$4,039,327
Expenses$541$3,286,372$3,991,706
Qualifying Distributions———
Net Investment Income—$33,441$12,607
Distributable Amount———

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2022 (received by the IRS August 4, 2023)
  2. IRS filings on file for fiscal years 2020–2026

Giving Over Time

Total grant dollars and number of grants per year

$0$377K$754K$1M$2M0 grants20206 grants20214 grants20220 grants20230 grants20240 grants20250 grants2026

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2026

Grant Size Distribution

4 grants across all recorded years

1<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for 2026.

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2025 IRS filing

Hampus Hillerstrom — President and CEO: $296KHampus HillerstromPresident and CEO$296KLois Kelly — VP of Clinical Operations: $236KLois KellyVP of Clinical Operations$236KMichelle Petronio — Chief Development Officer: $172KMichelle PetronioChief Development Officer$172KKatherine O'Neill — VP Marketing & Community E: $108KKatherine O'NeillVP Marketing & Community E$108K

From 2026 IRS filing

NameTitleHoursCompensation
Anthony ProvidentiBoard Chair1—
Tony HungBoard Vice Chair1—
Hector GuinnessTreasurer1—
Chris SennaSecretary1—
Beverly PaperielloDirector1—
Claudia MoreiraDirector1—
Das NarayandasDirector1—
Jeff StrobelDirector1—
Karen GaffneyDirector1—
Lasandra BrillDirector1—
Ludivine van der HeydenDirector1—
Hampus HillerstromPresident and CEO40—
Katherine O'NeillVP Marketing & Community E40—
Lois KellyVP of Clinical Operations40—
Michelle PetronioChief Development Officer40—

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is LuMind IDSC Foundation?

LuMind IDSC Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Washington, DC. It holds — in total assets as of 2026.

Where does LuMind IDSC Foundation operate?

LuMind IDSC Foundation has awarded grants in California, Connecticut, Georgia, Illinois, Massachusetts, New York.

What is LuMind IDSC Foundation's EIN?

LuMind IDSC Foundation's EIN (Employer Identification Number) is 37-1483975. IRS Form 990 filing data is available on this page for 2020–2026.

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Data last updated September 2026. Sourced from IRS Form 990-PF filings.

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