Kabuki Syndrome Foundation
TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.3M
+12.2% YoY
Annual Giving
$239K
+2.5% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$80K
-31.7% YoY
About Kabuki Syndrome Foundation
Based on IRS filings
Kabuki Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORTHBROOK, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.3M in total assets. In 2024, it awarded 3 grants totaling $239K. Net investment income was $54K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,302,196 | $2,051,432 | $482,449 |
| Revenue | $1,238,474 | $2,062,718 | $362,899 |
| Expenses | $928,828 | $600,490 | $236,797 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $53,858 | $5,250 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
6 open opportunities from Kabuki Syndrome Foundation
Ad Hoc Research Funding / Letter of Intent (LOI) Program
KABUKI SYNDROME FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Discovery Grant
KABUKI SYNDROME FOUNDATION
Amount
$150,000
Deadline
Rolling / Open
Recent Ad Hoc Grant: Identifying new treatments for Kabuki syndrome type 2
KABUKI SYNDROME FOUNDATION
Amount
$66,500
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ANNIE DEAN | CO-PRESIDENT | 1 | — |
| JILL ORUM DUNBAR | CO-PRESIDENT | 1 | — |
| PATRICK DUNBAR | TREASURER | 1 | — |
| THOMAS CINGARI JR | VICE PRESIDENT | 1 | — |
| EDOARDO ZEGNA DI MONTE RUBELLO | VICE PRESIDENT | 1 | — |
| LEILA ZEGNA DI MONTE RUBELLO | VICE PRESIDENT | 1 | — |
| JESSICA MCANDREW | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Kabuki Syndrome Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities