Kabuki Syndrome Foundation
TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.3M
+12.2% YoY
Annual Giving
$239K
+2.5% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$80K
-31.7% YoY
About Kabuki Syndrome Foundation
Based on IRS filings
Kabuki Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORTHBROOK, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.3M in total assets. In 2024, it awarded 3 grants totaling $239K. Net investment income was $54K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,302,196 | $2,051,432 | $482,449 |
| Revenue | $1,238,474 | $2,062,718 | $362,899 |
| Expenses | $928,828 | $600,490 | $236,797 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $53,858 | $5,250 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
6 open opportunities from Kabuki Syndrome Foundation
Ad Hoc Research Funding / Letter of Intent (LOI) Program
KABUKI SYNDROME FOUNDATION
Amount
Varies
Deadline
Rolling / Open
Discovery Grant
KABUKI SYNDROME FOUNDATION
Amount
$150,000
Deadline
Rolling / Open
Recent Ad Hoc Grant: Identifying new treatments for Kabuki syndrome type 2
KABUKI SYNDROME FOUNDATION
Amount
$66,500
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Kennedy Krieger Institute ($109,290), Boston Childrens Hospital ($101,378), Seattle Children's Hospital ($28,725).
| Recipient | Purpose | Amount |
|---|---|---|
| BOSTON CHILDRENS HOSPITAL BOSTON, MA | KABUKI SYNDROME RESEARCH | $101,378 |
| KENNEDY KRIEGER INSTITUTE BALTIMORE, MD | KABUKI SYNDROME RESEARCH | $109,290 |
| SEATTLE CHILDREN'S HOSPITAL SEATTLE, WA | KABUKI SYNDROME RESEARCH | $28,725 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ANNIE DEAN | CO-PRESIDENT | 1 | — |
| JILL ORUM DUNBAR | CO-PRESIDENT | 1 | — |
| PATRICK DUNBAR | TREASURER | 1 | — |
| THOMAS CINGARI JR | VICE PRESIDENT | 1 | — |
| EDOARDO ZEGNA DI MONTE RUBELLO | VICE PRESIDENT | 1 | — |
| LEILA ZEGNA DI MONTE RUBELLO | VICE PRESIDENT | 1 | — |
| JESSICA MCANDREW | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Kabuki Syndrome Foundation?
Kabuki Syndrome Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORTHBROOK, IL. It holds $2.3M in total assets as of 2024.
How large is Kabuki Syndrome Foundation?
As of 2024, Kabuki Syndrome Foundation holds $2.3M in total assets with $1.2M in annual revenue. It awarded 3 grants totaling $239K in 2024.
Where does Kabuki Syndrome Foundation operate?
Kabuki Syndrome Foundation has awarded grants in Massachusetts, Maryland, Washington.
What size grants does Kabuki Syndrome Foundation award?
In 2024, Kabuki Syndrome Foundation awarded 3 grants totaling $239K — an average of about $80K per grant, based on its IRS Form 990 filings.
What is Kabuki Syndrome Foundation's EIN?
Kabuki Syndrome Foundation's EIN (Employer Identification Number) is 82-5401904. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Kabuki Syndrome Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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