Hypersomnia Foundation Inc
The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders.
Hypersomnia Foundation Inc at a glance
In short: Hypersomnia Foundation Inc reported $125K in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.
- Grants paid (2024)
- $124,993 — reported as a total on the IRS filing, without an itemized list
- +150.0% vs 2023
- Total assets
- $1,313,136
- +15.6% vs 2023
- Revenue (2024)
- $878,790
- -4.2% vs 2023
- Net investment income (2024)
- $51,133
- +82.1% vs 2023
- Expenses (2024)
- $870,899
- +18.6% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Hypersomnia Foundation Inc funds
How this funder distributes its grants
Grant Size Distribution
3 grants across all recorded years
The most common grant size was in the $50–100K range: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $5K (2019) to $125K (2024). In 2024 it reported $125K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| AASM Foundation Darien, IL | — | $62,500 |
| Amsterdam UMC Location Vrije | — | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,313,136 | $878,790 | $870,899 | $124,993 | Total only | $51,133 |
| 2023 | $1,136,103 | $917,170 | $734,484 | $50,000 | Total only | $28,083 |
| 2022 | $954,600 | $581,920 | $484,985 | $112,500 | 2 | $350 |
| 2021 | $852,649 | $488,424 | $131,240 | $25,000 | 1 | $303 |
| 2020 | $495,463 | $192,937 | $108,580 | $7,500 | Total only | $242 |
| 2019 | $411,070 | $251,928 | $207,808 | $5,000 | Total only | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Hypersomnia Foundation Inc
Based on IRS filings
Hypersomnia Foundation Inc is a public charity focused on Education, based in Atlanta, GA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $1.3M in total assets. In 2024, it reported $125K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $51K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hypersomnia Foundation Inc is led by Michael Sparace, Chairman since 2024 (on filings since 2021); none of the 7 officers listed in 2024 report compensation.
Officers on the 2024 filing
Michael Sparace
Chairman
Director → Board Member, 2022
Board Member → Chairman, 2024
On filings since 2021
4 hrs/week
No compensation reported
Rebecca King
Secretary
Director → Secretary, 2022
On filings since 2019
10 hrs/week
No compensation reported
Anjel Burgess
Board Member
Director → Board Member, 2022
On filings since 2020
4 hrs/week
No compensation reported
Veronica Moore
Board Member
Director → Board Member, 2022
On filings since 2021
4 hrs/week
No compensation reported
Andrew Powell
Board Member
On filings since 2023
10 hrs/week
No compensation reported
Diana Kimmel
Board Member
On filings since 2023
4 hrs/week
No compensation reported
Ed Stepanski
Board Member
On filings since 2023
4 hrs/week
No compensation reported
Former officers (15)
- Former: David Burley (2020–2023) — Chairman
- Former: Bob Ambrefe (2023) — Board Member
- Former: Amy Harden Desmarais (2019–2022) — CFO
- Former: Diane Powell (2019–2022) — Former Chair
- Former: Elizabeth Betsy Ashcraft (2019–2022) — Board Member
- Former: Michelle Emrich (2019–2022) — Board Member
- Former: Sarah Beazley (2019–2022) — Board Member
- Former: Chip Wernig (2021–2022) — Board Member
- Former: Claire C Crisp (2022) — CEO
- Former: Darrel Drobnich (2022) — CEO
- Former: Lindsay Jesteadt (2022) — COO
- Former: Mary King (2019–2021) — Director
- Former: Stephanie Wells Walper (2020–2021) — Executive Director
- Former: Catherine Page-Rye (2019) — Treasurer
- Former: Lisa Laribee (2019) — Director
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Hypersomnia Foundation Inc
How much does Hypersomnia Foundation Inc give each year?
Hypersomnia Foundation Inc reported $125K in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it reported $50K in grants paid.
How large is Hypersomnia Foundation Inc?
Hypersomnia Foundation Inc reported $1.3M in total assets on its 2024 IRS Form 990. Its revenue that year was $879K.
What is Hypersomnia Foundation Inc?
Hypersomnia Foundation Inc is a public charity focused on Education, based in Atlanta, GA. It holds $1.3M in total assets as of 2024.
Where does Hypersomnia Foundation Inc operate?
Hypersomnia Foundation Inc has awarded grants in Illinois.
What is Hypersomnia Foundation Inc's EIN?
Hypersomnia Foundation Inc's EIN (Employer Identification Number) is 46-4162735. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS March 20, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS May 14, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS July 1, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 19, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 28, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 18, 2025)
- IRS filings on file for fiscal years 2020–2024
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