Hidradenitis Suppurativa Foundation Inc
The mission of the hs foundation is to improve the lives of people affected by hs through advocacy, education and research.
Hidradenitis Suppurativa Foundation Inc at a glance
In short: Hidradenitis Suppurativa Foundation Inc gave $345K across 8 grants in 2024 (avg $43K), top state Florida. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $345,000
- +19.2% vs 2023
- Grants made (2024)
- 8
- +0.0% vs 2023
- Average grant
- $43,125
- +19.2% vs 2023
- Median grant
- $30,000
- Total assets
- $2,109,589
- +66.3% vs 2023
- Primary geography
- Florida (28% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Hidradenitis Suppurativa Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
The largest 2024 recipient was University of Miami ($95K). Together the top 8 received $345K.
Grant Size Distribution
16 grants across all recorded years
The most common grant size was under $50K: 11 grants of 16 (69%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 8 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2024, annual grant giving ranged from $289K (2023) to $345K (2024). In 2024 it made 8 grants totaling $345K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Miami Coral Gables, FL | Grant funding provided to researchers and institutions to support their research advances in hs. | $95,000 |
| The Regents of the University of California Oakland, CA | Grant funding provided to researchers and institutions to support their research advances in hs. | $75,000 |
| Dermatology Foundation Evanston, IL | Grant funding provided to researchers and institutions to support their research advances in hs. | $55,000 |
| American Academy of Dermatology Rosemont, IL | Grant funding provided to researchers and institutions to support their research advances in hs. | $40,000 |
| Yale University New Haven, CT | Grant funding provided to researchers and institutions to support their research advances in hs. | $20,000 |
| Stanford University School of Medicine Stanford, CA | Grant funding provided to researchers and institutions to support their research advances in hs. | $20,000 |
| Beth Israel Deaconess Medical Center Inc Boston, MA | Grant funding provided to researchers and institutions to support their research advances in hs. | $20,000 |
| Children's Research Institute Raleigh, NC | Grant funding provided to researchers and institutions to support their research advances in hs. | $20,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,109,589 | $1,803,205 | $1,349,348 | $345,000 | 8 | $42,861 |
| 2023 | $1,268,561 | $1,078,743 | $1,245,076 | $289,384 | 8 | $27,263 |
About Hidradenitis Suppurativa Foundation Inc
Based on IRS filings
Hidradenitis Suppurativa Foundation Inc is a public charity focused on Human Services, based in Cary, NC. IRS filing data is available from 2023 through 2024. As of 2024, the organization holds $2.1M in total assets. In 2024, it awarded 8 grants totaling $345K. Net investment income was $43K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hidradenitis Suppurativa Foundation Inc is led by Brent Hazelett, Chief Executive Officer since 2024 (on filings since 2023); 1 of 20 officers listed in 2024 is compensated.
Officers on the 2024 filing
Brent Hazelett
Chief Executive Officer
Cheif Exective Officer → Chief Executive Officer, 2024
On filings since 2023
45 hrs/week
$211K (2023) → $234K (2024)
Hadar Lev-Tov MD
President
Vice President → President, 2024
On filings since 2023
3 hrs/week
No compensation reported
Afsaneh Alavi MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Amit Garg MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Athena Gierbolini
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Barry Resnik MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Donna Atherton
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Ginette Okoye MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Jennifer Hsiao MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Michelle Lowes Mbbs PhD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Stephanie Goldberg MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Steven Daveluy MD
Director
On filings since 2023
0.5 hrs/week
No compensation reported
Colleen Cotton MD
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Lauren Orenstein MD
Director
New on the 2024 filing
0.5 hrs/week
No compensation reported
Christopher Sayed MD
Secretary
Director → Secretary, 2024
On filings since 2023
1 hr/week
No compensation reported
Haley Naik MD
Vice President
Director → Vice President, 2024
On filings since 2023
1 hr/week
No compensation reported
Iltefat Hamzavi MD
Immediate Past President
On filings since 2023
0.5 hrs/week
No compensation reported
Joslyn R. Sciacca Kirby MD
Past President
President → Past President, 2024
On filings since 2023
0.5 hrs/week
No compensation reported
Martin Okun MD
Past Secretary
Secretary → Past Secretary, 2024
On filings since 2023
0.5 hrs/week
No compensation reported
Vivian Shi MD
Treasurer
On filings since 2023
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2023–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $234K, to Brent Hazelett (Chief Executive Officer).
Frequently asked questions about Hidradenitis Suppurativa Foundation Inc
How much does Hidradenitis Suppurativa Foundation Inc give each year?
Hidradenitis Suppurativa Foundation Inc gave $345K across 8 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $289K across 8 grants.
What is Hidradenitis Suppurativa Foundation Inc's typical grant size?
Hidradenitis Suppurativa Foundation Inc's median grant in 2024 was $30,000, and its average grant was $43,125, across 8 grants on its 2024 IRS Form 990.
Where does Hidradenitis Suppurativa Foundation Inc give grants?
Hidradenitis Suppurativa Foundation Inc's top state is Florida, with 28% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Illinois (28%) and California (28%).
Does Hidradenitis Suppurativa Foundation Inc give general operating support?
Not in 2024: none of the 8 grants with a stated purpose on Hidradenitis Suppurativa Foundation Inc's 2024 IRS Form 990 were described as general or operating support.
Who are Hidradenitis Suppurativa Foundation Inc's largest grantees?
Hidradenitis Suppurativa Foundation Inc's largest 2024 grantees include University of Miami ($95,000), The Regents of the University of California ($75,000) and Dermatology Foundation ($55,000), according to its 2024 IRS Form 990. Together they received 65% of its itemized 2024 grant dollars.
How large is Hidradenitis Suppurativa Foundation Inc?
Hidradenitis Suppurativa Foundation Inc reported $2.1M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.8M.
What is Hidradenitis Suppurativa Foundation Inc?
Hidradenitis Suppurativa Foundation Inc is a public charity focused on Human Services, based in Cary, NC. It holds $2.1M in total assets as of 2024.
What is Hidradenitis Suppurativa Foundation Inc's EIN?
Hidradenitis Suppurativa Foundation Inc's EIN (Employer Identification Number) is 92-0598936. IRS Form 990 filing data is available on this page for 2023–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS September 12, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 11, 2025)
- IRS filings on file for fiscal years 2023–2024
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