Hairy Cell Leukemia Foundation
The Hairy Cell Leukemia Foundation is dedicated to improving outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as by providing educational resources and comfort to all those affected by hairy cell leukemia.
Hairy Cell Leukemia Foundation at a glance
In short: Hairy Cell Leukemia Foundation gave $719K across 6 grants in 2025 (avg $120K), top state California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $718,889
- -20.7% vs 2024
- Grants made (2025)
- 6
- +50.0% vs 2024
- Average grant
- $119,815
- -47.1% vs 2024
- Median grant
- $156,710
- Total assets
- $4,521,348
- -7.9% vs 2024
- Primary geography
- California (26% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Hairy Cell Leukemia Foundation funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was University of California San Diego ($188K). Together the top 6 received $719K.
Grant Size Distribution
25 grants across all recorded years
The most common grant size was in the $100–250K range: 10 grants of 25 (40%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
Cities
How Hairy Cell Leukemia Foundation gives
- Giving held roughly steady from 2022 to 2025 (−19%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $318K (2020) to $906K (2024). In 2025 it made 6 grants totaling $719K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of California San Diego La Jolla, CA | Research Grant | $187,500 |
| University of Pennsylvania Perelman School of Medicine Philadelphia, PA | Research Grant | $187,500 |
| The Ohio State University Columbus, OH | Registry Management Grant | $157,169 |
| Memorial Sloan Kettering Institute for Cancer Research New York, NY | Research Grant | $156,250 |
| University of Rochester Rochester, NY | Registry Management Grant | $17,881 |
| Mayo Clinic Rochester, MN | Registry Management Grant | $12,589 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,521,348 | $1,112,293 | $1,502,176 | $718,889 | 6 | $187,108 |
| 2024 | $4,910,812 | $2,774,852 | $1,793,128 | $906,250 | 4 | $197,131 |
| 2023 | $3,928,090 | $2,473,634 | $1,302,800 | $395,000 | 4 | $125,170 |
| 2022 | $2,739,152 | $2,239,613 | $1,773,275 | $882,500 | 6 | $19,147 |
| 2021 | $2,260,828 | $2,372,436 | $716,677 | $437,088 | 5 | $533 |
| 2020 | $602,186 | $738,593 | $586,758 | $317,524 | 3 | $1,423 |
| 2019 | $450,351 | $1,263,826 | $991,285 | $456,226 | 4 | $2,847 |
About Hairy Cell Leukemia Foundation
Based on IRS filings
Hairy Cell Leukemia Foundation is a public charity, based in San Francisco, CA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $4.5M in total assets. In 2025, it awarded 6 grants totaling $719K. Net investment income was $187K.
Leadership & Key People
Officers and directors from IRS filings
Hairy Cell Leukemia Foundation is led by Anna Lambertson, Executive Director on every filing since 2019; 1 of 13 officers listed in 2025 is compensated.
Officers on the 2025 filing
Anna Lambertson
Executive Director
On filings since 2019
40 hrs/week
$108K (2019) → $159K (2025)
Keith Markbreiter
President
Director → President, 2022
On filings since 2019
6 hrs/week
No compensation reported
Adi Weber
Vice President
Secretary → Vice President, 2022
On filings since 2019
1.5 hrs/week
No compensation reported
Brian Friedman
Board Member
Vice President → Board Member, 2022
On filings since 2019
1 hr/week
No compensation reported
Kirk Zachary
Board Member
Director → Board Member, 2022
On filings since 2019
1.3 hrs/week
No compensation reported
Marc Stadtmauer
Board Member
President → Secretary, 2022
Secretary → Board Member, 2025
On filings since 2019
2 hrs/week
No compensation reported
Michael Margolin
Vice President
On filings since 2019
1 hr/week
No compensation reported
Scott Svoboda
Secretary
Director → Board Member, 2022
Board Member → Secretary, 2025
On filings since 2019
1.5 hrs/week
No compensation reported
Tim Maher
Board Member
Director → Board Member, 2022
On filings since 2019
1 hr/week
No compensation reported
Ken Jensen
Treasurer
On filings since 2022
5 hrs/week
No compensation reported
Sarah Naperala
Board Member
On filings since 2024
1.5 hrs/week
No compensation reported
Kurt Tenenbaum
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Robert Patrick
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (2)
- Former: Bobby Patrick (2023–2024) — Board Member
- Former: Kenneth Jensen (2019–2021) — Treasurer
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $159K, to Anna Lambertson (Executive Director).
Frequently asked questions about Hairy Cell Leukemia Foundation
How much does Hairy Cell Leukemia Foundation give each year?
Hairy Cell Leukemia Foundation gave $719K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $906K across 4 grants.
What is Hairy Cell Leukemia Foundation's typical grant size?
Hairy Cell Leukemia Foundation's median grant in 2025 was $156,710, and its average grant was $119,815, across 6 grants on its 2025 IRS Form 990.
Where does Hairy Cell Leukemia Foundation give grants?
Hairy Cell Leukemia Foundation's top state is California, with 26% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Pennsylvania (26%) and New York (24%).
Does Hairy Cell Leukemia Foundation give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Hairy Cell Leukemia Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research Grant" (3 grants) and "Registry Management Grant" (3 grants).
Who are Hairy Cell Leukemia Foundation's largest grantees?
Hairy Cell Leukemia Foundation's largest 2025 grantees include University of California San Diego ($187,500), University of Pennsylvania Perelman School of Medicine ($187,500) and The Ohio State University ($157,169), according to its 2025 IRS Form 990. Together they received 74% of its itemized 2025 grant dollars.
How large is Hairy Cell Leukemia Foundation?
Hairy Cell Leukemia Foundation reported $4.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.1M.
What is Hairy Cell Leukemia Foundation's EIN?
Hairy Cell Leukemia Foundation's EIN (Employer Identification Number) is 36-3327001. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 25, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 1, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 13, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 13, 2025)
- Updated Form 990 for fiscal year 2019 (received by the IRS August 31, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS May 13, 2026)
- IRS filings on file for fiscal years 2019–2024
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