Great Lakes Hemophilia Foundation Inc
Great Lakes Hemophilia Foundation Inc. is a public charity based in Elm Grove, Wisconsin, that supports people and families affected by bleeding disorders. Its work includes education, advocacy, patient services, and coordinating a regional network of Hemophilia Treatment Centers.
Key facts about Great Lakes Hemophilia Foundation Inc
In short: Great Lakes Hemophilia Foundation Inc gave $515K across 13 grants in 2025 (avg $40K), top state Illinois. 0% of 2025 grantees were new. Source: 2025 IRS Form 990.
- EIN
- 23-7367636
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $515,330
- Grants made (2025)
- 13
- Average grant
- $39,641
- Median grant
- $39,415
- New grantees (estimate)
- 0% first-time grantees (0 of 13, 2025; small sample)
- Total assets
- $3,017,695
- Primary geography
- Illinois (35% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$3.0M
-1.7% YoY
Annual Giving
$515K
-11.0% YoY
Grant Count
13
+0.0% YoY
Avg Grant Size
$40K
-11.0% YoY
Is Great Lakes Hemophilia Foundation Inc open to new grantees?
0%
first-time grantees, 2025
In 2025, 0 of 13 grantees (0%) were first-time recipients. With only 13 grantees, that is a small sample: one grantee more or less moves the share by about 8 points. How we count
- 100% of 2025 grantees were also funded in 2024. Method
- Giving held roughly steady from 2022 to 2025 (−17%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Mission & Focus Areas
The foundation’s mission is “to educate, support and advocate for the bleeding disorders community of Wisconsin.” Its programs include advocacy, camps, community events, financial assistance, and scholarships. Its Patient Financial Assistance program helps eligible individuals and families with insurance premiums, medical bills, emergency basic living expenses, and medical ID jewelry. The website also describes scholarships, camperships, and travel support for advocacy activities; these are participant supports, not grants to outside organizations.
As Regional Core Center, the foundation coordinates and supports Hemophilia Treatment Centers, including work on comprehensive care, professional education and training, and health-outcome surveillance. Its 2025 grants supported outreach and care through the treatment-center network, as well as surveillance and research to prevent complications.
Grantmaking
In filing year 2025, the foundation reported 13 grants totaling $515,330. Grant amounts ranged from $12,445 to $68,476, with a median of $39,415. The listed recipients include:
The grantees’ stated missions illustrate the kinds of organizations supported. Versiti describes itself as a blood-health innovator working in discovery, diagnosis, and treatment; Rush University Medical Center describes its mission as improving health through patient care, education, research, and community partnerships. Fairview Health Services says it is driven to heal, discover, and educate, while Northwestern University describes commitments to teaching, research, and student growth. Mayo Clinic says its mission is to contribute to health and well-being through integrated care, education, and research. Gundersen Lutheran Medical Foundation describes its mission as improving lives through medical education, research, outreach, and philanthropic support.
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Geographic Focus
Where this funder awards grants
The foundation’s mission centers on Wisconsin’s bleeding disorders community. Its 2025 grant dollars went to recipients in Illinois (35%), Wisconsin (34%), Minnesota (23%), North Dakota (6%), and South Dakota (2%). Its Regional Core Center role covers a 13-center network in those five states.
Grant Distribution by State
Share of 2025 grant dollars across all 13 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $515K (2025) to $633K (2023). In 2025 it made 13 grants totaling $515K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Versiti Wisconsin Inc ($68K). Together the top 10 received $456K.
Grant Size Distribution
67 grants across all recorded years
The most common grant size was under $50K: 42 grants of 67 (63%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Versiti Wisconsin Inc Wauwatosa, WI | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $68,476 |
| Rush University Medical Center Chicago, IL | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $58,580 |
| Fairview Health Services Minneapolis, MN | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $53,322 |
| The Bleeding and Clotting Disorders Institute Peoria, IL | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $47,099 |
| Hemophilia Outreach of Wisconsin Inc Green Bay, WI | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $46,094 |
| University of Wisconsin Hospitals and Clinics Authority Madison, WI | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $41,227 |
| Northwestern University Chicago, IL | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $39,415 |
| Children's Minnesota Minneapolis, MN | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $37,389 |
| Ann & Robert H Lurie Childrens Hospital of Chicago Chicago, IL | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $36,488 |
| Sanford Medical Center Fargo Fargo, ND | To provide outreach and care through the hemophilia treatment center network and conduct surveillance and research to prevent complications. | $28,386 |
Financial History
Multi-year comparison from IRS filings
| Filing year | Assets | Revenue | Expenses | Grants |
|---|---|---|---|---|
| 2025 | $3,017,695 | $1,668,508 | $1,474,184 | $515,330 |
| 2024 | $3,069,458 | $1,475,801 | $1,545,444 | $579,072 |
| 2023 | $2,466,633 | $1,557,533 | $1,532,624 | $632,930 |
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $3,017,695 | $3,069,458 | $2,466,633 |
| Revenue | $1,668,508 | $1,475,801 | $1,557,533 |
| Expenses | $1,474,184 | $1,545,444 | $1,532,624 |
| Net Investment Income | $255,988 | $90,370 | $64,889 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 13, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 11, 2025)
- Added Form 990 for fiscal year 2019 (received by the IRS August 14, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS August 13, 2026)
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Dave Amoroso as president; Joshua Welsh as president through October 2025; Bruce Carter as vice president; Dustin Van Peursem as treasurer; and David Peterson as secretary. It also lists directors Bob Montgomery, Beverly Peterson, and Liz Ropella. Michelle Borreson and Tracie Fechter are listed as directors through October 2025.
Great Lakes Hemophilia Foundation Inc is led by Danielle Leitner Baxter, Executive Director on every filing since 2019; 1 of 11 officers listed in 2025 is compensated.
Officers on the 2025 filing
Danielle Leitner Baxter
Executive Director
On filings since 2019
40 hrs/week
$139K (2020) → $162K (2025)
Joshua Welsh
President
Director → Vice President, 2020
Vice President → President, 2022
On filings since 2019
0.3 hrs/week
No compensation reported
Dave Amoroso
President
Director → Vice President, 2024
Vice President → President, 2025
On filings since 2021
0.3 hrs/week
No compensation reported
Beverly Peterson
Director
Director → Vice President, 2022
Vice President → Director, 2024
On filings since 2019
0.3 hrs/week
No compensation reported
Tracie Fechter
Director
On filings since 2019
0.3 hrs/week
No compensation reported
Michelle Borreson
Director
On filings since 2021
0.3 hrs/week
No compensation reported
Bob Montgomery
Director
On filings since 2024
0.3 hrs/week
No compensation reported
Liz Ropella
Director
New on the 2025 filing
0.3 hrs/week
No compensation reported
Dustin Van Peursem
Treasurer
Director → Treasurer, 2021
On filings since 2020
0.3 hrs/week
No compensation reported
Bruce Carter
Vice President
Director → Secretary, 2024
Secretary → Vice President, 2025
On filings since 2021
0.3 hrs/week
No compensation reported
David Peterson
Secretary
Director → Secretary, 2025
On filings since 2023
0.3 hrs/week
No compensation reported
Former officers (8)
- Former: Andy Barragry (2019–2023) — Secretary
- Former: Debra Weiner (2019–2023) — President
- Former: Gilbert White (2019–2023) — Director
- Former: Robert R. Montgomery (2019–2023) — Director
- Former: Peter Fisher (2019–2022) — Director
- Former: Miguel A. Mireles (2019–2020) — Treasurer
- Former: Anne Nagy (2019) — Director
- Former: Tom Boudreau (2019) — Vice President
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $162K, to Danielle Leitner Baxter (Executive Director).
Contact
Mailing address: 12700 W Bluemound Rd 130, Elm Grove, WI 53122
Phone: (414) 257-0200
Website: https://glhf.org
Frequently asked questions about Great Lakes Hemophilia Foundation Inc
How much does Great Lakes Hemophilia Foundation Inc give each year?
Great Lakes Hemophilia Foundation Inc gave $515K across 13 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $579K across 13 grants.
What is Great Lakes Hemophilia Foundation Inc's typical grant size?
Great Lakes Hemophilia Foundation Inc's median grant in 2025 was $39,415, and its average grant was $39,641, across 13 grants on its 2025 IRS Form 990.
Where does Great Lakes Hemophilia Foundation Inc give grants?
Great Lakes Hemophilia Foundation Inc's top state is Illinois, with 35% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Wisconsin (34%) and Minnesota (23%). The most frequent recipient cities were Chicago, IL (3 grants) and Minneapolis, MN (2 grants).
Does Great Lakes Hemophilia Foundation Inc give general operating support?
Not in 2025: none of the 13 grants with a stated purpose on Great Lakes Hemophilia Foundation Inc's 2025 IRS Form 990 were described as general or operating support.
Who are Great Lakes Hemophilia Foundation Inc's largest grantees?
Great Lakes Hemophilia Foundation Inc's largest 2025 grantees include Versiti Wisconsin Inc ($68,476), Rush University Medical Center ($58,580) and Fairview Health Services ($53,322), according to its 2025 IRS Form 990. Together they received 35% of its itemized 2025 grant dollars.
How large is Great Lakes Hemophilia Foundation Inc?
Great Lakes Hemophilia Foundation Inc reported $3.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.7M.
What does Great Lakes Hemophilia Foundation Inc fund?
The foundation’s mission is “to educate, support and advocate for the bleeding disorders community of Wisconsin.” Its programs include advocacy, camps, community events, financial assistance, and scholarships. See mission & focus areas ↑
How do I apply for a grant from Great Lakes Hemophilia Foundation Inc?
Great Lakes Hemophilia Foundation Inc has no public application process in the sources Grantable reviewed. Check glhf.org for current guidelines, or contact the foundation directly before submitting a request.
What is Great Lakes Hemophilia Foundation Inc's EIN?
Great Lakes Hemophilia Foundation Inc's EIN (Employer Identification Number) is 23-7367636. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
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