Fanconi Cancer Foundation
Fanconi Cancer Foundation (FCF), based in Eugene, Oregon, is a public charity that funds research and supports people affected by Fanconi anemia (FA) and associated cancers. Founded in 1989, it also works to advance advocacy, education, clinical collaboration, and community support.
Fanconi Cancer Foundation at a glance
In short: Fanconi Cancer Foundation gave $2.0M across 15 grants in 2024 (avg $136K), top state California. 40% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $2,041,676
- +35.7% vs 2023
- Grants made (2024)
- 15
- +36.4% vs 2023
- Average grant
- $136,112
- -0.5% vs 2023
- Median grant
- $105,000
- Total assets
- $6,443,578
- -14.7% vs 2023
- New grantees (estimate)
- 40% first-time grantees (6 of 15, 2024; small sample)
- Primary geography
- California (32% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Fanconi Cancer Foundation
- How to Apply
-
The research grant program listing describes a letter-of-intent process: investigators may submit an LOI on a project relevant to the research priorities at any time. Applicants are to be notified within one month whether they are invited to submit a full proposal; invited applicants must submit that proposal within two months of LOI acceptance. FCF’s website states that researchers with a PhD, MD, or equivalent degree at U.S. or international academic, nonprofit, or for-profit institutions are eligible to apply.
- Contact
Mailing address: 360 East 10Th Ave Suite 201, Eugene, OR 97401
Phone: (541) 687-4658
Website: https://fanconi.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
9 open opportunities from Fanconi Cancer Foundation
Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia
Fanconi Cancer Foundation
Amount
Varies
Deadline
Deadline not published
David B. Frohnmayer Early Investigator Award
Fanconi Cancer Foundation
Amount
Varies
Deadline
Deadline not published
Fanconi Anemia Research Fund: Research Grant Awards
Fanconi Cancer Foundation
Amount
Varies
Deadline
Deadline not published
Who Fanconi Cancer Foundation funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Stand up to Cancer ($375K). Together the top 10 received $1.8M.
Grant Size Distribution
58 grants across all recorded years
The most common grant size was in the $50–100K range: 24 grants of 58 (41%).
Geographic Focus
Where this funder awards grants
FCF’s website invites eligible researchers at U.S. and international institutions to apply for its research grants. Its 2024 grants went to recipients in multiple states. The largest shares of reported grant dollars went to California (32%), Maryland (18%), New York (9%), Washington (8%), and Pennsylvania (8%). The Discovery Boost Grant is described as having a U.S. geographic scope.
Grant Distribution by State
Share of 2024 grant dollars across all 15 itemized grants.
States
Cities
Is Fanconi Cancer Foundation open to new grantees?
40%
first-time grantees, 2024
In 2024, 6 of 15 grantees (40%) were first-time recipients. With only 15 grantees, that is a small sample: one grantee more or less moves the share by about 7 points. First grants averaged $108K; repeat grants $155K. How we count
Medians: $105K first-time, $64K repeat.
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $1.1M (2021) to $2.0M (2024). In 2024 it made 15 grants totaling $2.0M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Stand up to Cancer Los Angeles, CA | — | $375,000 |
| National Cancer Institute Bethesda, MD | — | $369,154 |
| Stanford University Palo Alto, CA | — | $229,461 |
| American Association for Cancer Research (Aacr) Philadelphia, PA | — | $164,000 |
| Regents of the University of Minnesota Minneapolis, MN | — | $120,000 |
| The Trustees of Columbia University in the City of New York New York, NY | — | $117,501 |
| University of Chicago Chicago, IL | — | $105,320 |
| Fred Hutchinson Cancer Research Center Seattle, WA | — | $105,000 |
| The Broad Institute Inc Cambridge, MA | — | $105,000 |
| The Rockefeller University New York, NY | — | $64,492 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $6,443,578 | $4,270,829 | $5,488,004 | $2,041,676 | 15 | $298,642 |
| 2023 | $7,555,758 | $3,493,638 | $4,187,970 | $1,505,098 | 11 | $262,765 |
| 2022 | $7,540,304 | $3,171,988 | $3,923,102 | $1,318,090 | 13 | $164,989 |
| 2021 | $9,115,039 | $3,598,784 | $3,029,333 | $1,119,936 | 11 | $281,913 |
| 2020 | $8,601,390 | $4,056,234 | $1,986,709 | $1,376,893 | 8 | $638,552 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
FCF’s stated mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering its community. Its top research priority is understanding the causes of FA-associated cancers and developing approaches to prevent, detect, treat, and cure them. Other stated priorities include gene therapy and gene editing; bone marrow failure and related blood disorders; other health and quality-of-life effects of FA; data analytics; and shared research resources.
FCF’s 2024 filing describes work that includes managing grant awards, research collaborations, a clinical registry, research materials, clinical care guidelines, and shared data resources. It also describes family and adult retreats, a scientific symposium, support and advocacy programs, and services for newly diagnosed families and caregivers.
The 2024 grants listed include universities and research institutions, a cancer research association, and a cancer research nonprofit. The American Association for Cancer Research describes its own mission as preventing and curing cancer through research, education, communication, and collaboration. The Broad Institute describes its mission as advancing biomedicine through research into disease and the dissemination of scientific knowledge. These are the grantees’ stated missions, not FCF’s.
Grantmaking
In filing year 2024, FCF reported 15 grants totaling $2,041,676. Grant amounts ranged from $49,248 to $375,000, with a median of $105,000. Its largest reported grants included $375,000 to Stand Up To Cancer, $369,154 to the National Cancer Institute, $229,461 to Stanford University, and $164,000 to the American Association for Cancer Research. Other notable awards included $120,000 to the Regents of the University of Minnesota, $117,501 to Columbia University, and $105,320 to the University of Chicago.
FCF’s website describes research grant awards for FA research and a Discovery Boost Grant partnership with the American Cancer Society for research on cancers associated with FA. It also lists an active partnership with the American Association for Cancer Research for transformative cancer research related to FA. The website says the 2026 FCF Research Grant Awards application period has closed; it says proposals are under review and details for the next cycle will be posted when available. The Discovery Boost Grant application deadline is December 1, 2026.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Mark Quinlan as executive director, Isis Sroka as chief scientific officer, and Lisa Mingo as president. It also lists John Connelly as secretary, Win Gouldin as vice president, and Pedro Ravelo as treasurer. Lynn Frohnmayer and Adam Becker are listed as board members. Lauren Kennedy and Sherri Van Ravenhorst are listed as highest compensated employees.
Fanconi Cancer Foundation is led by Mark Quinlan, Executive Director on every filing since 2020; 4 of 17 officers listed in 2024 are compensated.
Officers on the 2024 filing
Mark Quinlan
Executive Director
On filings since 2020
40 hrs/week
$124K (2020) → $200K (2024)
Lisa Mingo
President
Treasurer → Vice President & Treasurer, 2022
Vice President & Treasurer → President, 2023
On filings since 2020
5 hrs/week
No compensation reported
Isis Sroka
Chief Scientific Officer
Scientific Director → Chief Scientific Officer, 2023
On filings since 2020
40 hrs/week
$111K (2020) → $136K (2024)
Sherri L. Van Ravenhorst
Highest Compensated Employee
On filings since 2023
40 hrs/week
$102K (2023) → $103K (2024)
Lauren Kennedy
Highest Compensated Employee
New on the 2024 filing
40 hrs/week
$115K (2024)
Jasmine Bennetsen
Board Member
On filings since 2020
1 hr/week
No compensation reported
John Connelly
Secretary
On filings since 2020
5 hrs/week
No compensation reported
Lynn Frohnmayer
Board Member
Founder → Board Member, 2021
On filings since 2020
1 hr/week
No compensation reported
Tracy Strimling
Board Member
On filings since 2020
1 hr/week
No compensation reported
Win Gouldin
Vice President
Board Member → Vice President, 2023
On filings since 2020
5 hrs/week
No compensation reported
Carmem Bonfim
Board Member
On filings since 2021
1 hr/week
No compensation reported
Pedro Ravelo
Treasurer
Board Member → Treasurer, 2023
On filings since 2021
5 hrs/week
No compensation reported
Adam Becker
Board Member
On filings since 2023
1 hr/week
No compensation reported
Henekke Takkenberg
Board Member
On filings since 2023
1 hr/week
No compensation reported
John Wagner
Board Member
On filings since 2023
1 hr/week
No compensation reported
William Bloxom
Board Member
On filings since 2023
1 hr/week
No compensation reported
Zariel Toolan
Board Member
On filings since 2023
1 hr/week
No compensation reported
Former officers (5)
- Former: Aileen Carlos (2020–2022) — Board Member
- Former: Andre Hessels (2020–2022) — Board Member
- Former: Orion Marx (2020–2022) — President
- Former: Rachel Altmann (2020–2022) — Board Member
- Former: Stella Davies (2020–2022) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $200K, to Mark Quinlan (Executive Director). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Fanconi Cancer Foundation
How much does Fanconi Cancer Foundation give each year?
Fanconi Cancer Foundation gave $2.0M across 15 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.5M across 11 grants.
What is Fanconi Cancer Foundation's typical grant size?
Fanconi Cancer Foundation's median grant in 2024 was $105,000, and its average grant was $136,112, across 15 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Fanconi Cancer Foundation that year got $108K on average.
Where does Fanconi Cancer Foundation give grants?
Fanconi Cancer Foundation's top state is California, with 32% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Maryland (18%) and New York (9%). The most frequent recipient cities were New York, NY (2 grants) and Seattle, WA (2 grants).
Who are Fanconi Cancer Foundation's largest grantees?
Fanconi Cancer Foundation's largest 2024 grantees include Stand up to Cancer ($375,000), National Cancer Institute ($369,154) and Stanford University ($229,461), according to its 2024 IRS Form 990. Together they received 48% of its itemized 2024 grant dollars.
How large is Fanconi Cancer Foundation?
Fanconi Cancer Foundation reported $6.4M in total assets on its 2024 IRS Form 990. Its revenue that year was $4.3M.
What does Fanconi Cancer Foundation fund?
FCF’s stated mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering its community. See mission & focus areas ↑
How do I apply for a grant from Fanconi Cancer Foundation?
The research grant program listing describes a letter-of-intent process: investigators may submit an LOI on a project relevant to the research priorities at any time. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Fanconi Cancer Foundation's EIN?
Fanconi Cancer Foundation's EIN (Employer Identification Number) is 93-0995453. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS October 20, 2023)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 23, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 24, 2025)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 15, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Fanconi Cancer Foundation's focus areas in our free grants database
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Cite this profile
Grantable. (2026). Fanconi Cancer Foundation funder profile. GrantGraph. Retrieved October 5, 2026, from https://grantable.co/funders/fanconi-cancer-foundation-morg_5225a56c0e4b4521aac30e37eafe3ff5
BibTeX
@misc{grantable_930995453_2026,
author = {{Grantable}},
title = {{Fanconi Cancer Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/fanconi-cancer-foundation-morg_5225a56c0e4b4521aac30e37eafe3ff5},
note = {Accessed 2026-10-05. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Fanconi Cancer Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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