Epilepsy Foundation of America logo

Epilepsy Foundation of America

Public charity · Grantmaker Bowie, MD EIN: 52-0856660 Website

To improve the lives of peoples affected by epilepsy through education, advocacy, research, and connection.

Key facts about Epilepsy Foundation of America

In short: Epilepsy Foundation of America gave $138K across 3 grants in 2025 (avg $46K), mostly in New Jersey. Source: 2025 IRS Form 990.

EIN
52-0856660
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$137,500
Grants made (2025)
3
Average grant
$45,833
Median grant
$50,000
Total assets
$19,977,394
Primary geography
New Jersey (55% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$20.0M

-6.1% YoY

Annual Giving

$138K

-45.0% YoY

Grant Count

3

+0.0% YoY

Avg Grant Size

$46K

-45.0% YoY

How Epilepsy Foundation of America gives

  • Giving fell 78% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

About Epilepsy Foundation of America

Based on IRS filings

Epilepsy Foundation of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bowie, MD. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $20.0M in total assets. In 2025, it awarded 3 grants totaling $138K. Net investment income was $151K.

Open Grants

2 open opportunities from Epilepsy Foundation of America

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

11states

Share of 2025 grant dollars across all 3 itemized grants.

Cities

MinneapolisChicagoRochesterAtlantaCambridgeCharlottesvilleEnglewoodHawthorneMetuchenOrangePhiladelphiaWaukeshaWest Kingston

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K$800K5 grants2021 7 grants2022 4 grants2023 3 grants2024 3 grants2025

From 2021 to 2025, annual grant giving ranged from $138K (2025) to $775K (2021). In 2025 it made 3 grants totaling $138K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 3 recipients in 2025

Neuroview Technology Inc: $75KNeuroview Technology Inc$75KAmerican Brain Foundation: $50KAmerican Brain Foundation$50KFoundation Neurotech: $13KFoundation Neurotech$13K

The largest 2025 recipient was Neuroview Technology Inc ($75K). Together the top 3 received $138K.

Grant Size Distribution

22 grants across all recorded years

6<$50K10$50–100K4$100–250K2$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 10 grants of 22 (45%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Neuroview Technology Inc Englewood, NJShark Tank Winner$75,000
American Brain Foundation Minneapolis, MNSupport the Clinical Research Training Scholarship$50,000
Foundation Neurotech Waukesha, WIShark Tank Winner$12,500

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$10M$20M$30M2021 2022 2023 2024 2025
Metric202520242023
Total Assets$19,977,394$21,279,936$21,649,278
Revenue$16,178,770$15,593,499$17,841,214
Expenses$18,974,202$16,514,182$15,981,333
Net Investment Income$150,675$393,154$-954,167

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS March 9, 2022)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS February 15, 2023)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
  4. Updated Form 990 for fiscal year 2024 (received by the IRS May 9, 2025)
  5. Updated Form 990 for fiscal year 2025 (received by the IRS April 17, 2026)
  6. IRS filings on file for fiscal years 2021–2025

Leadership & Key People

Officers and directors from IRS filings

Epilepsy Foundation of America is led by Bernice Lee, Chief Executive Officer on every filing since 2024; 9 of 23 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Bernice Lee

    Chief Executive Officer

    On filings since 2024

    35 hrs/week

    $182K (2024) → $451K (2025)

  • Courtney Caputo

    Chair

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • David Moore

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Noah Richmond

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Angelica Roiz

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Mary Weldon

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Wasim Malik

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Eli Corbett

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • John Lannen

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Daryl Drabinsky

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Jeannine Garab

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Jeff Parent

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Brandy E. Fureman

    Chief Outcomes Officer

    Chief Outcomes Officer → Chief Outcome Officer, 2023

    Chief Outcome Officer → Chief Outcomes Officer, 2024

    On filings since 2021

    35 hrs/week

    $193K (2021) → $260K (2025)

  • Danielle Solomon

    Vice President Human Resources

    Vice President Human Resources → Vice President & Human Resources, 2023

    Vice President & Human Resources → Vice President Human Resources, 2025

    On filings since 2021

    35 hrs/week

    $127K (2021) → $162K (2025)

  • Laura Weidner

    Chief Advocacy & Government Relations Officer

    Chief Advocacy Officer → Chief Advocacy & Gov Relations Officer, 2024

    Chief Advocacy & Gov Relations Officer → Chief Advocacy & Government Relations Officer, 2025

    On filings since 2021

    35 hrs/week

    $166K (2021) → $225K (2025)

  • Nathan Devault

    Vice President Marketing & Communications

    Vice President Marketing & Communications → Vice President, Marketing & Communications, 2023

    Vice President, Marketing & Communications → Vice President Marketing & Communications, 2025

    On filings since 2021

    35 hrs/week

    $138K (2021) → $178K (2025)

  • Gregg Fort

    Vice President Regional Operations

    Vice President & Regional Teams → Vice President Regional Teams, 2024

    Vice President Regional Teams → Vice President Regional Operations, 2025

    On filings since 2022

    35 hrs/week

    $124K (2022) → $148K (2025)

  • Kathleen Farrell

    Vice President Public Health Outcomes

    Vice President, Public Health & Outcomes → Vice President Public Health & Outcomes, 2024

    Vice President Public Health & Outcomes → Vice President Public Health Outcomes, 2025

    On filings since 2023

    35 hrs/week

    $140K (2023) → $162K (2025)

  • Caitlin Grzeskowiak

    Chief Research & Innovation Officer

    New on the 2025 filing

    35 hrs/week

    $166K (2025)

  • Wanda Cook

    Chief Financial Officer

    New on the 2025 filing

    35 hrs/week

    $50K (2025)

  • David Hawk

    Treasurer

    Director → Treasurer, 2024

    On filings since 2021

    1 hr/week

    No compensation reported

  • Mark Theeuwes

    Secretary

    On filings since 2023

    1 hr/week

    No compensation reported

  • Josh Golden

    Vice Chair

    Director → Vice Chair, 2025

    On filings since 2024

    1 hr/week

    No compensation reported

Former officers (54)
  • Former: Rahel Rosner (2021–2025) — Chief Financial Officer · Filing note: Until sept 2024
  • Former: Jeffrey Parent (2021–2024) — Chair
  • Former: Courtney Watson (2022–2024) — Vice Chair
  • Former: Greg Mayes (2022–2024) — Director
  • Former: Abraham Glaser (2023–2024) — Director
  • Former: Alison Zetterquist (2023–2024) — Interim CEO
  • Former: James McAlpin (2023–2024) — Director
  • Former: Michael McDonnell (2023–2024) — Director
  • Former: Jacqueline Aker (2024) — Senior Director of Public Relations
  • Former: Jen Gurtcheff (2024) — Director
  • Former: Maria Martinez (2024) — Director
  • Former: Susan Linn (2024) — Director
  • Former: Camila Coelho (2021–2023) — Director
  • Former: Daniel Moore (2021–2023) — Treasurer
  • Former: Geoffrey Delizzio (2021–2023) — Chief Development Officer
  • Former: Laura Thrall (2021–2023) — Chief Executive Officer
  • Former: Rebekah Walker (2021–2023) — Director
  • Former: Elizabeth Corbett (2022–2023) — Director
  • Former: Ron Shimabuku (2022–2023) — Director
  • Former: Ali Heron (2023) — Director
  • Former: Curtis Deprey (2023) — Director
  • Former: Joshua Golden (2023) — Director
  • Former: Matt Tifft (2023) — Director
  • Former: Sarah Klein (2023) — Director
  • Former: Adam Kaller (2021–2022) — Director
  • Former: Bradley Boyer (2021–2022) — Chair
  • Former: Cynthia Hudson (2021–2022) — Secretary
  • Former: Frank Fischer (2021–2022) — Director
  • Former: Gail Pundsack (2021–2022) — Vice President Field Operations
  • Former: Jerilee Beaudoin (2021–2022) — Director
  • Former: Robert W. Smith (2021–2022) — Treasurer
  • Former: Roger Heldman (2021–2022) — Director
  • Former: Stephanie Fokas (2021–2022) — Director
  • Former: Steve Kuehn (2021–2022) — Director
  • Former: Tony Coelho (2021–2022) — Director
  • Former: Courtney Barton (2022) — Director
  • Former: Howard Zwirn (2022) — Director
  • Former: Jeanette Stoltzfus (2022) — Senior Director & Major Gifts
  • Former: Jim McAplin (2022) — Director
  • Former: Randy Siegel (2022) — Director
  • Former: Brooke Gordon (2021) — Vice Chair
  • Former: Bryan Anderson (2021) — Director
  • Former: Diane E. Rubinstein (2021) — Chief Financial Officer
  • Former: Ellen K. Hobby (2021) — Chief Operating Officer & Vice President
  • Former: Geoffrey Hoyt (2021) — Snr Director of Major Gift
  • Former: Geoffrey Pope (2021) — Secretary
  • Former: Jonathan E. Scheinman (2021) — Director Data Analytics & Personalization
  • Former: Mark Borman (2021) — Director
  • Former: May J. Liang (2021) — Director
  • Former: Rick Harrison (2021) — Director
  • Former: Steve Wulchin (2021) — Director
  • Former: Steven Baum (2021) — Director
  • Former: Steven Schachter (2021) — Director
  • Former: Susan Pietsch-Eschuta (2021) — Vice President Marketing

Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Bernice Lee — Chief Executive Officer: $451KBernice LeeChief Executive Officer$451KBrandy Fureman — Chief Outcomes Officer: $260KBrandy FuremanChief Outcomes Officer$260KLaura Weidner — Chief Advocacy and Government Relations Officer: $225KLaura WeidnerChief Advocacy and Government…$225KNathan Devault — VP Marketing and Communications: $178KNathan DevaultVP Marketing and Communications$178KCaitlin Grzeskowiak — Chief Research and Innovation Officer: $166KCaitlin GrzeskowiakChief Research and Innovation…$166KKathleen Farrell — VP Public Health Outcomes: $162KKathleen FarrellVP Public Health Outcomes$162KDanielle Solomon — VP Human Resources: $162KDanielle SolomonVP Human Resources$162KRahel Rosner Until Sept 2024 — Chief Financial Officer: $156KRahel Rosner Until Sept…Chief Financial Officer$156KGregg Fort — VP Regional Operations: $148KGregg FortVP Regional Operations$148KWanda Cook Beg NOV 2024 — Chief Financial Officer: $50KWanda Cook Beg NOV 2024Chief Financial Officer$50K

The highest reported compensation on the 2025 filing was $451K, to Bernice Lee (Chief Executive Officer). 10 officers or directors reported compensation on that filing.

Frequently asked questions about Epilepsy Foundation of America

How much does Epilepsy Foundation of America give each year?

Epilepsy Foundation of America gave $138K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $250K across 3 grants.

What is Epilepsy Foundation of America's typical grant size?

Epilepsy Foundation of America's median grant in 2025 was $50,000, and its average grant was $45,833, across 3 grants on its 2025 IRS Form 990.

Where does Epilepsy Foundation of America give grants?

Epilepsy Foundation of America gives mostly in New Jersey: 55% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Minnesota (36%) and Wisconsin (9%).

Does Epilepsy Foundation of America give general operating support?

Not in 2025: none of the 3 grants with a stated purpose on Epilepsy Foundation of America's 2025 IRS Form 990 were described as general or operating support.

How large is Epilepsy Foundation of America?

Epilepsy Foundation of America reported $20.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $16.2M.

What is Epilepsy Foundation of America?

Epilepsy Foundation of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bowie, MD. It holds $20.0M in total assets as of 2025.

What is Epilepsy Foundation of America's EIN?

Epilepsy Foundation of America's EIN (Employer Identification Number) is 52-0856660. IRS Form 990 filing data is available on this page for 2021–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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