Epilepsy Foundation of America
To improve the lives of peoples affected by epilepsy through education, advocacy, research, and connection.
Key facts about Epilepsy Foundation of America
In short: Epilepsy Foundation of America gave $138K across 3 grants in 2025 (avg $46K), mostly in New Jersey. Source: 2025 IRS Form 990.
- EIN
- 52-0856660
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $137,500
- Grants made (2025)
- 3
- Average grant
- $45,833
- Median grant
- $50,000
- Total assets
- $19,977,394
- Primary geography
- New Jersey (55% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$20.0M
-6.1% YoY
Annual Giving
$138K
-45.0% YoY
Grant Count
3
+0.0% YoY
Avg Grant Size
$46K
-45.0% YoY
How Epilepsy Foundation of America gives
- Giving fell 78% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Epilepsy Foundation of America
Based on IRS filings
Epilepsy Foundation of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bowie, MD. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $20.0M in total assets. In 2025, it awarded 3 grants totaling $138K. Net investment income was $151K.
Focus Areas
Open Grants
2 open opportunities from Epilepsy Foundation of America
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $138K (2025) to $775K (2021). In 2025 it made 3 grants totaling $138K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was Neuroview Technology Inc ($75K). Together the top 3 received $138K.
Grant Size Distribution
22 grants across all recorded years
The most common grant size was in the $50–100K range: 10 grants of 22 (45%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Neuroview Technology Inc Englewood, NJ | Shark Tank Winner | $75,000 |
| American Brain Foundation Minneapolis, MN | Support the Clinical Research Training Scholarship | $50,000 |
| Foundation Neurotech Waukesha, WI | Shark Tank Winner | $12,500 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $19,977,394 | $21,279,936 | $21,649,278 |
| Revenue | $16,178,770 | $15,593,499 | $17,841,214 |
| Expenses | $18,974,202 | $16,514,182 | $15,981,333 |
| Net Investment Income | $150,675 | $393,154 | $-954,167 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS March 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 9, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS April 17, 2026)
- IRS filings on file for fiscal years 2021–2025
Leadership & Key People
Officers and directors from IRS filings
Epilepsy Foundation of America is led by Bernice Lee, Chief Executive Officer on every filing since 2024; 9 of 23 officers listed in 2025 are compensated.
Officers on the 2025 filing
Bernice Lee
Chief Executive Officer
On filings since 2024
35 hrs/week
$182K (2024) → $451K (2025)
Courtney Caputo
Chair
New on the 2025 filing
1 hr/week
No compensation reported
David Moore
Director
On filings since 2022
1 hr/week
No compensation reported
Noah Richmond
Director
On filings since 2022
1 hr/week
No compensation reported
Angelica Roiz
Director
On filings since 2023
1 hr/week
No compensation reported
Mary Weldon
Director
On filings since 2023
1 hr/week
No compensation reported
Wasim Malik
Director
On filings since 2023
1 hr/week
No compensation reported
Eli Corbett
Director
On filings since 2024
1 hr/week
No compensation reported
John Lannen
Director
On filings since 2024
1 hr/week
No compensation reported
Daryl Drabinsky
Director
New on the 2025 filing
1 hr/week
No compensation reported
Jeannine Garab
Director
New on the 2025 filing
1 hr/week
No compensation reported
Jeff Parent
Director
New on the 2025 filing
1 hr/week
No compensation reported
Brandy E. Fureman
Chief Outcomes Officer
Chief Outcomes Officer → Chief Outcome Officer, 2023
Chief Outcome Officer → Chief Outcomes Officer, 2024
On filings since 2021
35 hrs/week
$193K (2021) → $260K (2025)
Danielle Solomon
Vice President Human Resources
Vice President Human Resources → Vice President & Human Resources, 2023
Vice President & Human Resources → Vice President Human Resources, 2025
On filings since 2021
35 hrs/week
$127K (2021) → $162K (2025)
Laura Weidner
Chief Advocacy & Government Relations Officer
Chief Advocacy Officer → Chief Advocacy & Gov Relations Officer, 2024
Chief Advocacy & Gov Relations Officer → Chief Advocacy & Government Relations Officer, 2025
On filings since 2021
35 hrs/week
$166K (2021) → $225K (2025)
Nathan Devault
Vice President Marketing & Communications
Vice President Marketing & Communications → Vice President, Marketing & Communications, 2023
Vice President, Marketing & Communications → Vice President Marketing & Communications, 2025
On filings since 2021
35 hrs/week
$138K (2021) → $178K (2025)
Gregg Fort
Vice President Regional Operations
Vice President & Regional Teams → Vice President Regional Teams, 2024
Vice President Regional Teams → Vice President Regional Operations, 2025
On filings since 2022
35 hrs/week
$124K (2022) → $148K (2025)
Kathleen Farrell
Vice President Public Health Outcomes
Vice President, Public Health & Outcomes → Vice President Public Health & Outcomes, 2024
Vice President Public Health & Outcomes → Vice President Public Health Outcomes, 2025
On filings since 2023
35 hrs/week
$140K (2023) → $162K (2025)
Caitlin Grzeskowiak
Chief Research & Innovation Officer
New on the 2025 filing
35 hrs/week
$166K (2025)
Wanda Cook
Chief Financial Officer
New on the 2025 filing
35 hrs/week
$50K (2025)
David Hawk
Treasurer
Director → Treasurer, 2024
On filings since 2021
1 hr/week
No compensation reported
Mark Theeuwes
Secretary
On filings since 2023
1 hr/week
No compensation reported
Josh Golden
Vice Chair
Director → Vice Chair, 2025
On filings since 2024
1 hr/week
No compensation reported
Former officers (54)
- Former: Rahel Rosner (2021–2025) — Chief Financial Officer · Filing note: Until sept 2024
- Former: Jeffrey Parent (2021–2024) — Chair
- Former: Courtney Watson (2022–2024) — Vice Chair
- Former: Greg Mayes (2022–2024) — Director
- Former: Abraham Glaser (2023–2024) — Director
- Former: Alison Zetterquist (2023–2024) — Interim CEO
- Former: James McAlpin (2023–2024) — Director
- Former: Michael McDonnell (2023–2024) — Director
- Former: Jacqueline Aker (2024) — Senior Director of Public Relations
- Former: Jen Gurtcheff (2024) — Director
- Former: Maria Martinez (2024) — Director
- Former: Susan Linn (2024) — Director
- Former: Camila Coelho (2021–2023) — Director
- Former: Daniel Moore (2021–2023) — Treasurer
- Former: Geoffrey Delizzio (2021–2023) — Chief Development Officer
- Former: Laura Thrall (2021–2023) — Chief Executive Officer
- Former: Rebekah Walker (2021–2023) — Director
- Former: Elizabeth Corbett (2022–2023) — Director
- Former: Ron Shimabuku (2022–2023) — Director
- Former: Ali Heron (2023) — Director
- Former: Curtis Deprey (2023) — Director
- Former: Joshua Golden (2023) — Director
- Former: Matt Tifft (2023) — Director
- Former: Sarah Klein (2023) — Director
- Former: Adam Kaller (2021–2022) — Director
- Former: Bradley Boyer (2021–2022) — Chair
- Former: Cynthia Hudson (2021–2022) — Secretary
- Former: Frank Fischer (2021–2022) — Director
- Former: Gail Pundsack (2021–2022) — Vice President Field Operations
- Former: Jerilee Beaudoin (2021–2022) — Director
- Former: Robert W. Smith (2021–2022) — Treasurer
- Former: Roger Heldman (2021–2022) — Director
- Former: Stephanie Fokas (2021–2022) — Director
- Former: Steve Kuehn (2021–2022) — Director
- Former: Tony Coelho (2021–2022) — Director
- Former: Courtney Barton (2022) — Director
- Former: Howard Zwirn (2022) — Director
- Former: Jeanette Stoltzfus (2022) — Senior Director & Major Gifts
- Former: Jim McAplin (2022) — Director
- Former: Randy Siegel (2022) — Director
- Former: Brooke Gordon (2021) — Vice Chair
- Former: Bryan Anderson (2021) — Director
- Former: Diane E. Rubinstein (2021) — Chief Financial Officer
- Former: Ellen K. Hobby (2021) — Chief Operating Officer & Vice President
- Former: Geoffrey Hoyt (2021) — Snr Director of Major Gift
- Former: Geoffrey Pope (2021) — Secretary
- Former: Jonathan E. Scheinman (2021) — Director Data Analytics & Personalization
- Former: Mark Borman (2021) — Director
- Former: May J. Liang (2021) — Director
- Former: Rick Harrison (2021) — Director
- Former: Steve Wulchin (2021) — Director
- Former: Steven Baum (2021) — Director
- Former: Steven Schachter (2021) — Director
- Former: Susan Pietsch-Eschuta (2021) — Vice President Marketing
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $451K, to Bernice Lee (Chief Executive Officer). 10 officers or directors reported compensation on that filing.
Frequently asked questions about Epilepsy Foundation of America
How much does Epilepsy Foundation of America give each year?
Epilepsy Foundation of America gave $138K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $250K across 3 grants.
What is Epilepsy Foundation of America's typical grant size?
Epilepsy Foundation of America's median grant in 2025 was $50,000, and its average grant was $45,833, across 3 grants on its 2025 IRS Form 990.
Where does Epilepsy Foundation of America give grants?
Epilepsy Foundation of America gives mostly in New Jersey: 55% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Minnesota (36%) and Wisconsin (9%).
Does Epilepsy Foundation of America give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on Epilepsy Foundation of America's 2025 IRS Form 990 were described as general or operating support.
How large is Epilepsy Foundation of America?
Epilepsy Foundation of America reported $20.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $16.2M.
What is Epilepsy Foundation of America?
Epilepsy Foundation of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Bowie, MD. It holds $20.0M in total assets as of 2025.
What is Epilepsy Foundation of America's EIN?
Epilepsy Foundation of America's EIN (Employer Identification Number) is 52-0856660. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Epilepsy Foundation of America by hand.
Explore Open Grants
Browse active grant opportunities in Epilepsy Foundation of America's focus areas in our free grants database
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