Diamond Blackfan Anemia Foundation
THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.8M
+7.9% YoY
Annual Giving
$120K
-65.3% YoY
Grant Count
2
-50.0% YoY
Avg Grant Size
$60K
-30.6% YoY
About Diamond Blackfan Anemia Foundation
Based on IRS filings
Diamond Blackfan Anemia Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WEST SENECA, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.8M in total assets. In 2024, it awarded 2 grants totaling $120K. Net investment income was $57K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,779,752 | $1,649,768 | $1,691,996 |
| Revenue | $499,448 | $664,145 | $383,838 |
| Expenses | $397,142 | $720,383 | $151,934 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $56,639 | $39,292 | $1,639 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
10 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Stanford University - Dr Kathleen Sakamoto ($70,000), Stanford University - Dr Maria Barna ($50,000).
| Recipient | Purpose | Amount |
|---|---|---|
| STANFORD UNIVERSITY - DR KATHLEEN SAKAMOTO REDWOOD CITY, CA | RESEARCH PROPOSAL | $70,000 |
| STANFORD UNIVERSITY - DR MARIA BARNA REDWOOD CITY, CA | RESEARCH PROPOSAL | $50,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DAWN BAUMGARDNER | EXECUTIVE DIRECTOR | 40 | $65,704 |
| KATHI VROMAN | VICE PRESIDENT | 10 | — |
| PETER BAUMGARDNER | TREASURER | 10 | — |
| CAROL MANCUSO | SECRETARY | 10 | — |
| LAUREN BRADY | DIRECTOR | 10 | — |
| CARA BREIDSTER | DIRECTOR | 10 | — |
| CHARLES BROWN | DIRECTOR | 10 | — |
| ANITA SHIER BRUTON | DIRECTOR | 10 | — |
| REBECCA DEGROFF | DIRECTOR | 10 | — |
| JAMIE DERMATIS | DIRECTOR | 10 | — |
| JACY DOWNEY | DIRECTOR | 10 | — |
| ANTHONY MARCHESE | DIRECTOR | 10 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Diamond Blackfan Anemia Foundation?
Diamond Blackfan Anemia Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WEST SENECA, NY. It holds $1.8M in total assets as of 2024.
How large is Diamond Blackfan Anemia Foundation?
As of 2024, Diamond Blackfan Anemia Foundation holds $1.8M in total assets with $499K in annual revenue. It awarded 2 grants totaling $120K in 2024.
Where does Diamond Blackfan Anemia Foundation operate?
Diamond Blackfan Anemia Foundation has awarded grants in California, Kentucky, Massachusetts, New York, Tennessee.
What size grants does Diamond Blackfan Anemia Foundation award?
In 2024, Diamond Blackfan Anemia Foundation awarded 2 grants totaling $120K — an average of about $60K per grant, based on its IRS Form 990 filings.
What is Diamond Blackfan Anemia Foundation's EIN?
Diamond Blackfan Anemia Foundation's EIN (Employer Identification Number) is 16-1459422. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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