Diamond Blackfan Anemia Foundation
The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to providing patient advocacy, support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.
Diamond Blackfan Anemia Foundation at a glance
In short: Diamond Blackfan Anemia Foundation gave $120K across 3 grants in 2025 (avg $40K), mostly in Michigan. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $120,000
- +0.0% vs 2024
- Grants made (2025)
- 3
- +50.0% vs 2024
- Average grant
- $40,000
- -33.3% vs 2024
- Median grant
- $50,000
- Total assets
- $1,934,886
- +8.7% vs 2024
- Primary geography
- Michigan (50% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Diamond Blackfan Anemia Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Camp Sunshine ($10K).
Organizations only. It also paid 2 grants to individuals ($110,000), which are not listed by name.
Grant Size Distribution
11 grants across all recorded years
The most common grant size was in the $50–100K range: 8 grants of 11 (73%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $70K (2021) to $346K (2023). In 2025 it made 3 grants totaling $120K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| 2 grants to individuals Recipients not named | — | $110,000 |
| Camp Sunshine Casco, ME | General Operations | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,934,886 | $603,747 | $474,761 | $120,000 | 3 | $51,424 |
| 2024 | $1,779,752 | $499,448 | $397,142 | $120,000 | 2 | $56,639 |
| 2023 | $1,649,768 | $664,145 | $720,383 | $345,722 | 4 | $39,292 |
| 2022 | $1,691,996 | $383,838 | $151,934 | $70,000 | Total only | $1,639 |
| 2021 | $1,469,505 | $403,823 | $156,286 | $70,000 | 2 | $3,044 |
| 2020 | $1,199,959 | $432,479 | $229,052 | $128,000 | 2 | $3,726 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Diamond Blackfan Anemia Foundation
Based on IRS filings
Diamond Blackfan Anemia Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in West Seneca, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 3 grants totaling $120K. Net investment income was $51K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Diamond Blackfan Anemia Foundation is led by Dawn Baumgardner, Executive Director on every filing since 2020; 1 of 12 officers listed in 2025 is compensated.
Officers on the 2025 filing
Dawn Baumgardner
Executive Director
On filings since 2020
40 hrs/week
$50K (2020) → $68K (2025)
Anita Shier Bruton
Director
On filings since 2020
10 hrs/week
No compensation reported
Anthony Marchese
Director
Vice President → Director, 2022
On filings since 2020
10 hrs/week
No compensation reported
Cara Breidster
Director
On filings since 2020
10 hrs/week
No compensation reported
Charles Brown
Director
On filings since 2020
10 hrs/week
No compensation reported
Jacy Downey
Director
On filings since 2020
10 hrs/week
No compensation reported
Lauren Brady
Director
On filings since 2020
10 hrs/week
No compensation reported
Rebecca Degroff
Director
On filings since 2020
10 hrs/week
No compensation reported
Jamie Dermatis
Director
On filings since 2022
10 hrs/week
No compensation reported
Carol Mancuso
Secretary
Director → Secretary, 2022
On filings since 2020
10 hrs/week
No compensation reported
Kathi Vroman
Vice President
Secretary → Vice President, 2022
On filings since 2020
10 hrs/week
No compensation reported
Peter Baumgardner
Treasurer
On filings since 2020
10 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $68K, to Dawn Baumgardner (Executive Director).
Frequently asked questions about Diamond Blackfan Anemia Foundation
How much does Diamond Blackfan Anemia Foundation give each year?
Diamond Blackfan Anemia Foundation gave $120K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $120K across 2 grants.
What is Diamond Blackfan Anemia Foundation's typical grant size?
Diamond Blackfan Anemia Foundation's median grant in 2025 was $50,000, and its average grant was $40,000, across 3 grants on its 2025 IRS Form 990.
Where does Diamond Blackfan Anemia Foundation give grants?
Diamond Blackfan Anemia Foundation gives mostly in Michigan: 50% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were California (42%) and Maine (8%).
Does Diamond Blackfan Anemia Foundation give general operating support?
Yes: 33% of Diamond Blackfan Anemia Foundation's 2025 grants with a stated purpose (1 of 3) were for general or operating support, per its 2025 IRS Form 990.
How large is Diamond Blackfan Anemia Foundation?
Diamond Blackfan Anemia Foundation reported $1.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $604K.
What is Diamond Blackfan Anemia Foundation?
Diamond Blackfan Anemia Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in West Seneca, NY. It holds $1.9M in total assets as of 2025.
What is Diamond Blackfan Anemia Foundation's EIN?
Diamond Blackfan Anemia Foundation's EIN (Employer Identification Number) is 16-1459422. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 9, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 18, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 11, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 19, 2026)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 10, 2023)
- IRS filings on file for fiscal years 2020–2024
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