Defeat MSA Alliance logo

Defeat MSA Alliance

Public charity · Grantmaker St Clair Shores, MI EIN: 46-0661655 Website

Defeat MSA Alliance is an inclusive U.S. based 501(c)(3) public charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the msa community.

Key facts about Defeat MSA Alliance

EIN
46-0661655
Latest 990 filing
Form 990, 2025
Total assets
$354,703

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$355K

+24.3% YoY

Revenue

$207K

+20.2% YoY

Net Investment Income

$41

+36.7% YoY

Expenses

$157K

+15.5% YoY

How Defeat MSA Alliance gives

  • Giving grew 100% from 2019 to 2022. Method

From the foundation's IRS Form 990 filings. Methodology.

About Defeat MSA Alliance

Based on IRS filings

Defeat MSA Alliance is a public charity focused on Medical Research, based in St Clair Shores, MI. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $355K in total assets. Net investment income was $41.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

States

Cities

Grand Rapids

Giving Over Time

Total grant dollars and number of grants per year

$0$20K$40K$60K1 grant2019 Total only2020 Total only2021 1 grant2022 0 grants2023 0 grants2024 0 grants2025

From 2019 to 2022, annual grant giving ranged from $3K (2021) to $50K (2022). In 2022 it made 1 grant totaling $50K.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grant Insights

How this funder distributes its grants

Grant Size Distribution

1 grants across all recorded years

<$50K1$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 1 grant of 1 (100%).

Giving History

Grant recipients and amounts by year

No grants recorded for 2025.

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$100K$200K$300K2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$354,703$285,453$249,803
Revenue$206,676$171,973$201,953
Expenses$157,426$136,323$125,529
Net Investment Income$41$30$6

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2019 (received by the IRS April 6, 2021)
  2. Updated Form 990 for fiscal year 2020 (received by the IRS May 16, 2021)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS May 9, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS April 10, 2023)
  5. Added Form 990 for fiscal year 2025 (received by the IRS August 3, 2026)

Leadership & Key People

Officers and directors from IRS filings

Defeat MSA Alliance is led by Philip M. Fortier Ma, Executive Director since 2021 (on filings since 2019); none of the 8 officers listed in 2025 report compensation.

Officers on the 2025 filing

  • Philip M. Fortier Ma

    Executive Director

    Co-Director → Executive Director, 2021

    On filings since 2019

    No compensation reported

  • Donna Yost

    Treasurer

    Secretarytre → Treasurer, 2024

    On filings since 2023

    No compensation reported

  • Jennifer Huzar Frost

    Vice President

    On filings since 2023

    No compensation reported

  • Jennifer Torres

    Board Member

    On filings since 2023

    No compensation reported

  • Lisa Bilek

    Board Member

    On filings since 2024

    No compensation reported

  • Andrea O'Neil

    Board Member

    New on the 2025 filing

    No compensation reported

  • Mark Wood

    Co-Secretary

    New on the 2025 filing

    No compensation reported

  • Rodney Rastall

    Co-Secretary

    New on the 2025 filing

    No compensation reported

Former officers (19)
  • Former: Melanie Montemarano (2023–2024) — Board Member
  • Former: Sara Julian (2023–2024) — Secretary
  • Former: Arnetta Michelle Steptoe (2019–2022) — Board Member
  • Former: Corey Whittlesey-Sutton (2019–2022) — Board Member
  • Former: Elena Fracassa Ma (2019–2022) — Board Member
  • Former: Margaret Maclachlan Ma Slp (2019–2022) — Board Member
  • Former: Mary Jane Scharfenkamp (2019–2022) — Board Member
  • Former: Patricia Boylan (2019–2022) — Board Member
  • Former: Ann Bagchi PhD (2022) — Board Member
  • Former: Katelyn Schneider (2021) — Board Member
  • Former: Sandra Bettenhausen (2021) — Vice Chair
  • Former: John Scharfenkamp MA LLP (2019–2020) — Board Member
  • Former: Michael Smith (2019–2020) — Board Member
  • Former: Pratik D. Bhattacharya MD MPH (2019–2020) — Co-Direc.
  • Former: Pam Smith Howells (2020) — Board Member
  • Former: Edwin B. George II MD PhD (2019) — Board Member
  • Former: Gary K. Zammit PhD (2019) — Board Member
  • Former: Kathleen Brennan Ms Ot (2019) — Board Member
  • Former: Wouter Peelearts Ms PhD (2019) — Board Member

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about Defeat MSA Alliance

How large is Defeat MSA Alliance?

Defeat MSA Alliance reported $355K in total assets on its 2025 IRS Form 990. Its revenue that year was $207K.

What is Defeat MSA Alliance?

Defeat MSA Alliance is a public charity focused on Medical Research, based in St Clair Shores, MI. It holds $355K in total assets as of 2025.

Where does Defeat MSA Alliance operate?

Defeat MSA Alliance has awarded grants in Michigan.

What is Defeat MSA Alliance's EIN?

Defeat MSA Alliance's EIN (Employer Identification Number) is 46-0661655. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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