Defeat MSA Alliance
Defeat MSA Alliance is an inclusive U.S. based 501(c)(3) public charity that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the msa community.
Defeat MSA Alliance at a glance
- Total assets
- $354,703
- +24.3% vs 2024
- Revenue (2025)
- $206,676
- +20.2% vs 2024
- Net investment income (2025)
- $41
- +36.7% vs 2024
- Expenses (2025)
- $157,426
- +15.5% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Defeat MSA Alliance funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Defeat MSA Alliance gives
- Giving grew 100% from 2019 to 2022. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2022, annual grant giving ranged from $3K (2021) to $50K (2022). In 2022 it made 1 grant totaling $50K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Mayo Clinic of Florida | Medical Research | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $354,703 | $206,676 | $157,426 | — | — | $41 |
| 2024 | $285,453 | $171,973 | $136,323 | — | — | $30 |
| 2023 | $249,803 | $201,953 | $125,529 | — | — | $6 |
| 2022 | $173,379 | $211,361 | $266,847 | $50,000 | 1 | $12 |
| 2021 | $228,865 | $259,476 | $146,336 | $3,066 | Total only | $11 |
| 2020 | $115,725 | $164,415 | $98,466 | $3,403 | Total only | $4 |
| 2019 | $49,776 | $142,430 | $110,160 | $25,000 | 1 | $2 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Defeat MSA Alliance
Based on IRS filings
Defeat MSA Alliance is a public charity focused on Medical Research, based in St Clair Shores, MI. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $355K in total assets. Net investment income was $41.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Defeat MSA Alliance is led by Philip M. Fortier Ma, Executive Director since 2021 (on filings since 2019); none of the 8 officers listed in 2025 report compensation.
Officers on the 2025 filing
Philip M. Fortier Ma
Executive Director
Co-Director → Executive Director, 2021
On filings since 2019
No compensation reported
Donna Yost
Treasurer
Secretarytre → Treasurer, 2024
On filings since 2023
No compensation reported
Jennifer Huzar Frost
Vice President
On filings since 2023
No compensation reported
Jennifer Torres
Board Member
On filings since 2023
No compensation reported
Lisa Bilek
Board Member
On filings since 2024
No compensation reported
Andrea O'Neil
Board Member
New on the 2025 filing
No compensation reported
Mark Wood
Co-Secretary
New on the 2025 filing
No compensation reported
Rodney Rastall
Co-Secretary
New on the 2025 filing
No compensation reported
Former officers (19)
- Former: Melanie Montemarano (2023–2024) — Board Member
- Former: Sara Julian (2023–2024) — Secretary
- Former: Arnetta Michelle Steptoe (2019–2022) — Board Member
- Former: Corey Whittlesey-Sutton (2019–2022) — Board Member
- Former: Elena Fracassa Ma (2019–2022) — Board Member
- Former: Margaret Maclachlan Ma Slp (2019–2022) — Board Member
- Former: Mary Jane Scharfenkamp (2019–2022) — Board Member
- Former: Patricia Boylan (2019–2022) — Board Member
- Former: Ann Bagchi PhD (2022) — Board Member
- Former: Katelyn Schneider (2021) — Board Member
- Former: Sandra Bettenhausen (2021) — Vice Chair
- Former: John Scharfenkamp MA LLP (2019–2020) — Board Member
- Former: Michael Smith (2019–2020) — Board Member
- Former: Pratik D. Bhattacharya MD MPH (2019–2020) — Co-Direc.
- Former: Pam Smith Howells (2020) — Board Member
- Former: Edwin B. George II MD PhD (2019) — Board Member
- Former: Gary K. Zammit PhD (2019) — Board Member
- Former: Kathleen Brennan Ms Ot (2019) — Board Member
- Former: Wouter Peelearts Ms PhD (2019) — Board Member
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Defeat MSA Alliance
How large is Defeat MSA Alliance?
Defeat MSA Alliance reported $355K in total assets on its 2025 IRS Form 990. Its revenue that year was $207K.
What is Defeat MSA Alliance?
Defeat MSA Alliance is a public charity focused on Medical Research, based in St Clair Shores, MI. It holds $355K in total assets as of 2025.
Where does Defeat MSA Alliance operate?
Defeat MSA Alliance has awarded grants in Michigan.
What is Defeat MSA Alliance's EIN?
Defeat MSA Alliance's EIN (Employer Identification Number) is 46-0661655. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS April 6, 2021)
- Updated Form 990 for fiscal year 2020 (received by the IRS May 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 9, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS April 10, 2023)
- Added Form 990 for fiscal year 2025 (received by the IRS August 3, 2026)
Live grants for the work Defeat MSA Alliance funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Defeat MSA Alliance's focus areas in our free grants database
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