THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.9M
-8.5% YoY
Annual Giving
$200K
+66.8% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$100K
+66.8% YoY
About Cure Tay-sachs Foundation
Based on IRS filings
Cure Tay-sachs Foundation is a nonprofit organization focused on Medical Research, based in PHOENIX, AZ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.9M in total assets. In 2024, it awarded 2 grants totaling $200K. Net investment income was $83K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,941,305 | $2,122,357 | $2,287,110 |
| Revenue | $141,059 | $107,582 | $448,202 |
| Expenses | $251,226 | $189,307 | $238,193 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $83,196 | $39,613 | $27,368 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| CHERYL BABO | DIRECTOR | 2 | — |
| NICKI LUCE | DIRECTOR | 2 | — |
| LAURIE TEN BERG | DIRECTOR | 2 | — |
| TERRY KARL ESQ | DIRECTOR | 2 | — |
| ROBBIE SANDOVAL | DIRECTOR | 2 | — |
| BRIAN PLICK | DIRECTOR | 2 | — |
| HOLLY MCDONALD | DIRECTOR | 2 | — |
| ROYCE STINGER | DIRECTOR | 2 | — |
| DEEPA KODALI | DIRECTOR | 2 | — |
| BRIANNE ANDERSON | DIRECTOR | 2 | — |
| MATT LUNCHICK | DIRECTOR | 2 | — |
| RICK KARL | PRESIDENT | 20 | $48,000 |
| BRUCE STEIGER | TREASURER | 8 | — |
Subject Areas
Focus areas based on grantmaking activity
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Similar funders by location and focus area
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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