Cure Sanfilippo Foundation
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$13.9M
+23.9% YoY
Annual Giving
$256K
-44.0% YoY
Grant Count
4
-42.9% YoY
Avg Grant Size
$64K
-1.9% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $13,871,255 | $11,198,610 | $9,625,770 |
| Revenue | $2,781,149 | $2,106,392 | $2,707,445 |
| Expenses | $1,572,959 | $1,292,685 | $2,287,097 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $580,274 | $292,943 | $483,599 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
36 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Cure Sanfilippo Foundation fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $139,049 |
| Cara O'Neill | Chief Science | 40 | $124,759 |
| Katie Walton | Vice President | 40 | $118,051 |
| Daniel Fraley | Board Chair | 2 | — |
| Jessica Haywood | Director | 2 | — |
| Faith McAngus | Director | 2 | — |
| Shelby Leonardi | Secretary | 2 | — |
| Mike Lykes | Director | 2 | — |
| Ben Von Wong | Director | 2 | — |
| Adam Shaywitz | Director | 2 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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