To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$13.9M
+23.9% YoY
Annual Giving
$256K
-44.0% YoY
Grant Count
4
-42.9% YoY
Avg Grant Size
$64K
-1.9% YoY
About Cure Sanfilippo Foundation
Based on IRS filings
Cure Sanfilippo Foundation is a nonprofit organization focused on Medical Research, based in COLUMBIA, SC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $13.9M in total assets. In 2024, it awarded 4 grants totaling $256K. Net investment income was $580K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $13,871,255 | $11,198,610 | $9,625,770 |
| Revenue | $2,781,149 | $2,106,392 | $2,707,445 |
| Expenses | $1,572,959 | $1,292,685 | $2,287,097 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $580,274 | $292,943 | $483,599 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
36 grants across all recorded years
Open Grants
3 open opportunities from Cure Sanfilippo Foundation
Cure Sanfilippo Foundation: ADVANCE Sanfilippo Funding Mechanism
Cure Sanfilippo Foundation
Amount
Varies
Deadline
Rolling / Open
Cure Sanfilippo Foundation: Fellowship Award Mechanism
Cure Sanfilippo Foundation
Amount
Varies
Deadline
Rolling / Open
Cure Sanfilippo Foundation: Pilot Funding Mechanism
Cure Sanfilippo Foundation
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $139,049 |
| Cara O'Neill | Chief Science | 40 | $124,759 |
| Katie Walton | Vice President | 40 | $118,051 |
| Daniel Fraley | Board Chair | 2 | — |
| Jessica Haywood | Director | 2 | — |
| Faith McAngus | Director | 2 | — |
| Shelby Leonardi | Secretary | 2 | — |
| Mike Lykes | Director | 2 | — |
| Ben Von Wong | Director | 2 | — |
| Adam Shaywitz | Director | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
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Similar funders by location and focus area
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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