Choroideremia Research Foundation Inc
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$811K
+1.2% YoY
Annual Giving
—
-100.0% YoY
Grant Count
0
-100.0% YoY
Avg Grant Size
—
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $810,811 | $801,239 | $985,906 |
| Revenue | $699,069 | $560,892 | $664,881 |
| Expenses | $689,478 | $745,500 | $584,677 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $38,678 | $24,167 | $11,682 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
11 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Choroideremia Research Foundation Inc fund?
Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Kathi Wagner | Executive Dir. | 40 | $97,948 |
| Tara Cassidy-Driscoll | Director | 1 | — |
| Michael Laengsfeld | Director | 1 | — |
| Jason McKinney | Director | 1 | — |
| Dr John Ross Rizzo | Director | 1 | — |
| Craig Rowley | Director | 1 | — |
| Jon Salois | Director | 1 | — |
| Bob Hiller | DIRECTOR | 1 | — |
| Brian Counter | Director | 1 | — |
| Aurelie Harp | Director | 1 | — |
| Yamil Rosete Rodriguez | Director | 1 | — |
| Stephanie Vetere Sims | Director | 1 | — |
| Mary Porter | Director | 1 | — |
| Rachel Oster | Director | 1 | — |
| Naama Goldman | Director | 1 | — |
| Thomas Driscoll | Director | 1 | — |
| Neal Bench | President | 1 | — |
| John Trott | 1st Vice Pres. | 1 | — |
| Michael Mullen | 2nd Vice Pres. | 1 | — |
| Brian Mayer | Secretary | 1 | — |
| Kayla Schiller | Treasurer | 1 | — |
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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