Choroideremia Research Foundation Inc
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Choroideremia Research Foundation Inc at a glance
In short: Choroideremia Research Foundation Inc gave $215K across 4 grants in 2025 (avg $54K), top state Wisconsin. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $214,946
- -5.3% vs 2024
- Grants made (2025)
- 4
- +33.3% vs 2024
- Average grant
- $53,737
- -29.0% vs 2024
- Median grant
- $44,973
- Total assets
- $956,687
- +18.0% vs 2024
- Primary geography
- Wisconsin (47% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Choroideremia Research Foundation Inc
- Next open deadline
- December 31, 2026 (General Research Grants)
Open Grants
3 open opportunities from Choroideremia Research Foundation Inc
General Research Grants
Choroideremia Research Foundation Inc
Amount
Varies
Deadline
December 31, 2026
Listed date — confirm with the funder
John Oster Leadership Award
Choroideremia Research Foundation Inc
Amount
Varies
Deadline
Deadline not published
Peter G. Boone Endowment Fund
Choroideremia Research Foundation Inc
Amount
Varies
Deadline
Deadline not published
Who Choroideremia Research Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was University of Wisconson ($100K). Together the top 4 received $215K.
Grant Size Distribution
18 grants across all recorded years
The most common grant size was under $50K: 10 grants of 18 (56%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
Cities
How Choroideremia Research Foundation Inc gives
- Giving grew 50% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $87K (2023) to $227K (2024). In 2025 it made 4 grants totaling $215K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Wisconson Madison, WI | General Support | $100,000 |
| University of Pennsylvannia Philadelphia, PA | General Support | $59,310 |
| University of Virginia Charlottesville, VA | General Support | $30,636 |
| University of Michigan Ann Arbor, MI | General Support | $25,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $956,687 | $964,837 | $819,056 | $214,946 | 4 | $30,908 |
| 2024 | $810,811 | $699,069 | $689,478 | $227,000 | 3 | $38,678 |
| 2023 | $801,239 | $560,892 | $745,500 | $87,391 | 3 | $24,167 |
| 2022 | $985,906 | $664,881 | $584,677 | $143,250 | 4 | $11,682 |
| 2021 | $905,807 | $672,399 | $574,049 | $178,000 | 4 | $355 |
| 2019 | $894,174 | $416,063 | $399,240 | $110,000 | 1 | $5,071 |
About Choroideremia Research Foundation Inc
Based on IRS filings
Choroideremia Research Foundation Inc is a public charity focused on Science & Technology, based in Springfield, MA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $957K in total assets. In 2025, it awarded 4 grants totaling $215K. Net investment income was $31K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Choroideremia Research Foundation Inc is led by Kathi Wagner, Executive Director on every filing since 2021; 1 of 21 officers listed in 2025 is compensated.
Officers on the 2025 filing
Kathi Wagner
Executive Director
On filings since 2021
40 hrs/week
$88K (2021) → $108K (2025)
Neal Bench
President
1st Vice President → President, 2021
On filings since 2019
1 hr/week
No compensation reported
Jason McKinney
Director
On filings since 2019
1 hr/week
No compensation reported
Michael Laengsfeld
Director
On filings since 2019
1 hr/week
No compensation reported
Thomas Driscoll
Director
On filings since 2019
1 hr/week
No compensation reported
Bob Hillier
Director
On filings since 2021
1 hr/week
No compensation reported
Jon Salois
Director
On filings since 2021
1 hr/week
No compensation reported
Tara Cassidy-Driscoll
Director
Director → Treasurer, 2023
Treasurer → Director, 2024
On filings since 2021
1 hr/week
No compensation reported
Aurelie Harp
Director
On filings since 2023
1 hr/week
No compensation reported
Brian Counter
Director
On filings since 2023
1 hr/week
No compensation reported
Mary Porter
Director
On filings since 2024
1 hr/week
No compensation reported
Rachel Oster
Director
On filings since 2024
1 hr/week
No compensation reported
John-Ross Rizzo
Director
New on the 2025 filing
1 hr/week
No compensation reported
Naama Goldman-Einhorn
Director
New on the 2025 filing
1 hr/week
No compensation reported
Sarah Thompson
Director
New on the 2025 filing
1 hr/week
No compensation reported
Yamil Rosete-Rodriguez
Director
New on the 2025 filing
1 hr/week
No compensation reported
Brian Mayer
Secretary
Director → Secretary, 2021
On filings since 2019
1 hr/week
No compensation reported
John Trott
Vice President
Secretary → 1st Vice President, 2021
1st Vice President → Vice President, 2025
On filings since 2019
1 hr/week
No compensation reported
Michael Mullen
Vice President
Director → 2nd Vice President, 2021
2nd Vice President → Vice President, 2025
On filings since 2019
1 hr/week
No compensation reported
Kayla Schiller
Treasurer
Director → Treasurer, 2022
On filings since 2021
1 hr/week
No compensation reported
Liza Zumsteg
Treasurer
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (21)
- Former: Stephanie Vetere Sims (2019–2024) — Director
- Former: Craig Rowley (2021–2024) — Director
- Former: John Ross Rizzo (2021–2024) — Director
- Former: Yamil Rosete Rodriguez (2023–2024) — Director
- Former: Naama Goldman (2024) — Director
- Former: John Oster (2019–2023) — Director
- Former: Tracey Pretorius (2021–2023) — Director
- Former: Jonathan Salois (2023) — Director
- Former: Robert Hillier (2023) — Director
- Former: Christopher Moen (2019–2022) — Director
- Former: Angela Ricketts (2021–2022) — Director
- Former: Dan Peterson (2021–2022) — Director
- Former: Bob Pettipaw (2019) — Director
- Former: Daniel Boren (2019) — Director
- Former: Jeff Benelli (2019) — Director
- Former: Lisa Volker (2019) — Director
- Former: Nicki Campbell (2019) — Director
- Former: Sue Kazmierczak (2019) — Director
- Former: Susan Devoe (2019) — Director
- Former: Tara Cassidy- Driscoll (2019) — Treasurer
- Former: Timmy Galvin (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $108K, to Kathi Wagner (Executive Director).
Frequently asked questions about Choroideremia Research Foundation Inc
How much does Choroideremia Research Foundation Inc give each year?
Choroideremia Research Foundation Inc gave $215K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $227K across 3 grants.
What is Choroideremia Research Foundation Inc's typical grant size?
Choroideremia Research Foundation Inc's median grant in 2025 was $44,973, and its average grant was $53,737, across 4 grants on its 2025 IRS Form 990.
Where does Choroideremia Research Foundation Inc give grants?
Choroideremia Research Foundation Inc's top state is Wisconsin, with 47% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Pennsylvania (28%) and Virginia (14%).
Does Choroideremia Research Foundation Inc give general operating support?
Yes: 100% of Choroideremia Research Foundation Inc's 2025 grants with a stated purpose (4 of 4) were for general or operating support, per its 2025 IRS Form 990.
How large is Choroideremia Research Foundation Inc?
Choroideremia Research Foundation Inc reported $957K in total assets on its 2025 IRS Form 990. Its revenue that year was $965K.
What is Choroideremia Research Foundation Inc?
Choroideremia Research Foundation Inc is a public charity focused on Science & Technology, based in Springfield, MA. It holds $957K in total assets as of 2025.
What is Choroideremia Research Foundation Inc's EIN?
Choroideremia Research Foundation Inc's EIN (Employer Identification Number) is 04-3511754. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS December 20, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 7, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS January 28, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS January 16, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 19, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS March 2, 2024)
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