To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$811K
+1.2% YoY
Revenue
$699K
+24.6% YoY
Net Investment Income
$39K
+60.0% YoY
Expenses
$689K
-7.5% YoY
About Choroideremia Research Foundation Inc
Based on IRS filings
Choroideremia Research Foundation Inc is a nonprofit organization focused on Science & Technology, based in SPRINGFIELD, MA. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $811K in total assets. Net investment income was $39K.
Focus Areas
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $810,811 | $801,239 | $985,906 |
| Revenue | $699,069 | $560,892 | $664,881 |
| Expenses | $689,478 | $745,500 | $584,677 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $38,678 | $24,167 | $11,682 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
11 grants across all recorded years
Open Grants
4 open opportunities from Choroideremia Research Foundation Inc
General Research Grants
CHOROIDEREMIA RESEARCH FOUNDATION INC
Amount
Varies
Deadline
December 31, 2026
John Oster Leadership Award
CHOROIDEREMIA RESEARCH FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Peter G. Boone Endowment Fund
CHOROIDEREMIA RESEARCH FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Kathi Wagner | Executive Dir. | 40 | $97,948 |
| Tara Cassidy-Driscoll | Director | 1 | — |
| Michael Laengsfeld | Director | 1 | — |
| Jason McKinney | Director | 1 | — |
| Dr John Ross Rizzo | Director | 1 | — |
| Craig Rowley | Director | 1 | — |
| Jon Salois | Director | 1 | — |
| Bob Hiller | DIRECTOR | 1 | — |
| Brian Counter | Director | 1 | — |
| Aurelie Harp | Director | 1 | — |
| Yamil Rosete Rodriguez | Director | 1 | — |
| Stephanie Vetere Sims | Director | 1 | — |
| Mary Porter | Director | 1 | — |
| Rachel Oster | Director | 1 | — |
| Naama Goldman | Director | 1 | — |
| Thomas Driscoll | Director | 1 | — |
| Neal Bench | President | 1 | — |
| John Trott | 1st Vice Pres. | 1 | — |
| Michael Mullen | 2nd Vice Pres. | 1 | — |
| Brian Mayer | Secretary | 1 | — |
| Kayla Schiller | Treasurer | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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