Chordoma Foundation

DURHAM, NC EIN: 20-8423943 Website

THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.

Financial Overview

From 2024 IRS Form 990-PF

Total Assets

$11.4M

+3.1% YoY

Annual Giving

$2.4M

+67.3% YoY

Grant Count

13

+62.5% YoY

Avg Grant Size

$185K

+3.0% YoY

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Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$4M$6M$8M20202021202220232024
Metric202420232022
Total Assets$11,385,145$11,037,912$7,599,511
Revenue$5,362,824$7,442,618$4,886,250
Expenses$6,834,629$4,597,074$3,088,769
Qualifying Distributions
Net Investment Income$445,749$218,994$15,406
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$601K$1M$2M$2M5 grants202012 grants20216 grants20228 grants202313 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

MEMORIAL SLOAN KETTERING…$408KUNIVERSITY OF TEXAS MD A…$400KNYU GROSSMAN SCHOOL OF M…$325KTHE BROAD INSTITUTE INC$300KSTART$276KCANCER RESEARCH INSTITUTE$250KAMERICAN ASSN FOR CANCER…$138KCHILDREN'S HOSPITAL OF P…$85KMASSACHUSETTS GEN HOSPITAL$57KUPMC DEPARTMENT OF NEURO…$50K

Grant Size Distribution

44 grants across all recorded years

14<$50K9$50–100K8$100–250K12$250–500K1$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Who else does Chordoma Foundation fund?

Explore the funder–grantee relationships behind this foundation, powered by GrantGraph™ — our database of 11 million+ funding connections.

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Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

KENNY BRIGHTONHEAD OF PHIL$216KDANIEL FREEDCHIEF SCIENT$204KJOSH SOMMEREXEC. DIR. &$174KSARA NICKHEAD OF ENGA$143KSHANNON LOZINSKYDIRECTOR OF$122KLEE DOLATSCIENTIST$112KSAI PERVEEN CHEMUDUP…DIRECTOR OF$105KJESSE BONGARTZHEAD OF FINA$101K

From 2024 filing

NameTitleHoursCompensation
KENNY BRIGHTONHEAD OF PHIL40$216,428
DANIEL FREEDCHIEF SCIENT40$204,345
JOSH SOMMEREXEC. DIR. &50$174,183
SARA NICKHEAD OF ENGA40$142,821
SHANNON LOZINSKYDIRECTOR OF40$121,708
LEE DOLATSCIENTIST40$112,452
SAI PERVEEN CHEMUDUPATIDIRECTOR OF40$105,347
JESSE BONGARTZHEAD OF FINA40$100,921
LESLIE ADLERDIRECTOR2
PAUL FELDMANDIRECTOR2
STEVEN GOLICKDIRECTOR2
CHRISTOPHER HEERYDIRECTOR2
ALICIA JEFFREYSDIRECTOR2
SUSAN MAHONYDIRECTOR2
STEVEN MANDELDIRECTOR2
LAUREN MULHOLLANDDIRECTOR2
SHREYASKUMAR PATELDIRECTOR2
DAVID SANDAKCHAIR2
MEGAN STEWARTDIRECTOR2
JOHN THERIENDIRECTOR2

Geographic Focus

Where this funder has awarded grants

Grant Distribution by State

13states
+5 more states

Cities

Ann ArborBaltimoreBar HarborBerkeleyBostonCambridgeChapel HillDurhamHoustonLargoLos AngelesMilwaukeeMinneapolisNew YorkPhiladelphiaPittsburgRentonSan AntonioWinstonsalem

Data last updated March 2026. Sourced from IRS Form 990-PF filings.

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