THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$11.4M
+3.1% YoY
Annual Giving
$2.4M
+67.3% YoY
Grant Count
13
+62.5% YoY
Avg Grant Size
$185K
+3.0% YoY
About Chordoma Foundation
Based on IRS filings
Chordoma Foundation is a nonprofit organization focused on Medical Research, based in DURHAM, NC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $11.4M in total assets. In 2024, it awarded 13 grants totaling $2.4M. Net investment income was $446K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $11,385,145 | $11,037,912 | $7,599,511 |
| Revenue | $5,362,824 | $7,442,618 | $4,886,250 |
| Expenses | $6,834,629 | $4,597,074 | $3,088,769 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $445,749 | $218,994 | $15,406 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
44 grants across all recorded years
Open Grants
2 open opportunities from Chordoma Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Memorial Sloan Kettering Cancer ($407,935), University of Texas Md Anderson Can ($400,000), Nyu Grossman School of Medicine ($325,000).
| Recipient | Purpose | Amount |
|---|---|---|
| CANCER RESEARCH INSTITUTE NEW YORK, NY | RESEARCH GRANT | $250,000 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA PHILADELPHIA, PA | RESEARCH GRANT | $84,723 |
| MASSACHUSETTS GEN HOSPITAL BOSTON, MA | RESEARCH GRANT | $56,500 |
| MEMORIAL SLOAN KETTERING CANCER NEW YORK, NY | RESEARCH GRANT | $407,935 |
| START SAN ANTONIO, TX | RESEARCH GRANT | $275,562 |
| THE BROAD INSTITUTE INC CAMBRIDGE, MA | RESEARCH GRANT | $299,789 |
| UNIVERSITY OF TEXAS MD ANDERSON CAN HOUSTON, TX | RESEARCH GRANT | $400,000 |
| UPMC DEPARTMENT OF NEUROSURGERY PITTSBURG, PA | RESEARCH GRANT | $50,000 |
| NYU GROSSMAN SCHOOL OF MEDICINE NEW YORK, NY | RESEARCH GRANT | $325,000 |
| CEDARS SINAI MEDICAL CENTER LOS ANGELES, CA | RESEARCH GRANT | $50,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KENNY BRIGHTON | HEAD OF PHIL | 40 | $216,428 |
| DANIEL FREED | CHIEF SCIENT | 40 | $204,345 |
| JOSH SOMMER | EXEC. DIR. & | 50 | $174,183 |
| SARA NICK | HEAD OF ENGA | 40 | $142,821 |
| SHANNON LOZINSKY | DIRECTOR OF | 40 | $121,708 |
| LEE DOLAT | SCIENTIST | 40 | $112,452 |
| SAI PERVEEN CHEMUDUPATI | DIRECTOR OF | 40 | $105,347 |
| JESSE BONGARTZ | HEAD OF FINA | 40 | $100,921 |
| LESLIE ADLER | DIRECTOR | 2 | — |
| PAUL FELDMAN | DIRECTOR | 2 | — |
| STEVEN GOLICK | DIRECTOR | 2 | — |
| CHRISTOPHER HEERY | DIRECTOR | 2 | — |
| ALICIA JEFFREYS | DIRECTOR | 2 | — |
| SUSAN MAHONY | DIRECTOR | 2 | — |
| STEVEN MANDEL | DIRECTOR | 2 | — |
| LAUREN MULHOLLAND | DIRECTOR | 2 | — |
| SHREYASKUMAR PATEL | DIRECTOR | 2 | — |
| DAVID SANDAK | CHAIR | 2 | — |
| MEGAN STEWART | DIRECTOR | 2 | — |
| JOHN THERIEN | DIRECTOR | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Chordoma Foundation?
Chordoma Foundation is a nonprofit organization focused on Medical Research, based in DURHAM, NC. It holds $11.4M in total assets as of 2024.
How large is Chordoma Foundation?
As of 2024, Chordoma Foundation holds $11.4M in total assets with $5.4M in annual revenue. It awarded 13 grants totaling $2.4M in 2024.
Where does Chordoma Foundation operate?
Chordoma Foundation has awarded grants in California, Florida, Massachusetts, Maryland, Maine, Michigan, Minnesota, North Carolina, New York, Pennsylvania, Texas, Washington, Wisconsin.
What size grants does Chordoma Foundation award?
In 2024, Chordoma Foundation awarded 13 grants totaling $2.4M — an average of about $185K per grant, based on its IRS Form 990 filings.
What is Chordoma Foundation's EIN?
Chordoma Foundation's EIN (Employer Identification Number) is 20-8423943. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Chordoma Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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