Childrens Rare Disease Organization Inc
To promote research of rare childrens diseases
Childrens Rare Disease Organization Inc at a glance
In short: Childrens Rare Disease Organization Inc reported $1K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.
- Grants paid (2025)
- $1,217 — reported as a total on the IRS filing, without an itemized list
- -98.8% vs 2024
- Total assets
- $290,744
- +4.7% vs 2024
- Revenue (2025)
- $16,012
- +90.4% vs 2024
- Net investment income (2025)
- $13,088
- +109.2% vs 2024
- Expenses (2025)
- $2,941
- -97.2% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Childrens Rare Disease Organization Inc
Open Grants
1 open opportunity from Childrens Rare Disease Organization Inc
Who Childrens Rare Disease Organization Inc funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 2 grants of 4 (50%).
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2025, annual grant giving ranged from $1K (2025) to $250K (2023). In 2025 it reported $1K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the Univ of Colorado Aurora, CO | Research | $98,048 |
Ready to take the next step with Childrens Rare Disease Organization Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $290,744 | $16,012 | $2,941 | $1,217 | Total only | $13,088 |
| 2024 | $277,619 | $8,409 | $103,864 | $98,048 | 1 | $6,256 |
| 2023 | $373,906 | $10,927 | $255,276 | $249,939 | 2 | $8,724 |
| 2022 | $644,438 | $1,612 | $86,450 | $74,800 | 1 | $242 |
| 2021 | $727,125 | $762,295 | $35,169 | — | — | $295 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Childrens Rare Disease Organization Inc
Based on IRS filings
Childrens Rare Disease Organization Inc is a public charity focused on Medical Research, based in Potomac, MD. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $291K in total assets. In 2025, it reported $1K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $13K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Childrens Rare Disease Organization Inc is led by Yunhua Jia, President on every filing since 2021; none of the 3 officers listed in 2025 report compensation.
Officers on the 2025 filing
Yunhua Jia
President
On filings since 2021
8 hrs/week
No compensation reported
Julia Carrier
Secretary
On filings since 2021
5 hrs/week
No compensation reported
Yan Bai
Treasury
On filings since 2021
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Childrens Rare Disease Organization Inc
How much does Childrens Rare Disease Organization Inc give each year?
Childrens Rare Disease Organization Inc reported $1K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it gave $98K across 1 grant.
How large is Childrens Rare Disease Organization Inc?
Childrens Rare Disease Organization Inc reported $291K in total assets on its 2025 IRS Form 990. Its revenue that year was $16K.
What is Childrens Rare Disease Organization Inc?
Childrens Rare Disease Organization Inc is a public charity focused on Medical Research, based in Potomac, MD. It holds $291K in total assets as of 2025.
Where does Childrens Rare Disease Organization Inc operate?
Childrens Rare Disease Organization Inc has awarded grants in Colorado, Ohio.
What is Childrens Rare Disease Organization Inc's EIN?
Childrens Rare Disease Organization Inc's EIN (Employer Identification Number) is 86-1179378. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2025 (received by the IRS March 7, 2026)
- Updated Form 990 for fiscal year 2022 (received by the IRS March 2, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS February 20, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 2, 2025)
Live grants for the work Childrens Rare Disease Organization Inc funds
Medical Research Open opportunities, soonest deadline first.
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
- Social, Political and Economic Inequality Grants Due October 28, 2026
- Special Initiative: Implications of the 2023 Supreme Court Decision on Race-Conscious Admissions (SCD23) Due October 28, 2026
Explore Open Grants
Browse active grant opportunities in Childrens Rare Disease Organization Inc's focus areas in our free grants database
Similar Funders
Similar funders in Maryland
Annie E Casey Foundation Inc
Baltimore, MD
The Annie E. Casey Foundation funds U.S. nonprofits and other partners working to improve outcomes for children and young people, including family strengthening, child welfare, education, employment, community development and juvenile justice. In 2024, grants ranged from $50 to $1,185,000, with a median of $40,000. Grants are by invitation only; it does not accept unsolicited requests.
Assets
$2.3B
Grants
1,462
Total Given
$93.1M
The Harry and Jeanette Weinberg
Owings Mills, MD
The Harry and Jeanette Weinberg Foundation funds direct services, programs, general operations, and capital projects in housing, health, jobs, education, and aging for low-income and vulnerable people. Its 2024 grants had a median of $50,000; its Small Grants Program offers up to $50,000 over two years, with funding focused on Baltimore, Hawaiʻi, Israel, and Northeastern Pennsylvania. It awards grants by invitation only and does not accept unsolicited requests.
Assets
$1.8B
Grants
872
Total Given
$127.8M
Johns Hopkins University
Baltimore, MD
Johns Hopkins University funds a broad range of education, research, health, and community-related work, with 2025 grants ranging from $5,500 to nearly $95 million and a median of $100,000; many of the largest awards were sub-awards. Its grants went to organizations across the U.S., with the largest shares in California and Maryland, and the profile does not state whether it accepts unsolicited requests.
Assets
$25.3B
Grants
813
Total Given
$594.1M
The Keith Campbell Foundation
Bethesda, MD
The Keith Campbell Foundation funds nonprofits working for equitable, livable communities, especially on watershed health, clean water, agriculture, and related community needs, with a focus on the Chesapeake and Atlantic Coastal Bays and California’s San Francisco Bay watershed. Giving varies widely: 2024 grants ranged from $40 to $1.5 million, with a median of $5,000. It accepts unsolicited requests, with two application cycles per year.
Assets
$420.2M
Grants
688
Total Given
$27.9M
Cystic Fibrosis Foundation
Bethesda, MD
The Cystic Fibrosis Foundation funds cystic fibrosis research, drug development, specialized care, and related training and clinical programs. In 2024, its grants had a median of about $150,000, with awards ranging from $2,800 to nearly $12.9 million; it supports work nationwide. Applications are submitted through specific funding opportunities, but the profile does not state whether unsolicited requests are accepted.
Assets
$5.0B
Grants
624
Total Given
$189.6M
Baltimore Community Foundation Inc
Baltimore, MD
Baltimore Community Foundation supports schools, neighborhoods, and community projects, including work on kindergarten readiness, student well-being, neighborhood vitality, and arts and culture. Its 2024 grants had a median of about $19,800, with amounts varying widely, and its strategic school and neighborhood grants focus on Baltimore City and Baltimore County. It invites applications through its online portal for specified grant programs.
Assets
$314.3M
Grants
604
Total Given
$29.3M
More similar funders
More Funders in Maryland
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Childrens Rare Disease Organization Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Childrens Rare Disease Organization Inc down — hundreds of funders to go?