Rare Disease Research Grants

The Children's Rare Disease Organization offers rare disease research grants to support innovative research into the causes, cures, and treatments of rare pediatric diseases. The organization is committed to empowering organizations and institutions through funding that addresses critical unmet medical needs.

Focus Areas

• Rare pediatric disease research
• Research into causes, cures, and treatments of rare childhood diseases
• Studies addressing unmet medical needs
• Investigation of serious rare conditions

Eligibility

• Applicants: Organizations and institutions dedicated to rare pediatric disease research
• Organizations must demonstrate commitment to the Children's Rare Disease Organization's mission to cure rare childhood diseases

What the Organization Funds

• Innovative research into rare pediatric diseases
• Research proposals with potential to address unmet medical needs
• Studies investigating serious rare conditions

Geographic Scope

• United States (based in Bethesda, MD)

Requirements & Expectations

• Grant recipients must provide regular research progress reports
• Adherence to the agreed-upon proposal and budget
• Regular updates on progress and fund utilization
• High standards of accountability and transparency
• Annual review of fund utilization by the Board
• Restitution required for any misuse of funds or financial discrepancies

Contact Information

• Email: info@childrenraredisease.org
• Phone: (301) 801-3271
• Mailing Address: Children's Rare Disease Organization, P.O. Box 341382, 10421 Motor City Dr., Bethesda, MD 20817-9996

Selection Criteria

Proposals are evaluated based on:

• Merit of the research
• Alignment with the organization's mission
• Potential to address unmet medical needs
• Seriousness of the condition under investigation

How to Apply

1. Download the application form from the Children's Rare Disease Organization website
2. Prepare your research proposal including:
   • Study objectives
   • Methodology
   • Anticipated impact
   • Comprehensive budget
3. Submit your application by emailing to: info@childrenraredisease.org
   • Include the completed application form
   • Include your comprehensive research proposal
   • Include your detailed budget
4. Await Board Review
   • The Board will evaluate your proposal on its merit
   • Review will assess alignment with the organization's mission to cure rare childhood diseases
5. Upon Award
   • Conduct research according to the agreed-upon proposal and budget
   • Provide regular progress reports
   • Update the organization on progress and fund utilization

Required Materials

• Completed application form
• Detailed research proposal
• Comprehensive budget

Submission Details

• Submission Method: Email to info@childrenraredisease.org
• Contact for Questions: Representatives available to guide applicants through the application process by contacting the organization with questions