Beyond Celiac logo

Beyond Celiac

Public charity · Grantmaker Ambler, PA EIN: 90-0108854 Website

Beyond Celiac unites with patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure.

Beyond Celiac at a glance

In short: Beyond Celiac gave $100K across 1 grant in 2024 (avg $100K), mostly in Minnesota. Source: 2024 IRS Form 990.

Annual giving (2024)
$100,000
+0.0% vs 2023
Grants made (2024)
1
+0.0% vs 2023
Average grant
$100,000
+0.0% vs 2023
Median grant
$100,000
Total assets
$5,399,178
+17.1% vs 2023
Primary geography
Minnesota (100% of itemized 2024 grant dollars)
Latest 990 filing
Form 990, 2024 View filing

Data from IRS Form 990, 2024; updated September 2026.

How to apply to Beyond Celiac

Who Beyond Celiac funds

How this funder distributes its grants

Top Recipients

Top recipient in 2024

Rok Seon Choung Mayo Clinic: $100KRok Seon Choung Mayo Clinic$100K

The largest 2024 recipient was Rok Seon Choung Mayo Clinic ($100K).

Grant Size Distribution

3 grants across all recorded years

<$50K$50–100K3$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 3 grants of 3 (100%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Share of the 2024 grant dollars on its one itemized grant.

Cities

RochesterBostonDowners GroveNew York

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K2 grants2019 0 grants2020 Total only2021 1 grant2022 1 grant2023 1 grant2024

From 2019 to 2024, annual grant giving ranged from $75K (2021) to $275K (2019). In 2024 it made 1 grant totaling $100K.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Rok Seon Choung Mayo Clinic Rochester, MNResearch$100,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2024$5,399,178$3,296,947$2,985,918$100,0001$102,407
2023$4,610,157$3,093,277$2,940,619$100,0001$120,430
2022$4,645,706$2,656,405$2,550,939$194,4001$136,463
2021$4,983,659$2,452,023$2,319,686$75,000Total only$99,041
2020$3,765,104$1,763,432$1,843,715——$56,978
2019$3,933,668$1,938,199$2,263,431$274,8002$61,604

"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.

About Beyond Celiac

Based on IRS filings

Beyond Celiac is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Ambler, PA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $5.4M in total assets. In 2024, it awarded 1 grant totaling $100K. Net investment income was $102K.

Leadership & Key People

Officers and directors from IRS filings

Beyond Celiac is led by Alice Bast, CEO on every filing since 2019; 2 of 19 officers listed in 2024 are compensated.

Officers on the 2024 filing

  • Alice Bast

    CEO

    On filings since 2019

    40 hrs/week

    $150K (2019) → $299K (2024)

  • Alan M. Ehrlich MD

    Chair

    On filings since 2019

    4 hrs/week

    No compensation reported

  • Barbara Weir Powers

    Director

    Secretary → Director, 2024

    On filings since 2019

    3 hrs/week

    No compensation reported

  • Brittany Baker

    Director

    On filings since 2019

    1 hr/week

    No compensation reported

  • C. Kane Brenan

    Director

    Director → Vice Chair, 2021

    Vice Chair → Director, 2024

    On filings since 2019

    3 hrs/week

    No compensation reported

  • Jennifer Platzkere Snyder Esq.

    Director

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Lisa R. Agdern

    Director

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Carole Haas Gravagno

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Jennifer Brownstein

    Director

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Sarena Snider

    Director

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Alison Solomon

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Arturo Chacon Cruz

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • James Andrews

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Sharon Gaffney

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Valerie Cohn

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Mary Kate Carofano

    COO

    CAO → COO, 2024

    On filings since 2022

    40 hrs/week

    $163K (2022) → $175K (2024)

  • R. Bennett Muskin

    Secretary

    Director → Secretary, 2024

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Todd Hammer

    Vice Chair

    Director → Vice Chair, 2024

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Lawrence P. Flynn CPA

    Treasurer

    Director → Treasurer, 2023

    On filings since 2022

    4 hrs/week

    No compensation reported

Former officers (16)
  • Former: Gerald Bertiger MD (2019–2023) — Director
  • Former: Ritu Verma MD (2019–2023) — Director
  • Former: Gregg Melinson (2020–2023) — Director
  • Former: Salvatore Alesci (2021–2023) — Csso
  • Former: Bennett Muskin (2022–2023) — Secretary
  • Former: Alison Reemer (2023) — Director
  • Former: Barb Weir Powers (2023) — Director
  • Former: Edward Lewin (2023) — Director
  • Former: Jennifer Platzkere Snyderesq (2023) — Director
  • Former: Robert J. Beall PhD (2019–2022) — Director
  • Former: Ed Lewin (2021–2022) — Director
  • Former: Carolyn Jackson (2019–2020) — Treasurer
  • Former: Chad Shaffer Md Faafp (2019–2020) — Director
  • Former: Denise L. Devine (2019–2020) — Director
  • Former: Aimee Corso (2019) — Director
  • Former: Linda S. Deal Ms (2019) — Director

Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Alice Bast — CEO: $299KAlice BastCEO$299KMary Kate Carofano — COO: $175KMary Kate CarofanoCOO$175K

The highest reported compensation on the 2024 filing was $299K, to Alice Bast (CEO). 2 officers or directors reported compensation on that filing.

Frequently asked questions about Beyond Celiac

How much does Beyond Celiac give each year?

Beyond Celiac gave $100K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $100K across 1 grant.

How large is Beyond Celiac?

Beyond Celiac reported $5.4M in total assets on its 2024 IRS Form 990. Its revenue that year was $3.3M.

What is Beyond Celiac?

Beyond Celiac is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Ambler, PA. It holds $5.4M in total assets as of 2024.

Where does Beyond Celiac operate?

Beyond Celiac has awarded grants in Illinois, Massachusetts, Minnesota, New York.

What is Beyond Celiac's EIN?

Beyond Celiac's EIN (Employer Identification Number) is 90-0108854. IRS Form 990 filing data is available on this page for 2019–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(6)

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2019 (received by the IRS February 11, 2020)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS February 25, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS March 15, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS February 22, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS September 3, 2025)
  6. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Beyond Celiac's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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