Beyond Celiac logo

Beyond Celiac

Public charity · Grantmaker Ambler, PA EIN: 90-0108854 Website

Beyond Celiac unites with patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure.

Beyond Celiac at a glance

In short: Beyond Celiac gave $70K across 1 grant in 2025 (avg $70K), mostly in Minnesota. Source: 2025 IRS Form 990.

Annual giving (2025)
$70,000
-30.0% vs 2024
Grants made (2025)
1
+0.0% vs 2024
Average grant
$70,000
-30.0% vs 2024
Median grant
$70,000
Total assets
$6,096,770
+12.9% vs 2024
Primary geography
Minnesota (100% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated November 2026.

How to apply to Beyond Celiac

Who Beyond Celiac funds

How this funder distributes its grants

Top Recipients

Top recipient in 2025

Rok Seon Choung Mayo Clinic: $70KRok Seon Choung Mayo Clinic$70K

The largest 2025 recipient was Rok Seon Choung Mayo Clinic ($70K).

Grant Size Distribution

4 grants across all recorded years

<$50K1$50–100K3$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 3 grants of 4 (75%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Share of the 2025 grant dollars on its one itemized grant.

Cities

RochesterBostonDowners GroveNew York

How Beyond Celiac gives

  • Giving fell 64% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K2 grants2019 0 grants2020 Total only2021 1 grant2022 1 grant2023 1 grant2024 1 grant2025

From 2019 to 2025, annual grant giving ranged from $70K (2025) to $275K (2019). In 2025 it made 1 grant totaling $70K.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Rok Seon Choung Mayo Clinic Rochester, MNResearch$70,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$6,096,770$3,102,549$2,741,752$70,0001$115,754
2024$5,399,178$3,296,947$2,985,918$100,0001$102,407
2023$4,610,157$3,093,277$2,940,619$100,0001$120,430
2022$4,645,706$2,656,405$2,550,939$194,4001$136,463
2021$4,983,659$2,452,023$2,319,686$75,000Total only$99,041
2020$3,765,104$1,763,432$1,843,715——$56,978
2019$3,933,668$1,938,199$2,263,431$274,8002$61,604

"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.

About Beyond Celiac

Based on IRS filings

Beyond Celiac is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Ambler, PA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $6.1M in total assets. In 2025, it awarded 1 grant totaling $70K. Net investment income was $116K.

Leadership & Key People

Officers and directors from IRS filings

Beyond Celiac is led by Alice Bast, Executive Director since 2025 (on filings since 2019); 7 of 27 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Alice Bast

    Executive Director

    CEO → Executive Director, 2025

    On filings since 2019

    40 hrs/week

    $150K (2019) → $345K (2025)

  • Alan M. Ehrlich MD

    Chair

    On filings since 2019

    4 hrs/week

    No compensation reported

  • Angela Crist

    Director of Communications

    New on the 2025 filing

    40 hrs/week

    $109K (2025)

  • Eric White

    Director of Business Development

    New on the 2025 filing

    30 hrs/week

    $106K (2025)

  • George Gorge

    Senior Director of Finance

    New on the 2025 filing

    35 hrs/week

    $102K (2025)

  • Mary Tackett

    Senior Director of Philanthropy

    New on the 2025 filing

    32 hrs/week

    $103K (2025)

  • Brittany Baker

    Director

    On filings since 2019

    1 hr/week

    No compensation reported

  • C. Kane Brenan

    Director

    Director → Vice Chair, 2021

    Vice Chair → Director, 2024

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Jennifer Platzkere Snyder Esq.

    Director

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Lisa R. Agdern

    Director

    On filings since 2021

    4 hrs/week

    No compensation reported

  • Carole Haas Gravagno

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Jennifer Brownstein

    Director

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Barb Weir Powers

    Director

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Sarena Snider

    Director

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Alison Reemer Solomon

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Arturo Chacon Cruz

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • James Andrews

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Sharon Gaffney

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Valerie Cohn

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Doug Jacobstein

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Jaime Lipson

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Zack Boger

    Director

    New on the 2025 filing

    3 hrs/week

    No compensation reported

  • Mary Kate Carofano

    Chief Operating Officer

    CAO → COO, 2024

    COO → Chief Operating Officer, 2025

    On filings since 2022

    40 hrs/week

    $163K (2022) → $225K (2025)

  • Debra Silberg

    Chief Scientific Officer

    New on the 2025 filing

    20 hrs/week

    $130K (2025)

  • R. Bennett Muskin

    Secretary

    Director → Secretary, 2024

    On filings since 2020

    3 hrs/week

    No compensation reported

  • Todd Hammer

    Vice Chair

    Director → Vice Chair, 2024

    On filings since 2021

    3 hrs/week

    No compensation reported

  • Lawrence P. Flynn CPA

    Treasurer

    Director → Treasurer, 2023

    On filings since 2022

    4 hrs/week

    No compensation reported

Former officers (16)
  • Former: Barbara Weir Powers (2019–2024) — Director
  • Former: Gerald Bertiger MD (2019–2023) — Director
  • Former: Ritu Verma MD (2019–2023) — Director
  • Former: Gregg Melinson (2020–2023) — Director
  • Former: Salvatore Alesci (2021–2023) — Csso
  • Former: Bennett Muskin (2022–2023) — Secretary
  • Former: Alison Reemer (2023) — Director
  • Former: Edward Lewin (2023) — Director
  • Former: Jennifer Platzkere Snyderesq (2023) — Director
  • Former: Robert J. Beall PhD (2019–2022) — Director
  • Former: Ed Lewin (2021–2022) — Director
  • Former: Carolyn Jackson (2019–2020) — Treasurer
  • Former: Chad Shaffer Md Faafp (2019–2020) — Director
  • Former: Denise L. Devine (2019–2020) — Director
  • Former: Aimee Corso (2019) — Director
  • Former: Linda S. Deal Ms (2019) — Director

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Alice Bast — Executive Director: $345KAlice BastExecutive Director$345KMary Kate Carofano — Chief Operating Officer: $225KMary Kate CarofanoChief Operating Officer$225KDebra Silberg — Chief Scientific Officer: $130KDebra SilbergChief Scientific Officer$130KAngela Crist — Director of Communications: $109KAngela CristDirector of Communications$109KEric White — Director of Business Development: $106KEric WhiteDirector of Business Development$106KMary Tackett — Senior Director of Philanthropy: $103KMary TackettSenior Director of Philanthropy$103KGeorge Gorge — Senior Director of Finance: $102KGeorge GorgeSenior Director of Finance$102K

The highest reported compensation on the 2025 filing was $345K, to Alice Bast (Executive Director). 7 officers or directors reported compensation on that filing.

Frequently asked questions about Beyond Celiac

How much does Beyond Celiac give each year?

Beyond Celiac gave $70K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $100K across 1 grant.

How large is Beyond Celiac?

Beyond Celiac reported $6.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $3.1M.

What is Beyond Celiac?

Beyond Celiac is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Ambler, PA. It holds $6.1M in total assets as of 2025.

Where does Beyond Celiac operate?

Beyond Celiac has awarded grants in Illinois, Massachusetts, Minnesota, New York.

What is Beyond Celiac's EIN?

Beyond Celiac's EIN (Employer Identification Number) is 90-0108854. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated November 2026. Sourced from IRS Form 990 filings.

Data update history

(7)

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS September 14, 2026)
  2. Added Form 990 for fiscal year 2019 (received by the IRS February 11, 2020)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS February 25, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS March 15, 2023)
  5. Updated Form 990 for fiscal year 2023 (received by the IRS February 22, 2024)
  6. Updated Form 990 for fiscal year 2024 (received by the IRS September 3, 2025)
  7. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Beyond Celiac's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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