American Cleft Palate - Craniofacial Association

Public charity · Grantmaker Chapel Hill, NC EIN: 43-0793521

Partnering with patients, families, and professionals, acpa values excellence in collaboration, support, education, innovative research, and interdisciplinary team care.

American Cleft Palate - Craniofacial Association at a glance

In short: American Cleft Palate - Craniofacial Association gave $20K across 3 grants in 2024 (avg $7K), mostly in Wisconsin. Source: 2024 IRS Form 990.

Annual giving (2024)
$20,000
Grants made (2024)
3
Average grant
$6,667
Median grant
$5,000
Total assets
$4,947,826
+7.6% vs 2023
Primary geography
Wisconsin (50% of itemized 2024 grant dollars)
Latest 990 filing
Form 990, 2024 View filing

Data from IRS Form 990, 2024; updated September 2026.

How to apply to American Cleft Palate - Craniofacial Association

Who American Cleft Palate - Craniofacial Association funds

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

Illinois State University: $5KIllinois State University$5KKentucky Welding Institute: $5KKentucky Welding Institute$5K

The largest 2024 recipient was Illinois State University ($5K). Together the top 2 received $10K.

Organizations only. It also paid 1 individual scholarship ($10,000), which are not listed by name.

Grant Size Distribution

3 grants across all recorded years

3<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 3 grants of 3 (100%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

3states

Share of 2024 grant dollars across all 3 itemized grants.

Cities

FlemingsburgNormalLa Crosse

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$5K$10K$15K$20K0 grants2019 0 grants2020 0 grants2021 0 grants2022 0 grants2023 3 grants2024

In 2024 it made 3 grants totaling $20K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
1 individual scholarship Recipients not named —$10,000
Illinois State University Normal, ILAcpa Randall/Larossa General College Scholarship Award$5,000
Kentucky Welding Institute Flemingsburg, KYRandall/Larossa Vocational College Scholarship Award$5,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2024$4,947,826$1,717,290$1,704,271$20,0003$211,467
2023$4,599,838$1,476,950$1,570,743——$155,102
2022$4,385,249$2,071,636$1,545,142——$440,753
2021$4,398,281$1,735,845$1,086,265——$96,343
2020$3,641,702$906,265$1,173,117——$67,143
2019$3,668,646$1,735,794$1,502,614——$75,906

About American Cleft Palate - Craniofacial Association

Based on IRS filings

American Cleft Palate - Craniofacial Association is a public charity, based in Chapel Hill, NC. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $4.9M in total assets. In 2024, it awarded 3 grants totaling $20K. Net investment income was $211K.

Leadership & Key People

Officers and directors from IRS filings

American Cleft Palate - Craniofacial Association is led by Adam M. Levy, Executive Director since 2024 (on filings since 2020); 2 of 17 officers listed in 2024 are compensated.

Officers on the 2024 filing

  • Adam M. Levy

    Executive Director

    Ex-Officio → Executive Director, 2024

    On filings since 2020

    40 hrs/week

    $51K (2020) → $179K (2024)

  • Adriane Bayliss

    President

    Vice President → President-El, 2023

    President-El → President, 2024

    On filings since 2022

    5 hrs/week

    No compensation reported

  • Jamie Perry

    Ex-Officio

    On filings since 2022

    1 hr/week

    $24K (2022) → $29K (2024)

  • Canice Crerand

    Vice President-Elect

    Board Member → Vice President-Elect, 2024

    On filings since 2019

    2.5 hrs/week

    No compensation reported

  • Oksana Jackson

    President-Elect

    Board Member → Vice President, 2022

    Vice President → President-Elect, 2024

    On filings since 2019

    2.5 hrs/week

    No compensation reported

  • Scott A. Dailey PhD

    Treasurer

    On filings since 2019

    2.5 hrs/week

    No compensation reported

  • Deji Fashemo

    Board Member

    On filings since 2022

    1 hr/week

    No compensation reported

  • Jame Cray

    Communications Officer

    Communications → Communications Officer, 2024

    On filings since 2022

    1 hr/week

    No compensation reported

  • John Caccamese

    Past-President

    President-El → President, 2023

    President → Past-President, 2024

    On filings since 2022

    2.5 hrs/week

    No compensation reported

  • Kelly Nett Cordero

    Board Member

    On filings since 2022

    1 hr/week

    No compensation reported

  • Lindsay Schuster

    Board Member

    On filings since 2023

    1 hr/week

    No compensation reported

  • Mel Ploutz

    Board Member

    On filings since 2023

    1 hr/week

    No compensation reported

  • Steven Goudy

    Vice President

    On filings since 2023

    1 hr/week

    No compensation reported

  • Gregory Pearson

    Board Member

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Joli Chou

    Board Member

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Stephen Len

    Ex-Officio

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Suzanne Santomieri

    Ex-Officio

    New on the 2024 filing

    1 hr/week

    No compensation reported

Former officers (31)
  • Former: Greg Bowden (2021–2023) — Ex-Officio
  • Former: Krishna G. Patel MD PhD (2021–2023) — Board Member
  • Former: Amy Mendillo (2022–2023) — Ex-Officio
  • Former: John Girotto (2022–2023) — Past President
  • Former: Sean Edwards (2022–2023) — Board Member
  • Former: Janice Rockwood (2022) — Board Member
  • Former: Kant Lyn (2022) — Board Member
  • Former: Lynn Fox (2022) — Past-Preside
  • Former: Jamie L. Perry Phd Ccc-Slp (2019–2021) — Ex-Officio
  • Former: John A. Girotto Md Mma Faap Facs (2019–2021) — President - & Vice President
  • Former: Kelly Nett Cordero Phd Ccc-Slp (2019–2021) — Board Member
  • Former: Patricia A. Beals Dmd Ms (2019–2021) — Past President
  • Former: Janice R. Rockwood Rn Bsn (2020–2021) — Board Member
  • Former: Kant Y. Lin MD (2020–2021) — Board Member
  • Former: Kristina J. Aldridge PhD (2020–2021) — Communications
  • Former: Scott A. Dailey Phd Ccc-Slp (2020–2021) — Treasurer
  • Former: Adam M. Levy Cae (2021) — Ex-Officio
  • Former: Adriane L. Baylis Phd Ccc-Slp (2021) — Vice Presien
  • Former: Amy Mendillo M. M. MPP (2021) — Ex-Officio
  • Former: Lynn M. Fox Ma M. Ed Ccc-Slp (2021) — President
  • Former: Sean P. Edwards Md Dds Facs Frcd (2021) — Board Member
  • Former: Bernard J. Costello DMD MD (2019–2020) — Past President
  • Former: John A. Van Aalst MD (2019–2020) — Board Member
  • Former: Lynn M. Fox Ma Med (2019–2020) — President-Elect
  • Former: Michael T. Friel Md Facs Faap (2019–2020) — Ex-Officio
  • Former: Snehlata Oberoi Bds Mds DDS (2019–2020) — Board Member
  • Former: Yvonne Gutierrez MD (2019–2020) — Ex-Officio
  • Former: Amelia F. Drake MD (2019) — Past President
  • Former: Jack C. Yu Md Dmd Ms Ed (2019) — Ex-Officio
  • Former: Patricia Chibbaro Ms Rn Cpnp (2019) — Board Member
  • Former: Wendy-Jo Toyama (2019) — Executive Director

Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Adam Levy — Executive Director: $179KAdam LevyExecutive Director$179KJamie Perry — Ex-Officio: $29KJamie PerryEx-Officio$29K

The highest reported compensation on the 2024 filing was $179K, to Adam Levy (Executive Director). 2 officers or directors reported compensation on that filing.

Frequently asked questions about American Cleft Palate - Craniofacial Association

How much does American Cleft Palate - Craniofacial Association give each year?

American Cleft Palate - Craniofacial Association gave $20K across 3 grants in 2024, according to its 2024 IRS Form 990.

What is American Cleft Palate - Craniofacial Association's typical grant size?

American Cleft Palate - Craniofacial Association's median grant in 2024 was $5,000, and its average grant was $6,667, across 3 grants on its 2024 IRS Form 990.

Where does American Cleft Palate - Craniofacial Association give grants?

American Cleft Palate - Craniofacial Association gives mostly in Wisconsin: 50% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were Illinois (25%) and Kentucky (25%).

Does American Cleft Palate - Craniofacial Association give general operating support?

Yes: 33% of American Cleft Palate - Craniofacial Association's 2024 grants with a stated purpose (1 of 3) were for general or operating support, per its 2024 IRS Form 990.

How large is American Cleft Palate - Craniofacial Association?

American Cleft Palate - Craniofacial Association reported $4.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.7M.

What is American Cleft Palate - Craniofacial Association's EIN?

American Cleft Palate - Craniofacial Association's EIN (Employer Identification Number) is 43-0793521. IRS Form 990 filing data is available on this page for 2019–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(2)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2024 (received by the IRS April 8, 2025)
  2. IRS filings on file for fiscal years 2019–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from American Cleft Palate - Craniofacial Association's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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