MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$640K
+27.6% YoY
Revenue
$648K
+13.4% YoY
Net Investment Income
$43K
+167.1% YoY
Expenses
$513K
-5.0% YoY
About Alagille Syndrome Alliance
Based on IRS filings
Alagille Syndrome Alliance is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $640K in total assets. Net investment income was $43K.
Focus Areas
Ready to take the next step with Alagille Syndrome Alliance?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $640,163 | $501,551 | $468,720 |
| Revenue | $647,970 | $571,645 | $585,146 |
| Expenses | $512,614 | $539,670 | $554,545 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $43,403 | $16,252 | $-2,097 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Open Grants
6 open opportunities from Alagille Syndrome Alliance
ALGSA Research Grant Program
ALAGILLE SYNDROME ALLIANCE
Amount
$5,000
Deadline
Rolling / Open
ALGSAccess Program - General Support
ALAGILLE SYNDROME ALLIANCE
Amount
Varies
Deadline
Rolling / Open
ALGSAssistance Continuity of Care Program
ALAGILLE SYNDROME ALLIANCE
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ROBERTA SMITH | PRESIDENT | 40 | $130,744 |
| SEAN KELLY | DIRECTOR | 2 | — |
| MIKE LAROSA | DIRECTOR | 2 | — |
| SHAMY RAVISHANKAR | DIRECTOR | 2 | — |
| TODD ALLEN | TREASURER | 10 | — |
| JULIA BIRD | CHAIRMAN | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Alagille Syndrome Alliance?
Alagille Syndrome Alliance is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. It holds $640K in total assets as of 2024.
How large is Alagille Syndrome Alliance?
As of 2024, Alagille Syndrome Alliance holds $640K in total assets with $648K in annual revenue.
Where does Alagille Syndrome Alliance operate?
Alagille Syndrome Alliance has awarded grants in California, Pennsylvania.
What is Alagille Syndrome Alliance's EIN?
Alagille Syndrome Alliance's EIN (Employer Identification Number) is 93-1243619. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Alagille Syndrome Alliance's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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