MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$640K
+27.6% YoY
Revenue
$648K
+13.4% YoY
Net Investment Income
$43K
+167.1% YoY
Expenses
$513K
-5.0% YoY
About Alagille Syndrome Alliance
Based on IRS filings
Alagille Syndrome Alliance is a nonprofit organization focused on Medical Research, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $640K in total assets. Net investment income was $43K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $640,163 | $501,551 | $468,720 |
| Revenue | $647,970 | $571,645 | $585,146 |
| Expenses | $512,614 | $539,670 | $554,545 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $43,403 | $16,252 | $-2,097 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ROBERTA SMITH | PRESIDENT | 40 | $130,744 |
| SEAN KELLY | DIRECTOR | 2 | — |
| MIKE LAROSA | DIRECTOR | 2 | — |
| SHAMY RAVISHANKAR | DIRECTOR | 2 | — |
| TODD ALLEN | TREASURER | 10 | — |
| JULIA BIRD | CHAIRMAN | 2 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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