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ALGSAccess Program - General Support

ALAGILLE SYNDROME ALLIANCE

Foundation Rolling (Quarterly) Grants for Disabled

Funding Amount

Varies

Deadline

Rolling / Open

Grant Type

foundation

Overview

ALGSAccess Program

Purpose: Improve access to medications, supplements, services, clinical trials, and research opportunities for patients and families affected by ALGS. Created to combat private and government insurance denials for medical care, medications, supplements, equipment, and other needs.

What the Program Provides:

  • Support letters to aid in appealing for approval of VA services

  • Support for disability approval appeals

  • Assistance with insurance denials related to ALGS care

  • Guidance on accessing clinical trials and research opportunities

  • Travel scholarships for event attendance

  • Event travel and attendance support

  • Access to medications, clinical trials, and research opportunities

    • Eligibility: Patients and families affected by Alagille Syndrome

    Geographic Scope: Primary focus on US but international support available

    Contact Information:

  • Email: alagille@alagille.org

  • Phone: 989.218.9028

  • Website: alagille.org

  • Mailing Address: Alagille Syndrome Alliance, P.O. Box 22, Collierville, TN 38027

    • How to Apply

    Application Process

    Submission: Contact via the program contact form on the ALGSAccess Program page

    Required Information:

  • Description of access barrier or denial

  • Relevant medical and insurance information

  • Type of support needed (support letter, appeal assistance, etc.)

    • Contact Methods:

  • Complete online contact form at: https://alagille.org/programs/access-program/

  • Email: alagille@alagille.org

  • Phone: 989.218.9028

    • Process:

  • Connect with ALGSAccess team to discuss denial or access issue

  • Receive guidance on next steps

  • Obtain support documentation as needed

    • Apply with Grantable Learn more

    Focus Areas & Funding Uses

    Fields of Work

    disabled

    Categories

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