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Medication Access Patient Program (MAPP)

ALAGILLE SYNDROME ALLIANCE

Foundation Rolling (Quarterly) Hardship GrantsGrants for Disabled

Funding Amount

Varies

Deadline

Rolling / Open

Grant Type

foundation

Overview

Medication Access Patient Program (MAPP)

Purpose: Help patients and families in South America affected by Alagille Syndrome with out-of-pocket expenses for medications, vitamins, supplements, and formulas essential to their ALGS-related care.

Geographic Scope: Currently available for patients and families living in Brazil only. Program designed to address barriers to the access of essential medicines for ALGS patients in South America.

Partner: Developed with guidance and support from Tanner Pharma Group

What is Covered: Out-of-pocket expenses for:

  • Medications

  • Vitamins

  • Supplements

  • Formulas essential to ALGS-related care
  • Eligibility: Patients and caregivers in Brazil affected by Alagille Syndrome

    Contact Information:

  • Email: mapp@alagille.org

  • Website: alagille.org
  • How to Apply

    Application Process

    Steps:
    1. Download MAPP Waiver and Application form
    2. Print the form
    3. Complete all required sections:
    - Patient information (name, date of birth, sex, CPF number)
    - Address details (street address, city, state, country)
    - Contact information (phone number, email)
    - Patient weight
    - Parent/guardian information (if patient is minor)
    - Medication list
    4. Return completed form to: mapp@alagille.org

    Required Information:

  • Patient Name

  • Date of Birth (DD-MMM-YYYY format)

  • Patient Sex

  • CPF Number (Brazilian taxpayer ID)

  • Complete Address

  • Phone Number

  • Email of patient or guardian

  • Patient Weight

  • Parent/guardian information (if applicable)

  • List of medications needed

  • Privacy disclosure and signature
  • Current Limitations: Only available for patients and families living in Brazil at this time

    Focus Areas & Funding Uses

    Fields of Work

    hardshipdisabled

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