Medication Access Patient Program (MAPP)

Purpose: Help patients and families in South America affected by Alagille Syndrome with out-of-pocket expenses for medications, vitamins, supplements, and formulas essential to their ALGS-related care.

Geographic Scope: Currently available for patients and families living in Brazil only. Program designed to address barriers to the access of essential medicines for ALGS patients in South America.

Partner: Developed with guidance and support from Tanner Pharma Group

What is Covered: Out-of-pocket expenses for:

• Medications
• Vitamins
• Supplements
• Formulas essential to ALGS-related care

Eligibility: Patients and caregivers in Brazil affected by Alagille Syndrome

Contact Information:

• Email: mapp@alagille.org
• Website: alagille.org

Application Process

Steps:

1. Download MAPP Waiver and Application form
2. Print the form
3. Complete all required sections:
   • Patient information (name, date of birth, sex, CPF number)
   • Address details (street address, city, state, country)
   • Contact information (phone number, email)
   • Patient weight
   • Parent/guardian information (if patient is minor)
   • Medication list
4. Return completed form to: mapp@alagille.org

Required Information:

• Patient Name
• Date of Birth (DD-MMM-YYYY format)
• Patient Sex
• CPF Number (Brazilian taxpayer ID)
• Complete Address
• Phone Number
• Email of patient or guardian
• Patient Weight
• Parent/guardian information (if applicable)
• List of medications needed
• Privacy disclosure and signature

Current Limitations: Only available for patients and families living in Brazil at this time