ALGSAssistance Continuity of Care Program
Funding Amount
Not stated
Deadline
Rolling (quarterly review)
Grant Type
Foundation
Deadline history & next window
- Cycle
- Rolling — applications accepted year-round
- Tracked since
- May 2026
Source: the cycle recorded on this listing. Confirm dates with the funder.
Overview
Purpose: Provide financial assistance for patients and families who have experienced a natural disaster or unexpected hardship.
Background: As a Global Genes RARE Foundation Alliance member, the ALGSA received a continuity of care RARE Patient Impact Grant from Global Genes. Global Genes launched this program to assist members of the rare disease community with expenses accrued as a result of natural disasters and emergencies.
Eligibility: Patients and families affected by Alagille Syndrome who have experienced a natural disaster or emergency causing financial hardship
Contact Information:
- Email: alagille@alagille.org
- Phone: 989.218.9028
- Mailing Address: Alagille Syndrome Alliance, P.O. Box 22, Collierville, TN 38027
How to Apply
Application Process
Submission: Complete ALGSAssistance Continuity of Care Application Form available online
Contact:
- Email: alagille@alagille.org
- Application form available at: https://alagille.org/algsassistance-continuity-of-care-application-form/
What Alagille Syndrome Alliance actually gave
Source: IRS Form 990, 2023 — the most recent filing with itemized grants
- Grants in 2023
- 1
- Total given
- $75K
- Median grant
- $75K
- By dollars: California 100%. Top recipient cities: Redwood, CA.
Example grants
Leland Stanford Junior University · Redwood, CA
Alagille cure resear
$75K
Focus Areas & Funding Uses
Fields of Work
- Hardship
- Disabled
- Disaster relief
Categories
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