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ALGSAssistance Continuity of Care Program

Alagille Syndrome Alliance

Funding Amount

Varies

Deadline

Rolling (quarterly review)

Grant Type

Foundation

Deadline history & next window

Cycle
Rolling — applications accepted year-round
Tracked since
May 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Overview

Purpose: Provide financial assistance for patients and families who have experienced a natural disaster or unexpected hardship.

Background: As a Global Genes RARE Foundation Alliance member, the ALGSA received a continuity of care RARE Patient Impact Grant from Global Genes. Global Genes launched this program to assist members of the rare disease community with expenses accrued as a result of natural disasters and emergencies.

Eligibility: Patients and families affected by Alagille Syndrome who have experienced a natural disaster or emergency causing financial hardship

Contact Information:

  • Email: alagille@alagille.org
  • Phone: 989.218.9028
  • Mailing Address: Alagille Syndrome Alliance, P.O. Box 22, Collierville, TN 38027

How to Apply

Application Process

Submission: Complete ALGSAssistance Continuity of Care Application Form available online

Contact:

  • Email: alagille@alagille.org
  • Application form available at: https://alagille.org/algsassistance-continuity-of-care-application-form/

What Alagille Syndrome Alliance actually gave

Source: IRS Form 990, 2023 — the most recent filing with itemized grants

Grants in 2023
1
Total given
$75K
Median grant
$75K
  • By dollars: California 100%. Top recipient cities: Redwood, CA.

Example grants

  • Leland Stanford Junior University · Redwood, CA

    Alagille cure resear

    $75K

IRS Form 990, 2023. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Hardship
  • Disabled
  • Disaster relief

Categories

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