Ehlers-Danlos Society
Funding Overview
From IRS Form 990 filings · 2019–2026
Total received
$7.8M
Foundation funders
46
Grants recorded
87
Years covered
2019–2026
Who funds Ehlers-Danlos Society?
Ehlers-Danlos Society is funded by 46 grantmakers, led by Vanguard Charitable Endowment Program ($2.9M), Mike & Sofia Segal Foundation ($2.8M), Network for Good ($1.1M). In total, IRS Form 990 filings record $7.8M in grants to Ehlers-Danlos Society between 2019–2026.
Show all 46 funders
| Associated Jewish Charities of Baltimore | $6,000 | 1 | 2021 |
| Frontstream Global Fund | $5,041 | 1 | 2020 |
| Strive Fund | $5,000 | 1 | 2025 |
| Raymond James Charitable Endowment Fund | $5,000 | 1 | 2025 |
| C J Heilig Foundation Inc | $5,000 | 1 | 2021 |
| The Bessemer Giving Fund | $5,000 | 1 | 2020 |
| World Charity Foundation | $4,000 | 2 | 2024–2026 |
| Marie G Dennett Foundation Inc | $2,500 | 1 | 2025 |
| Bruce R Hofmann Family Foundation | $2,000 | 1 | 2025 |
| The Gevock Foundation Inc | $1,000 | 1 | 2025 |
| The Lion Glass Foundation | $1,000 | 1 | 2019 |
| The Pfizer Foundation Inc | $775 | 5 | 2021–2023 |
| The Tapestry Foundation Inc | $500 | 1 | 2025 |
| The Keats Family Foundation | $500 | 1 | 2023 |
| Lorraine and Richard Schwarz Family Foundation | $500 | 1 | 2023 |
| The a a Windesheim Charitable Found Inc | $500 | 1 | 2020 |
| The Forst Foundation | $500 | 1 | 2019 |
| The Storehouse Foundation | $400 | 2 | 2020–2021 |
| The Cigna Group Foundation | $370 | 2 | 2021–2024 |
| Duke Energy Foundation | $200 | 4 | 2020–2022 |
| Avantor Sciences Foundation | $50 | 1 | 2023 |
Funding over time
Grant dollars and counts received per year
From 2019 to 2026, annual grant giving ranged from $2K (2019) to $4.4M (2024). In 2026 it made 2 grants totaling $11K.
What grants has Ehlers-Danlos Society received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2026 | Abramson Family Foundation Inc | CHARITABLE | $10,000 |
| 2026 | World Charity Foundation | Advocacy & research for EDS and HSD | $1,000 |
| 2025 | Ehlers-Danlos Research Foundation Inc | TO DONATE FUNDS TO AN ORGANIZATION THAT CLOSELY MATCHED THE EHLER'S DANLOS RESEARCH FOUNDATION'S MISSION. | $297,267 |
| 2025 | Annette L Smith Foundation | GENERAL SUPPORT | $45,000 |
| 2025 | Alice M O'Brien Foundation | CONTINUING OPERATIONS | $19,500 |
| 2025 | Abramson Family Foundation Inc | CHARITABLE | $16,925 |
| 2025 | Tahoe Community Foundation | Well-Being | $10,000 |
| 2025 | Christian Family Foundation | HEALTHCARE | $5,000 |
| 2025 | Strive Fund | GENERAL PURPOSE | $5,000 |
| 2025 | Raymond James Charitable Endowment Fund | GENERAL SUPPORT | $5,000 |
| 2025 | The OTT Family Foundation | GENERAL SUPPORT | $3,000 |
| 2025 | McDougal Foundation | Advocacy & research for EDS and HSD | $2,500 |
| 2025 | Marie G Dennett Foundation Inc | CHARITABLE PURPOSE | $2,500 |
| 2025 | Bruce R Hofmann Family Foundation | general support | $2,000 |
| 2025 | The Gevock Foundation Inc | GENERAL OPERATING SUPPORT | $1,000 |
| 2025 | The Tapestry Foundation Inc | EMPLOYEE MATCHING PROGRAM - FURTHER 501(C)(3) CHARITABLE PURPOSE | $500 |
| 2024 | Vanguard Charitable Endowment Program | FOR RECIPIENT'S EXEMPT PURPOSE | $2,415,700 |
| 2024 | Mike & Sofia Segal Foundation | OPERATIONS | $1,406,108 |
| 2024 | I Am Mercy Foundation | TO SUPPORT THE STUDY OF EHLERS-DANLOS SYNDROME & DEVELOPMENT OF PERSONALIZED THERAPEUTIC SOLUTIONS | $222,094 |
| 2024 | Network for Good | UNRESTRICTED | $185,160 |
| 2024 | Hugh and Charlotte Maclellan Charitable | FOR CHARITABLE LEADERSHIP DEVELOPMENT. | $75,000 |
| 2024 | The M & T Fantastic Family Foundation | CASH DONATION | $30,000 |
| 2024 | Abramson Family Foundation Inc | CHARITABLE | $23,200 |
| 2024 | Henry & Helen Bienenfeld Foundation | PROMOTE AWARENESS OD EDS AND HSD | $12,000 |
| 2024 | Old Oaks Foundation Inc | GENERAL SUPPORT | $11,000 |
| 2024 | Aspen Foundation | CHARITABLE AID | $10,000 |
| 2024 | Edward R Fisher Charitable Fndn | UNRESTRICTED | $10,000 |
| 2024 | GS Donor Advised Philanthropy Fund for Wealth Management Inc | MEDICAL / PUBLIC SERVICES | $10,000 |
| 2024 | The David and Kathleen M Wojcik | RESEARCH & GENERAL SUPPORT | $6,500 |
| 2024 | Annette L Smith Foundation | GENERAL SUPPORT | $5,000 |
Showing 30 most recent of 87 recorded grants.
Frequently Asked Questions
Who funds Ehlers-Danlos Society?
Ehlers-Danlos Society is funded by 46 grantmakers, led by Vanguard Charitable Endowment Program ($2.9M), Mike & Sofia Segal Foundation ($2.8M), Network for Good ($1.1M). In total, IRS Form 990 filings record $7.8M in grants to Ehlers-Danlos Society between 2019–2026.
Who is Ehlers-Danlos Society's largest funder?
Vanguard Charitable Endowment Program is the largest recorded funder of Ehlers-Danlos Society, with $2.9M across 4 grants (2021–2024).
How much grant funding has Ehlers-Danlos Society received?
IRS 990 filings record $7.8M in grants to Ehlers-Danlos Society across 87 grants from 46 funders between 2019–2026. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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