Ehlers-danlos Society
New York, NY ·EIN 38-2813140 ·Grant funding profile from IRS 990 filings
Ehlers-danlos Society also makes grants — see its funder profile →
Who funds Ehlers-danlos Society?
Ehlers-danlos Society is funded by 15 grantmakers, led by Mike & Sofia Segal Foundation ($2.8M), Network for Good ($350K), Hugh and Charlotte Maclellan Charitable ($165K). In total, IRS Form 990 filings record $3.6M in grants to Ehlers-danlos Society between 2020–2024.
| Funder | Total given | Grants | Years |
|---|---|---|---|
| Mike & Sofia Segal Foundation | $2,812,216 | 2 | 2023–2024 |
| Network for Good | $349,982 | 2 | 2020–2021 |
| Hugh and Charlotte Maclellan Charitable | $165,000 | 4 | 2022–2024 |
| Vanguard Charitable Endowment Program | $122,600 | 1 | 2022 |
| The M & T Fantastic Family Foundation | $30,000 | 1 | 2024 |
| Christian Family Foundation | $24,000 | 5 | 2020–2024 |
| Aspen Foundation | $20,000 | 2 | 2023–2024 |
| The Community Foundation Inc | $12,500 | 1 | 2023 |
| The Lozick Family Foundation | $12,500 | 1 | 2023 |
| May and Samuel Rudin Family Foundation Inc | $10,000 | 1 | 2021 |
| Enterprise Holdings Foundation | $5,500 | 2 | 2021–2022 |
| Frontstream Global Fund | $5,041 | 1 | 2020 |
| RightSpace Storage Foundation | $300 | 1 | 2021 |
| Duke Energy Foundation | $173 | 2 | 2020–2021 |
| The Pfizer Foundation Inc | $50 | 1 | 2021 |
What grants has Ehlers-danlos Society received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2024 | Mike & Sofia Segal Foundation | OPERATIONS | $1,406,108 |
| 2024 | Hugh and Charlotte Maclellan Charitable | FOR CHARITABLE LEADERSHIP DEVELOPMENT. | $75,000 |
| 2024 | The M & T Fantastic Family Foundation | CASH DONATION | $30,000 |
| 2024 | Aspen Foundation | CHARITABLE AID | $10,000 |
| 2024 | Christian Family Foundation | HEALTH CARE | $4,500 |
| 2023 | Mike & Sofia Segal Foundation | OPERATIONS | $1,406,108 |
| 2023 | Hugh and Charlotte Maclellan Charitable | FOR LEADERSHIP DEVELOPMENT OR TRAINING. | $60,000 |
| 2023 | Hugh and Charlotte Maclellan Charitable | FOR PROVIDING HEALTH SERVICES. | $15,000 |
| 2023 | The Community Foundation Inc | HEALTH AND WELLNESS | $12,500 |
| 2023 | The Lozick Family Foundation | GENERAL SUPPORT | $12,500 |
| 2023 | Aspen Foundation | CHARITABLE AID | $10,000 |
| 2023 | Christian Family Foundation | HEALTH CARE | $4,500 |
| 2022 | Vanguard Charitable Endowment Program | For recipient's exempt purpose | $122,600 |
| 2022 | Hugh and Charlotte Maclellan Charitable | FOR PROVIDING HEALTH SERVICES. | $15,000 |
| 2022 | Christian Family Foundation | HEALTH CARE | $6,000 |
| 2022 | Enterprise Holdings Foundation | Program Support | $3,000 |
| 2021 | Network for Good | UNRESTRICTED | $184,273 |
| 2021 | May and Samuel Rudin Family Foundation Inc | GENERAL SUPPORT | $10,000 |
| 2021 | Christian Family Foundation | HEALTH CARE | $5,000 |
| 2021 | Enterprise Holdings Foundation | PROGRAM SUPPORT | $2,500 |
| 2021 | RightSpace Storage Foundation | Medical - Patient support, scientific research, advocacy, and increasing awareness for the Ehlers-Danlos syndromes and hypermobility spectrum disorder. | $300 |
| 2021 | Duke Energy Foundation | MATCHING GIFTS | $81 |
| 2021 | The Pfizer Foundation Inc | MATCHING GIFTS | $50 |
| 2020 | Network for Good | Unrestricted | $165,709 |
| 2020 | Frontstream Global Fund | GENERAL SUPPORT | $5,041 |
| 2020 | Christian Family Foundation | HEALTH CARE | $4,000 |
| 2020 | Duke Energy Foundation | EMPLOYEE MATCHING GIFTS | $92 |
Frequently Asked Questions
Who funds Ehlers-danlos Society?
Ehlers-danlos Society is funded by 15 grantmakers, led by Mike & Sofia Segal Foundation ($2.8M), Network for Good ($350K), Hugh and Charlotte Maclellan Charitable ($165K). In total, IRS Form 990 filings record $3.6M in grants to Ehlers-danlos Society between 2020–2024.
Who is Ehlers-danlos Society's largest funder?
Mike & Sofia Segal Foundation is the largest recorded funder of Ehlers-danlos Society, with $2.8M across 2 grants (2023–2024).
How much grant funding has Ehlers-danlos Society received?
IRS 990 filings record $3.6M in grants to Ehlers-danlos Society across 27 grants from 15 funders between 2020–2024. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.