PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$293K
-28.7% YoY
Annual Giving
$99K
-34.8% YoY
Grant Count
1
-50.0% YoY
Avg Grant Size
$99K
+30.5% YoY
About Ehlers-danlos Research Foundation Inc
Based on IRS filings
Ehlers-danlos Research Foundation Inc is a nonprofit organization focused on Medical Research, based in PIKESVILLE, MD. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $293K in total assets. In 2024, it awarded 1 grants totaling $99K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $293,252 | $411,519 | $466,020 |
| Revenue | $120,676 | $281,141 | $213,055 |
| Expenses | $238,943 | $335,642 | $67,840 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | — | — | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Hugo W Moser Research Institute at Kennedy Krieger Inc ($99,279).
| Recipient | Purpose | Amount |
|---|---|---|
| HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC BALTIMORE, MD | TO SUPPORT RESEARCH STUDIES TO IMPROVE THERAPIES FOR EHLERS-DANLOS SYNDROME | $99,279 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JENNIFER SPIEGEL BERMAN | PRESIDENT | 3 | — |
| JAYNE GAVRITY | TREASURER | 3 | — |
| DR ALISSA ZINGMAN | MEDICAL DIRECTOR | 6 | — |
| JESSIKA AUERBACH | FUNDRAISING DIRECTOR | 3 | — |
| SHARON YOH | DONOR RELATIONS | 3 | — |
| MISIA VAN ARSDALE | DIRECTOR | 3 | — |
| ILENE RUHOY | DIRECTOR | 3 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Ehlers-danlos Research Foundation Inc?
Ehlers-danlos Research Foundation Inc is a nonprofit organization focused on Medical Research, based in PIKESVILLE, MD. It holds $293K in total assets as of 2024.
How large is Ehlers-danlos Research Foundation Inc?
As of 2024, Ehlers-danlos Research Foundation Inc holds $293K in total assets with $121K in annual revenue. It awarded 1 grants totaling $99K in 2024.
Where does Ehlers-danlos Research Foundation Inc operate?
Ehlers-danlos Research Foundation Inc has awarded grants in Indiana, Maryland.
What size grants does Ehlers-danlos Research Foundation Inc award?
In 2024, Ehlers-danlos Research Foundation Inc awarded 1 grants totaling $99K — an average of about $99K per grant, based on its IRS Form 990 filings.
What is Ehlers-danlos Research Foundation Inc's EIN?
Ehlers-danlos Research Foundation Inc's EIN (Employer Identification Number) is 84-4482546. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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