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Therapy Development Fund

Kabuki Syndrome Foundation

Funding Amount

$150,000 - $250,000

Deadline

Rolling / Open

Grant Type

Foundation

Can we apply?

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Eligible organizations

  • Academic investigators
  • Industry investigators

Overview

Geographic Scope: International (academic and industry investigators welcome)

The Therapy Development Fund is designed to bridge the gap between basic science and clinical trials for Kabuki syndrome treatments. Strategic investments target therapies already in development and aim to advance potential treatments from proof-of-concept to clinical trials.

Funding Focus

  • Studies to better understand the safety and efficacy of potential treatments
  • Research advancing therapies toward clinical trials
  • Translation of promising discoveries from lab to patients

Eligibility

  • Academic investigators
  • Industry investigators

What They Fund

  • Safety and efficacy studies of potential treatments
  • Proof-of-concept to clinical trial advancement

Background

Rare disease research faces significant hurdles in bridging the gap between basic science and clinical trials. The Therapy Development Fund addresses this critical funding gap. Over $2,000,000 has been secured to support LEAP (the roadmap to Kabuki syndrome treatments) so far. The KSF is the only organization funding the discovery and development of therapeutics for Kabuki syndrome.

Contact

Address: P.O. Box 214, Northbrook, IL 60065

How to Apply

Application Process

For more information and to apply for funding, visit the Grant Opportunities page at kabukisyndromefoundation.org/for-researchers/grant-opportunities/

Contact for inquiries:

  • Email: clara@kabukisyndromefoundation.org

  • Email: info@kabukisyndromefoundation.org
  • What Kabuki Syndrome Foundation actually gave

    Source: IRS Form 990 filing, 2024

    Grants in 2024
    3
    Total given
    $239K
    Median grant
    $101K
    Range
    $29K–$109K
    • By dollars: Maryland 46%, Massachusetts 42%, Washington 12%. Top recipient cities: Baltimore, MD; Boston, MA; Seattle, WA.

    Example grants

    • Kennedy Krieger Institute · Baltimore, MD

      Kabuki syndrome research

      $109K

    • Boston Childrens Hospital · Boston, MA

      Kabuki syndrome research

      $101K

    • Seattle Children's Hospital · Seattle, WA

      Kabuki syndrome research

      $29K

    IRS Form 990 filing, 2024. Amounts as reported by the funder. Full 990 history →

    Focus Areas & Funding Uses

    Fields of Work

    • Science research

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