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Recent Ad Hoc Grant: ZEPIKActive - dCas9 activator for KMT2D function restoration

Kabuki Syndrome Foundation

Foundation One-time Grants for Science Research

Funding Amount

$45,132.96

Deadline

Rolling / Open

Grant Type

Foundation

Deadline history & next window

Cycle
One-time opportunity
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Overview

ZEPIKActive: Use of dCas9 Activator to Restore Normal KMT2D Function

Award Date: March 2025

This study explores whether dCas9-activated transcription can compensate for KMT2D haploinsufficiency in Kabuki syndrome type 1.

Research Focus

  • Kabuki syndrome type 1 (KS1) caused by KMT2D mutations
  • Impaired H3K4 methylation and disrupted gene activation
  • Use of dCas9 (catalytically inactive Cas9) with transcriptional activator VP60
  • Upregulation of wild-type KMT2D allele in zebrafish model of KS1
  • Development of novel gene activation-based therapy for KS

Researchers

  • Dr. David Geneviève, MD, PhD
  • Dr. Farida Djouad, PhD
  • Dr. Jean-Christophe Andrau, PhD
  • Dr. Kyle Fink, PhD

Contact

Address: P.O. Box 214, Northbrook, IL 60065

What Kabuki Syndrome Foundation actually gave

Source: IRS Form 990 filing, 2024

Grants in 2024
3
Total given
$239K
Median grant
$101K
Range
$29K–$109K
  • By dollars: Maryland 46%, Massachusetts 42%, Washington 12%. Top recipient cities: Baltimore, MD; Boston, MA; Seattle, WA.

Example grants

  • Kennedy Krieger Institute · Baltimore, MD

    Kabuki syndrome research

    $109K

  • Boston Childrens Hospital · Boston, MA

    Kabuki syndrome research

    $101K

  • Seattle Children's Hospital · Seattle, WA

    Kabuki syndrome research

    $29K

IRS Form 990 filing, 2024. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Science research

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