MSF Grant Program for Research on Moebius Syndrome

Program Type: Seed-money grants for scientific and clinical research

Focus Areas:

• Sleep disturbances and Moebius Syndrome (priority area as of 2020 RFA)
• Other scientific and clinical research related to Moebius Syndrome
• Investigation of links between Moebius Syndrome and various health conditions

Specific Research Priority (2020):
The foundation identified a need for investigation into the role of Moebius Syndrome and sleep disturbances. Anecdotal evidence from persons with Moebius Syndrome includes:

• Difficulty falling asleep
• Difficulty staying asleep
• Night terrors
• Sleep walking
• Sleep apnea
• Decreased quality of sleep

Eligibility:

• Qualified investigators (medical professionals, researchers)
• Must include NIH biosketch for each co-investigator

Award Details:

• Funding amount: Limited to $30,000
• Recurrence: Rolling deadline (applications accepted on ongoing basis)
• Encouragement: Submit as soon as possible

Geographic Scope: Not specified; presumed United States

Application Process

Required Materials:

1. Study Proposal: 5-page proposal detailing research methodology and objectives
2. Budget: Detailed budget breakdown for the $30,000 request
3. NIH Biosketch: For each co-investigator

Submission Details:

• Deadline: Rolling deadline - applications accepted on ongoing basis
• Timing: Foundation encourages submission as soon as possible
• Format: Unclear if electronic or paper submission
• Submit to: bryn.webb@mssm.edu

Narrative Focus: Proposals should clearly establish the link between Moebius Syndrome and the research topic, with specific attention to sleep-related research as of the 2020 RFA.