Moebius Syndrome Foundation
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.0M
+7.9% YoY
Annual Giving
$21K
-76.9% YoY
Grant Count
7
-12.5% YoY
Avg Grant Size
$3K
-73.6% YoY
About Moebius Syndrome Foundation
Based on IRS filings
Moebius Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in DENVER, CO. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 7 grants totaling $21K. Net investment income was $56K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,978,268 | $1,833,572 | $1,898,826 |
| Revenue | $338,157 | $458,300 | $358,125 |
| Expenses | $283,083 | $599,259 | $519,527 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $56,102 | $68,250 | $47,724 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
21 grants across all recorded years
Open Grants
2 open opportunities from Moebius Syndrome Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Austin Halls | Board Member | 2 | — |
| Vicky McCarrell | Board Member | 2 | — |
| KiOwana Phillips | Board Member | 2 | — |
| Kathryn Kraus | Board Member | 2 | — |
| Bryn Webb MD | Board Member | 2 | — |
| Rebecca Maher | President | 10 | — |
| Destiny Bachman | Treasurer | 10 | — |
| Jon Fisher | Secretary | 10 | — |
| Steven Maldonado | Vice President | 2 | — |
| Jacob Licht | Past President | 10 | — |
| Jennifer Whitman | Executive Director | 40 | $90,018 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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