Moebius Syndrome Foundation
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.0M
+7.9% YoY
Annual Giving
$21K
-76.9% YoY
Grant Count
7
-12.5% YoY
Avg Grant Size
$3K
-73.6% YoY
About Moebius Syndrome Foundation
Based on IRS filings
Moebius Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in DENVER, CO. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 7 grants totaling $21K. Net investment income was $56K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,978,268 | $1,833,572 | $1,898,826 |
| Revenue | $338,157 | $458,300 | $358,125 |
| Expenses | $283,083 | $599,259 | $519,527 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $56,102 | $68,250 | $47,724 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 7 recipients in 2024
Grant Size Distribution
21 grants across all recorded years
Open Grants
2 open opportunities from Moebius Syndrome Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of South Florida ($3,000), University of North Florida ($3,000), Oklahoma State University ($3,000).
| Recipient | Purpose | Amount |
|---|---|---|
| University of South Florida Tampa, FL | Scholarship | $3,000 |
| University of North Florida Jacksonville, FL | Scholarship | $3,000 |
| Oklahoma State University Stillwater, OK | Scholarship | $3,000 |
| Oklahoma Wesleyan University Bartlesville, OK | Scholarship | $3,000 |
| Eckerd College St Petersburg, FL | Scholarship | $3,000 |
| York College of Pennsylvania York, PA | Scholarship | $3,000 |
| University of Nebraska Lincoln Lincoln, NE | Scholarship | $3,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Austin Halls | Board Member | 2 | — |
| Vicky McCarrell | Board Member | 2 | — |
| KiOwana Phillips | Board Member | 2 | — |
| Kathryn Kraus | Board Member | 2 | — |
| Bryn Webb MD | Board Member | 2 | — |
| Rebecca Maher | President | 10 | — |
| Destiny Bachman | Treasurer | 10 | — |
| Jon Fisher | Secretary | 10 | — |
| Steven Maldonado | Vice President | 2 | — |
| Jacob Licht | Past President | 10 | — |
| Jennifer Whitman | Executive Director | 40 | $90,018 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Moebius Syndrome Foundation?
Moebius Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in DENVER, CO. It holds $2.0M in total assets as of 2024.
How large is Moebius Syndrome Foundation?
As of 2024, Moebius Syndrome Foundation holds $2.0M in total assets with $338K in annual revenue. It awarded 7 grants totaling $21K in 2024.
Where does Moebius Syndrome Foundation operate?
Moebius Syndrome Foundation has awarded grants in Arkansas, California, Connecticut, District of Columbia, Florida, Indiana, Maryland, Minnesota, Mississippi, North Carolina, Nebraska, New York, Ohio, Oklahoma, Oregon, Pennsylvania.
What size grants does Moebius Syndrome Foundation award?
In 2024, Moebius Syndrome Foundation awarded 7 grants totaling $21K — an average of about $3K per grant, based on its IRS Form 990 filings.
What is Moebius Syndrome Foundation's EIN?
Moebius Syndrome Foundation's EIN (Employer Identification Number) is 13-3753992. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Moebius Syndrome Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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